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wildpoppy

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      wildpoppy
      Participant

        Hi there

        Sorry for your nephews diagnosis. Mucosal Melanoma is a different beast to 'normal' skin melanoma… And much less is known about it I believe. There is a fantastic facebook page called Mucosal Melanoma Warriors, lovely people on there, and a wealth of knowledge too. I would tell you to join the group and put your nephews story on there… Best regards

        wildpoppy
        Participant

          I'm wondering if you ever found an answer to this question? I am in a similar position!

          wildpoppy
          Participant

            Hi there Ben

            just wondered the outcome of your mole? I am going through something similar, very dark mole on leg, just under 1mm. 

            Am at my GP, hoping they refer me! (UK)

            hope it all turned out good?

            wildpoppy
            Participant

              Good that its coming off, let me know how it goes! 

              Yes, I picked at mine in exactly the same way ages ago… One time I picked at it, and it REALLY hurt.. So I decided to stop picking… This is months ago now. I decided to stop stressing and forget about it. And I did! Until about 4-5 weeks ago, when I found this lump… I was subconsciously feeling it… I wondered what it was, then realised it was the same place as before except this was now slightly bigger, smoother. I took a picture, and saw it is a pink 'bump', slightly raised and about 5mm. Ugh…. I just want it gone, as I have mild panic everytime I think about it 🙁 I hope its nothing for both of us

              wildpoppy
              Participant

                Thank you so much… I didn't know that about moles, though I do know someone (on a forum that had a scalp melanoma about an inch wide, that had lots of hair growing through it… So I guess it varies maybe?)…You are right though, I know being uset is rubbish and won't change annything… I have anxiety ( I have had so many health issues in last 5 years, celiac, graves disease, brain fistula that I always think the worst)… But I do agree with you! Thank you for telling me that sometimes you have bumps 🙂 It does help. I know I have never had a mole in this location… So I think it is a 'growth' of some kind, just hoping it is some kind of hair follicle thing. Again, I appreciate your kind and wise words 

                wildpoppy
                Participant

                  I am sorry for everything you are going through, it just doesnt seem possible does it, from a little 'spot'…. Mine sounds similar to yours, raised, about the size of a pencil eraser etc… I will get it checked, I have derm appt in 3 weeks (cant see him sooner)… I have been trying to think back to when I first had this 'pimple'… I am frightening myslef as I know now that it has been there for a year 🙁 I can't lie, I'm absoultey terrified, as I know it has grown. Ugh… Thank you so much for your help… I wish you EVERY success with your treatment, sincerely, best and kindest wishes

                  wildpoppy
                  Participant

                    Wow, that woke me up this morning… I'm so sorry to hear all this 🙁 

                    May I ask, did it itch or anything? Or bleed? Was it very raised? How big was it?

                    Sorry so many questions, I'm petrified anyway, just cant get to my good derm for 3 weeks.

                    How long did you have it until they biopsied?

                    Mine has been there some months… ugh… When I picked mine it hurt bad and it crusted over…

                    I am sorry it has progressed, are you on immunotherapy now? Wishing you every success at healing, sincerely

                    wildpoppy
                    Participant

                      Thanks for replying Mark… But she obviously thinks it important enough to biopsy… Which is good really, as you say, better safe than sorry… 

                      I'm glad she thinks its nothing… May I ask how big your similar bump is? Have you had it a while?

                      wildpoppy
                      Participant

                        Thank you… I hope you're right… The only reason I think its not a cyst is because apparently scalp cysts don't grow hair through them… (I know scalp melanomas do)…

                        Ugh, how easy it is to become paranoid over EVERYTHING. Thanks for replying…May I ask, did they biopsy your similar growth? Do you know what it was?

                        wildpoppy
                        Participant

                          Thank you for replying… I feel so silly for not thinking anything of it ages ago and thinking it was a spot, what an idiot… Real shock 2 weeks ago to see this pink bump boldly sitting there 🙁 I hope you're right and its nothing … 

                          wildpoppy
                          Participant

                            Thank you!! I want to, I did ask my derm to remove it… He said no need! I am UK, so operate within NHS. They won't remove easily… I could try privately but in total would cost me around £700 🙁 money I don't easily have… I may go privately and get a second opinion? Thanks for responding. My friend also has an atyical mole (no history) but has also been told to watch and wait! Ugh….

                            wildpoppy
                            Participant

                              Sincerely thank you… I went to my appt, the dermatologist agreed to remove. Phew. I go just over a week for removal. He told me that I also have an atypical nevus on my belly… Should I have that removed also? He said to watch, but it makes me nervous.  I am so happy that you are 8 years NED… That truly is amazing. Do you think your original was due to sun exposure? Do you now avoid the sun? I love the sun, but have become very paranoid lately, shame as we are having great weather here in UK. You are right, the spectre is a terrifying idea… But thank you for all the support. Sincerely, I have felt very loney, so it means a lot to me. Kimmy

                              wildpoppy
                              Participant

                                PS. I go on this Friday, I just have to think of a way to get them to biopsy it, as historically, even though I have a family history, they think I am paranoid (perhaps I am?)… Ugh… I just want it off though 🙁 

                                wildpoppy
                                Participant

                                  Thank you so much Mark, for replying, sincerely grateful. Sorry it took e too long to get back to you, I have been feeling really down. What was your tiny black dot? Was it actually a mole? Or a dysplastic mole? I am worried that they will laugh at me because it so small (just about a smidge under 1mm). But it is new, I kind of saw it 3-4 months ago, but it was a weeny black speck under the skin, so I just ignored. Fast forward, all of a sudden is this black growth. It looks like a speck of something stuck to me. I have nothing on my body similar…….. Everything on me is light to mid brown, with a couple of dark mid brown moles.

                                  May I ask how you are now? How long ago were you diagnosed? Did they give you treatment if you are 2A? Thanks for your help, sincerely, I'm trying to be a bit more positive after reading your reply… 

                                  wildpoppy
                                  Participant

                                    Hi there

                                    i know this an old thread but wondered how the freckles turned out? I am on holiday and just discovered a new freckle/mole in arch of foot… can’t get it checked until I get back 🙁 it’s freaked me out, and ruining my holiday.

                                    its 2mmx2mm, and kind of star shaped, darker around edges but still only a mid brown…

                                    anyone it needs looking at, but is it really a bad sign, dr google is freaking me out 🙁

                                     

                                    thank you

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