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Mucosal malignant melanoma
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Mucosal malignant melanoma

› Forums › Mucosal Melanoma Community › Mucosal malignant melanoma

  • Post
    • July 28, 2018 at 2:22 pm
    Tamisara
    Participant
      Hi, can anyone help my family understand.. My nephew who is a fit and healthy 51 year old has been diagnosed with mucosal malignant melanoma in situ in his palate he has had it removed surgically 4 times in 2 and a half years and each time comes back ..this time with cells spread to the pink healthy looking tissue also..he is being seen at the royal Marsden in London by a professor with 40 years experience but all the doctors seem to not know what to do next.. any advice from anywhere or who in this world may know what to do next..
      Tami
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        • August 1, 2018 at 11:06 pm
        wildpoppy
        Participant

          Hi there

          Sorry for your nephews diagnosis. Mucosal Melanoma is a different beast to 'normal' skin melanoma… And much less is known about it I believe. There is a fantastic facebook page called Mucosal Melanoma Warriors, lovely people on there, and a wealth of knowledge too. I would tell you to join the group and put your nephews story on there… Best regards

            • August 2, 2018 at 9:24 pm
            Tamisara
            Participant
              Hello anonymous and thank you for your reply.. I don’t really have an open facebook at the moment but will have to activate it to have a look .TJ
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