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lkb
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lkb

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      • April 13, 2022 at 9:52 pm
      lkb
      Participant
        Thank you, Stevek. I’m also in the extensive vitiligo club and agree that not much seems to be known about immunotherapy beyond “We see cancer patients with peripheral neuropathy.” Thank you for the walking tip. When the time is right, I dread/look forward to going a year between scans.
        • April 12, 2022 at 11:54 am
        lkb
        Participant
          Thank you, Steve, for your reply. Hooray for NED and sorry to learn of the diabetes. You say you’ve never had glucose problems; have your glucose levels registered as normal throughout? Mine have, which has made me think it’s not diabetes. GP has ordered A1C test. Could you please tell me how exercise helps–what kind, how much works for you? Thanks!
          • September 14, 2021 at 12:51 am
          lkb
          Participant
            Love this thread! Thanks for initiating (sing123) and thanks for posting, five-year NEDers.

             

            • February 1, 2021 at 11:38 pm
            lkb
            Participant
              Congratulations, Jenn, O fellow San Franciscan! I’m glad to know you’re still NED and also vaccinated. Like Judi, I welcome NED sightings–very encouraging. Had my 3-month scans today and am in that delightful overnight period of waiting for results. Not thinking about it. Not at all. Nope, not me. What scans? Sigh. Sending all best wishes.
              • January 27, 2021 at 10:53 pm
              lkb
              Participant
                Thank you, Tex, for letting us know. Thank you, Mike, for keeping us close. Thank you, Wife of Mike, for giving us the opportunity to rally around him; it was good medicine for all.

                 

                • January 12, 2021 at 8:48 pm
                lkb
                Participant
                  Stopped Pembro last June, had surgery in August 2020 and have been NED for three months. My oncology team recommends getting the vaccine.
                  • August 8, 2020 at 3:01 am
                  lkb
                  Participant
                    Stunning. Thanks so much for posting. And cheers to Bubbles.
                    • July 25, 2020 at 3:37 am
                    lkb
                    Participant
                      I had gamma knife for a brain met. I think my fatigue afterward might have been from the Ativan. No other side effects to my knowledge. Every patient is different, of course. For example, the medication that made Judi “crazy” brought me significant relief. Good wishes to you and your dad.
                      • July 25, 2020 at 3:29 am
                      lkb
                      Participant
                        Hooray. Judi! Rock it.
                        • July 17, 2020 at 2:33 am
                        lkb
                        Participant
                          Wow, congrats on the great trip! Lovely photos–particular 6397. Wishing you all the best with Chemo. And, of course, a belated welcome back.
                          • July 7, 2020 at 12:49 am
                          lkb
                          Participant
                            Yeah Yeah Yeah Yeah (sung a la Stevie Wonder as an arpeggio)! Congratulations and thank you for posting!
                            • July 1, 2020 at 3:52 am
                            lkb
                            Participant
                              Wishing you the happy heals!!!
                              • October 1, 2024 at 11:09 pm
                              lkb
                              Participant
                                Thank you, JudiAU. I’m hoping that if I have the craniotomy, the radiation will be a simple follow-up. The surgeon said the radiation coming from the outside was less risky than implanting “seeds” during the surgery.Yes, they do have a menacing sound to them, though I initially liked the idea of avoiding one more separate procedure.
                                • April 12, 2022 at 10:36 pm
                                lkb
                                Participant
                                  Thank you, Ed!
                                  • July 26, 2020 at 5:11 am
                                  lkb
                                  Participant
                                    Oh no! That sounds miserable. I don’t know what my own dosage was, but it was just one time post-surgery. I can see that your situation must have been more than difficult.
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