MRF-Logo2019-Horizontal-RGB
Scan Results
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Scan Results

› Forums › General Melanoma Community › Scan Results

  • Post
    • February 20, 2018 at 6:16 pm
    Hukill
    Participant

      I became NED in August 2017, scan in December 2017 still NED and I had a scan on Friday and STILL NED!!! i still get nivo every other Friday and will continue through August. I have had 5 combo plus 34 maintanance doses. I still have mild side effects but it lets me know my immune system is responding. I have not missed a treatment and still work full time but it is hard some times. I was surprised to learn Friday that the infusion time has been cut from 60 minutes to 30 minutes. I did not feel any different after my infusion. 

    Viewing 7 reply threads
    • Replies
        • February 20, 2018 at 8:57 pm
        Casitas1
        Participant

          Sweet! Keep it up.

          Best, Paul

          • February 21, 2018 at 3:11 am
          Bubbles
          Participant

            WONDERFUL!!!!  That is fabulous!  Enjoy. c

            • February 21, 2018 at 3:50 am
            sister of patient
            Participant

              Excellent!! Here's to forever NED!!! Best wishes!

              Barb

              • February 21, 2018 at 3:57 am
              TexMelanomex
              Participant

                Nice!! Awesome to hear this! At my last Keytruda infusion the time was also cut due to a "national shortage" of saline (Sodium Chloride IV bags)!?!?! Did they tell you the same? Congratulations on staying NED, Warrior!

                 

                  • February 21, 2018 at 3:17 pm
                  Hukill
                  Participant

                    They said it was from the company.

                    • February 21, 2018 at 3:19 pm
                    Hukill
                    Participant

                      I don't think I ever used more than a 10th of a saline bag but they said it was from the company.

                    • February 21, 2018 at 4:03 am
                    jennunicorn
                    Participant

                      Yaaayyyy!!

                      • February 21, 2018 at 3:13 pm
                      ed williams
                      Participant

                        Great news!!! Did they explain the reason for the change in treatment time? Ed

                          • February 21, 2018 at 3:18 pm
                          Hukill
                          Participant

                            They said it was from the company.

                          • February 21, 2018 at 6:48 pm
                          Patrisa
                          Participant

                            Great hukill, stay NED FOREVER!!!!

                            patrisa

                            • February 24, 2018 at 1:31 am
                            CancerSpouse
                            Participant

                              Hurray! ~ Carol

                                • February 27, 2018 at 3:20 am
                                Jenine
                                Participant

                                  Yay!  Totally winning at life:)  

                            Viewing 7 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics