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Jenine

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      Jenine
      Participant

      Hi Julie. So happy to hear you are doing so well. Yay for you! Keep the good news coming:-)

      Jenine

      Jenine
      Participant

      Hello Steven.  

      I’m glad your surgery was a success and relatively painless. Cheers to you!!  

      My husbands tumor is on right on the side of his neck.  It the size of a golf ball or small egg.   Original primary site is also on the right side of his body on the top of his shoulder.  

      He had surgery originally when he was diagnosed and they thought they got it all about five years ago. Unfortunately about a year and a half after his surgery to remove lymph nodes and the original site the naughty tumors popped up on his neck and sternum.  Fast forward to just a few months post the end of  a grueling clinical trial here we are.  

      Any help you can offer would be appreciated! 

      Take good care of yourself!!

      Jenine

      Jenine
      Participant

      Hi Ed,

      I hope you are well.  My husbands sternum tumor started at 4.1 cm x 3.5 cm and is now 2.4 cm x 2.2 cm. We are so super grateful to have had his tumor shrink, but are concerned now that his 2 year clinical trial is over.  I understand a tumor near the sternum is very stubborn to treat. We are scheduled to meet with Dr. Kirkwood and team in October to discuss the what’s next. Any help you can offer would be appreciated. Take good care of yourself and thanks again for all the good advise you share.

      Best,

      Jenine

      Jenine
      Participant

      Thank you Amanda. Wishing you all the best with your treatment. 

      Jenbe and Bill

      Jenine
      Participant

      Happy Birthday Celeste!!  May all of your wishes come true:)

      xo Jenine 

      Jenine
      Participant

      Hip hip horay!  So happy to share in your good news;-)

      Stay well Tex!

      Jenine

       

      Jenine
      Participant

      Yay!  Totally winning at life:)  

      Jenine
      Participant

      Happy Birthday!!    Your wisdom, humor, compassion and love is much appreciated by all.   Wishing you a year filled with lots of happiness and good health. 

      Xo,

      Jenine and Bill

      Jenine
      Participant

      Oh Janis.   Words cannot express how sorry I am for your heart breaking loss.   I will keep you in my prayers.   God bless you and allow you to find peace.  XO

      Jenine

       

       

      Jenine
      Participant

      I'm so sorry for your loss.   I will keep you and your family in my heart and prayers.  

      Jenine
      Participant

      Good for you! You certainly deserve it;)

      Jenine

      Jenine
      Participant

      Good for you! You certainly deserve it;)

      Jenine

      Jenine
      Participant

      Good for you! You certainly deserve it;)

      Jenine

      Jenine
      Participant

      Hi Celeste,

      My husbands BRAF test came back negative.  Thank you for preparing me and helping me understand a things s little better.

      With that being said clinical trial 13-105 is off the table.  Any suggestions for a new treatment path?  We go to the oncologist tomorrow. 

      I visited your blog.  Your are absolutely adoreable and funny!  So grateful for you advise…

      Bless you,

      Jenine (Bill too)

       

       

      Jenine
      Participant

      Hi Celeste,

      My husbands BRAF test came back negative.  Thank you for preparing me and helping me understand a things s little better.

      With that being said clinical trial 13-105 is off the table.  Any suggestions for a new treatment path?  We go to the oncologist tomorrow. 

      I visited your blog.  Your are absolutely adoreable and funny!  So grateful for you advise…

      Bless you,

      Jenine (Bill too)

       

       

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