jenny22

Hey Celeste-

Am just reading this now, but wanted to say CONGRATS….so happy that nasty treatment is behind you.

And more importantly that it did what it was supposed to do and your good health will continue!

all my best,

jenny

Now that's a sign I'd put in front of my house any day!

Hi Celeste-

So sorry you had to navigate another course, with so little data….though I too feel like it is the right move to proceed with the chemo.

Keeping my fingers crossed for minimal  side efffects….and maximum benefit.

Please keep us posted.  All good thoughts coming your way!

best,

jenny

Gray news Julie……Congratulations and enjoy,

jenny

OMG Celeste…..I haven't been on here for a while and just read your recent news…..What a kick in the teeth!!!!!  I am so sorry to hear what you've been through….

Of course, as everyone else has said, your dedication to this group has been amazing and such an immeasurable source of support.

We will all be thinking of you and sending you the best, and most positive vibes out there…

I hate that you have to go through this at all, much less AGAIN, but i look forward to you getting to the other side!!!!!

All my best,

Jenny

Hi Julie-  SO THRILLED to see you have some good news to report in the MEL world.

Hope the knee conintues to feel better, but great to see the Unremarkable brain update!

All the best,

jenny

That is really fabulous news…..i love to read posts like this!

Congrats…..

Jenn- That is great news…..congratulations and HAPPY BIRTHDAY!  Enjoy.

Best,

jenny

Hi Jenn- echoing what most others have arleady said…..CT every 6 months of neck, chest, ab and pelvis…brain MRI alternating iwth brain CT every 6 monhts….NO pet has been done since intial diagnosis in 2013…..Treating ONC is Pavlick at NYU…..

Hope this helps,

jenny

Greats news Paul…congratulations……good time to celebrate!

happy and healthy New Year!

jenny

OMG JULIE,  so happy for …..that is great news…..Congratulations.

Cant wait to see your next post….RADIATION, CHECK!

again, many congrats,

jenny

I just had some experience with this same subject, though not for me, but for my Mom……in June she had a biopsy done for something on her neck…it came back as Melanoma…not in situ…..but very small…The reccommendation from her Derm was to have MOHS…I was very suspect, as i know the usual protocol was WLE with 1 cm margins…..after much research, and even a consult with my own Melanoma ONC, who is melanoma sepcailaist (anna pavlick at NYU) we proceeded with the MOHS….after confiring that though it would be MOHS they would still take the necessary margins.

Apparently only certain facliities have the staining necessary to do MOHS for melanoma…she had hers done at Univ of Penn where they have have done lots of studies and now beleive for certain Melanoma MOHS with the right staining has had great  results and fewer local recurrences.

Not sure where you are located, but you may be fine with MOHs, esp for in situ!!!!!

Best of luck,

jenny

Celeste- I havent been on the boards quite as much lately, but was SO happy to see your post….

Great news…with mnay thanks for everything you do here for so many!.

Wishing you a long life of continued good health!

jenny

Hi Jenn- Glad to hear most things are stable for you and nothing new….i'm sure there are no wrong answers to your question, but i think i would be leaning to surgery….get it out….followed by radiation, (i did it)…..and may be some "clean up" nivo for a few cycles ….

Lots of data on synergistic affects of radiation when combined with immnunotherapy(which i know you already know)

Let us know what you decide….

GOOD LUCK,

jenny