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Scan Results!

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  • Post
    • October 17, 2017 at 9:46 pm
    Julie in SoCal
    Participant

      Good Afternoon, Friends!

      I have good news to share!  I am officially a NERD again!  That is I had scans last week and I have No Evidence of Recurring Disease!  How about them apples!?! 

      So do the happy dance with me!

      I am now 2/3rds of the way through the Lung Cancer Triathlon.  Surgery- check, Chemo- check!  The radiation phase is next and I think I start up this coming Friday.  I've never done radiation, so this will be a new experience for me.  I think I'm going to tell myself it's just like going on a ride at Disneyland!!

      Mel seems to be in check, or at least I haven't found any new intransits.  So it's all good!

      So looking forward to being done!  But, I'll stop complaining. it is working and for that I'm grateful!

      Thank you friends!

      Shalom!

      Julie

    Viewing 18 reply threads
    • Replies
        • October 17, 2017 at 10:29 pm
        J.bun
        Participant

          Congratulation! That is excellent news smiley

          • October 18, 2017 at 12:05 am
          Bubbles
          Participant

            You rock, Julie!!!  I am so happy for you!  Hang in there.  You are one tough cookie!!!  love, c

            • October 18, 2017 at 12:21 am
            Casitas1
            Participant
              Way to go Julie! Great news! Stoked to hear. Can’t give any advice as far as radiation goes. I did have a consult with Rock Stars pick (can’t remember name) and was impressed. Keep up the fight and forever Nerd. Best, Paul
              • October 18, 2017 at 12:39 am
              TexMelanomex
              Participant

                Awesome Julie!!! Great news, keep kicking butt!!

                • October 18, 2017 at 1:48 am
                CancerSpouse
                Participant

                  Such great news! Happy to hear!! 

                    • October 18, 2017 at 2:06 am
                    Manfred
                    Participant

                      Congratulation Julie, and you will handle the radiation like you did the rest of your treatments.Julie I have a question for you regarding the joint pains on Keytruda. For how long after your Keytruda treatment did you have to struggle with the pain? 

                      Thanks,  Manfred

                       

                      • October 18, 2017 at 4:38 pm
                      Julie in SoCal
                      Participant

                        Thanks Manfred!

                        I still struggle with joint pain. I think it's been a little over a year now.  It's not as bad as it was in the beginning.  Now I think it's basically turned into arthritis in that everything that was broken before Keytruda may flare up.  

                        In the beginning, prednisone made a world of difference.  My joints were so stiff I couldn't move.  High dose prednisone got me mobile again.

                        This probably isn't the answer you're looking for. But as I understand it, these autoimmune related side effects eventually will burn themselves out.  Though I could be wrong.  So sorry you're dealing with this, too!

                        Hope this helps,

                        Shalom,

                        Julie

                        • October 20, 2017 at 7:06 am
                        Jubes
                        Participant

                          Thanks for sharing Julie. So pleased for you!! I still have joint pains as well. It’s 2 years since I stopped treatment and I tried prednisone, inflixinab and lots of lesser immunosuppressants. But it only bothers me when it’s in my arms as then I can’t work very well. Anne-Louise 

                        • October 18, 2017 at 3:22 am
                        jennunicorn
                        Participant

                          Yay! Thanks for sharing the great news and wishing you well for the upcoming radiation 🙂

                          • October 18, 2017 at 1:45 pm
                          geriakt
                          Participant

                            Excellent good news Julie,

                            It sure seems you have been through a lot with all your teatments with ups and downs. You have a strong will and it is helpful for others to see and hear this so the continue to fight. 

                            Tom 

                            • October 18, 2017 at 2:36 pm
                            SDFun
                            Participant

                              Great news Julie

                               

                              Nancy

                              • October 18, 2017 at 2:45 pm
                              Nicklindner
                              Participant

                                So happy for you.  Such great news!

                                • October 18, 2017 at 3:38 pm
                                sister of patient
                                Participant

                                  I've followed your recent journey too Julie and am so happy for you – way to kick butt!!! Best wishes always!!

                                  Barb

                                  • October 18, 2017 at 6:42 pm
                                  Patrisa
                                  Participant

                                    Dear Julie, you are such an inspiring person! Great news! I hope when radiation is over you will be done with it!

                                    Take care!

                                    Patrisa

                                    • October 18, 2017 at 9:15 pm
                                    SABKLYN
                                    Participant

                                      Dems nice apples indeed!  Congratulations Julie !  

                                      • October 19, 2017 at 12:10 am
                                      Mark_DC
                                      Participant

                                        well done Julie, have always been impressed by your energy and courage, as others mentioned a great example to all of us, very happy for your good news!

                                        • October 19, 2017 at 12:58 am
                                        jbronicki
                                        Participant
                                          I felt really good as soon as I saw the exclamation point in the title! So happy for you Julie, you are a true Ray of joy in this world. We need you in this world!
                                          • October 19, 2017 at 1:23 am
                                          betsyl
                                          Participant

                                            Woo hoo!!! Awesome.

                                            • October 19, 2017 at 4:09 am
                                            Marksa2570
                                            Participant

                                              Congrats to you!   You are such a kind supporter of so many of the people on here – I am truly glad for you.       Wishing you the best.      

                                              • October 19, 2017 at 3:15 pm
                                              Mat
                                              Participant

                                                Awesome!

                                                • October 21, 2017 at 1:54 pm
                                                jenny22
                                                Participant

                                                  OMG JULIE,  so happy for …..that is great news…..Congratulations.

                                                  Cant wait to see your next post….RADIATION, CHECK!

                                                  again, many congrats,

                                                  jenny

                                                   

                                                  • October 22, 2017 at 8:17 pm
                                                  Scooby123
                                                  Participant

                                                    So pleased for you Julie that is fab news Hun. Now kick the lung cancer , happy dancing .

                                                    scooby❤️

                                                Viewing 18 reply threads
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