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start WBR on Mon
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start WBR on Mon

› Forums › General Melanoma Community › start WBR on Mon

  • This topic has 48 replies, 27 voices, and was last updated 13 years ago by PSD.
  • Post
    • August 21, 2010 at 8:18 pm
    amybusby
    Participant

      So far so good with the Temodar.  I've been on it for 2 or 3 days and so far no side effects.  I take it right before bed on an empty stomach (zofran as pre-med about half hour before!).

      I've already done the simulation and stuff, so I am ready to start WBR on Mon. I'll do a 10 day course and then an MRI.

      So far so good with the Temodar.  I've been on it for 2 or 3 days and so far no side effects.  I take it right before bed on an empty stomach (zofran as pre-med about half hour before!).

      I've already done the simulation and stuff, so I am ready to start WBR on Mon. I'll do a 10 day course and then an MRI.

      I've been around for a long time – fighting this for seven years.  I've seen so many of my friends and up in this position.  I'm not blind to the reality of what this means.  But I am also in pretty good spirits, knowing things could always be worse.  And knowing how many prayers, positive thoughts, and love are being sent out on my behalf – hard to feel sorry for yourself about anything when that's the case!

      I'm so terribly worried about my friends Jerry and Knute.

      Thanks for all the financial aid info on the Temador.  Luckily my insurance will be paying part of it, so it won't be as bad as I thought to get it.  See – lots to be thankful for!

      I hate the idea that I may suffer some confusion & cognitive problems.  That's why I've always worried about having to do WBR/  As you all know I'm extremely proud of my razor sharp wit & intellect! *wink*  So here's hoping that's not too bad and my pretty little bald head doesn't get too burned!

      Love,

      Amy

    Viewing 43 reply threads
    • Replies
        • August 21, 2010 at 10:07 pm
        MaryBZ
        Participant

          Hi Amy,

          I have only been a part of this melanoma community since 2009 and you have been an inspiration to me.  I will offer up many prayers for you as you begin this next phase of your journey.  I will pray for continued strength and mental alertness.

           

          Lots of love, postive energy, and prayers coming your way.

           

          Mary

          • August 21, 2010 at 10:36 pm
          Fen
          Participant

             

            You are right on all counts, Amy – especially the prayers, positive thoughts, and love parts. Gotta bunch heading your way right now.

            Keep us posted when you can.

            Fen

            • August 21, 2010 at 11:26 pm
            Janner
            Participant

              Hoping everything goes "easy peasy" for you Amy!!!!

              Hugs,

              Janner

              • August 22, 2010 at 1:13 am
              James from Sydney
              Participant

                Hi Amy

                i met a guy at a Support Meeting a few months ago and thought i'd let you know his story. He underwent surgery many times over a 2 year period, Lung resection, lymph node dissection  subq's removed and Brain Met removed and followed by WBR, at the meeting he told us that he had no cognitive loss and to me appeared normal, so there is always hope, by the way the good bit is his WBR was completed in 1994!

                 

                best wishes

                James

                • August 22, 2010 at 11:24 am
                triciad
                Participant

                  Amy,

                  Keep the fight going!  God speed for a full recovery!  You're in my prayers.

                  Tricia

                  • August 22, 2010 at 12:24 pm
                  Lori C
                  Participant

                    You will be in my prayers, Amy.  May the treatment be a huge success and none of the bad side effects.  There is a lot to be thankful for indeed. 

                    • August 22, 2010 at 5:01 pm
                    JenM
                    Participant
                      Amy,
                      Praying for u. I also wanted to mention about a patient my neuro onc told me about: he currently has a patient on Temodar for 5 years. Everytime they have tried to stop the Temodar brain mets pop up. The neuro onc adds back in the Temodar and they disappear! It’s just like a light switch.

                      Praying for u and that the treatment works.

                      • August 22, 2010 at 5:28 pm
                      Sherron
                      Participant

                        Okay Amy – I know you are dreading this, but you so brave and such a warrior….we all know you can do this.  I will praying and thinking of you and sending cyber Hugs.

                         

                        Take Care,

                        Sherron, wife to Jim

                        • August 22, 2010 at 6:06 pm
                        Jerry from Cape Cod
                        Participant

                          Amy,

                          Great big Hugs and lots of prayers

                          Jerry from Cape Cod

                          • August 22, 2010 at 6:06 pm
                          Jerry from Cape Cod
                          Participant

                            Amy,

                            Great big Hugs and lots of prayers

                            Jerry from Cape Cod

                            • August 22, 2010 at 10:16 pm
                            Donna
                            Participant

                              You continue to be in my thoughts … hang in there. I know it is not fun … but go kick some mel a**!!!

                              • August 22, 2010 at 10:16 pm
                              Donna
                              Participant

                                You continue to be in my thoughts … hang in there. I know it is not fun … but go kick some mel a**!!!

                                • August 22, 2010 at 11:31 pm
                                King
                                Participant

                                  You continue to amaze me with your strength.  You are such an inspiration to melanoma warriors, their friends and their family members.  Know that you'll continue to be in my thoughts and prayers.

                                  Stay Strong
                                  King

                                  Stage IV 7/05 LIver mets

                                  • August 22, 2010 at 11:31 pm
                                  King
                                  Participant

                                    You continue to amaze me with your strength.  You are such an inspiration to melanoma warriors, their friends and their family members.  Know that you'll continue to be in my thoughts and prayers.

                                    Stay Strong
                                    King

                                    Stage IV 7/05 LIver mets

                                    • August 23, 2010 at 1:44 am
                                    Jackie W
                                    Participant

                                      Sending positive vibes for a successful treatment.  You can do it.

                                       

                                      Hugs,

                                       

                                      Jackie W

                                      • August 23, 2010 at 1:44 am
                                      Jackie W
                                      Participant

                                        Sending positive vibes for a successful treatment.  You can do it.

                                         

                                        Hugs,

                                         

                                        Jackie W

                                        • August 23, 2010 at 4:32 pm
                                        Sharyn
                                        Participant

                                          Hi Amy,

                                          You are truly heroic! I had WBR last Nov, and I didn't experience any cognitive problems or confusion at all. So I hope you won't either. Having WBR is a walk in the park compared to some other treatments. It's totally painless, like getting an x-ray. I lost my hair, so if your hair is already gone, that may make a difference. Hang in there, and best of luck to you. Lots of positive energy being sent your way.

                                          Hugs

                                          Sharyn

                                          Stage IV

                                          • August 23, 2010 at 4:32 pm
                                          Sharyn
                                          Participant

                                            Hi Amy,

                                            You are truly heroic! I had WBR last Nov, and I didn't experience any cognitive problems or confusion at all. So I hope you won't either. Having WBR is a walk in the park compared to some other treatments. It's totally painless, like getting an x-ray. I lost my hair, so if your hair is already gone, that may make a difference. Hang in there, and best of luck to you. Lots of positive energy being sent your way.

                                            Hugs

                                            Sharyn

                                            Stage IV

                                            • August 23, 2010 at 8:23 pm
                                            molly
                                            Participant

                                              Amy, thinking about you today and lifting you up real high in prayers. 

                                              molly

                                              • August 23, 2010 at 8:23 pm
                                              molly
                                              Participant

                                                Amy, thinking about you today and lifting you up real high in prayers. 

                                                molly

                                                • August 23, 2010 at 8:37 pm
                                                joy_
                                                Participant

                                                  Praying for you now, Amy.

                                                  • August 23, 2010 at 8:37 pm
                                                  joy_
                                                  Participant

                                                    Praying for you now, Amy.

                                                    • August 26, 2010 at 6:03 am
                                                    Father is stage IV
                                                    Participant

                                                      Dear Amy,

                                                      I'm sending good thoughts your way!  I hope there aren't any side effects with WBR also!

                                                      Krista

                                                      • August 26, 2010 at 6:03 am
                                                      Father is stage IV
                                                      Participant

                                                        Dear Amy,

                                                        I'm sending good thoughts your way!  I hope there aren't any side effects with WBR also!

                                                        Krista

                                                        • August 26, 2010 at 2:16 pm
                                                        jag
                                                        Participant

                                                          Amy, I am so impressed by your attitude, you make me look like a little sissy man by comparison,  will pray  that you don't experience the cognitive deficits.

                                                          • August 26, 2010 at 2:16 pm
                                                          jag
                                                          Participant

                                                            Amy, I am so impressed by your attitude, you make me look like a little sissy man by comparison,  will pray  that you don't experience the cognitive deficits.

                                                            • August 27, 2010 at 12:38 am
                                                            Rocklove
                                                            Participant

                                                              We are praying for You Amy.

                                                              Rocky (Stage IV Liver Mets)

                                                              • August 27, 2010 at 12:38 am
                                                              Rocklove
                                                              Participant

                                                                We are praying for You Amy.

                                                                Rocky (Stage IV Liver Mets)

                                                                • August 27, 2010 at 1:55 am
                                                                JuleFL
                                                                Participant

                                                                  Keeping the prayers coming your way, Amy.  Take care of that head!!

                                                                  • August 27, 2010 at 1:55 am
                                                                  JuleFL
                                                                  Participant

                                                                    Keeping the prayers coming your way, Amy.  Take care of that head!!

                                                                    • August 27, 2010 at 2:33 am
                                                                    Knutes Pam
                                                                    Participant

                                                                      Knute is doing better, he has been moved to rehab at the hospital. I feel he is a miracle from God for me. Tuesday night He was so tired and dizzy– not eating : but Wednesday It was like he woke up ! He was finishing lunch when I came after my work shift.   ONe of the first things he asked me was about Jerry's condition!  I haven't told him about WBR for you, but I will tomorrow!  He will continue to pray for you as will I.  You are beloved by many Miss Amy and I'm praying for all the comfort you have sent will be returned tenfold to you as you face this next challenge in your life.

                                                                      Knute is the better writer and communicator, but I hope you can sense our love coming through this short missive.

                                                                      Pam

                                                                      • August 27, 2010 at 2:33 am
                                                                      Knutes Pam
                                                                      Participant

                                                                        Knute is doing better, he has been moved to rehab at the hospital. I feel he is a miracle from God for me. Tuesday night He was so tired and dizzy– not eating : but Wednesday It was like he woke up ! He was finishing lunch when I came after my work shift.   ONe of the first things he asked me was about Jerry's condition!  I haven't told him about WBR for you, but I will tomorrow!  He will continue to pray for you as will I.  You are beloved by many Miss Amy and I'm praying for all the comfort you have sent will be returned tenfold to you as you face this next challenge in your life.

                                                                        Knute is the better writer and communicator, but I hope you can sense our love coming through this short missive.

                                                                        Pam

                                                                        • August 27, 2010 at 3:51 am
                                                                        ValinMtl
                                                                        Participant

                                                                          Dear Amy,

                                                                          You are going to do this, Amy…and come out stronger for it!!  Val xxx

                                                                          • August 27, 2010 at 3:51 am
                                                                          ValinMtl
                                                                          Participant

                                                                            Dear Amy,

                                                                            You are going to do this, Amy…and come out stronger for it!!  Val xxx

                                                                            • April 23, 2011 at 12:14 am
                                                                            debbieVA
                                                                            Participant

                                                                              Dear Amy….

                                                                               

                                                                              You are my She-ro~!  Truly an inspiration….Keep fighting the fight with grace and courage.  

                                                                               

                                                                              Love….

                                                                               

                                                                              Debbie Stage 4 NED

                                                                              • April 23, 2011 at 12:14 am
                                                                              debbieVA
                                                                              Participant

                                                                                Dear Amy….

                                                                                 

                                                                                You are my She-ro~!  Truly an inspiration….Keep fighting the fight with grace and courage.  

                                                                                 

                                                                                Love….

                                                                                 

                                                                                Debbie Stage 4 NED

                                                                                • April 23, 2011 at 2:05 am
                                                                                Carol Taylor
                                                                                Participant

                                                                                  Lord, in Your mercy see Amy through this. Let blessings arise, protect her wit and intellect and enable her to share those attributes with others. And God, we pray she keeps her clarity. Hold her, grant her Your grace and peace about this, and thank You for using her as a source of hope and inspiration. Much mercy for Amy. Amen.

                                                                                  • April 23, 2011 at 2:05 am
                                                                                  Carol Taylor
                                                                                  Participant

                                                                                    Lord, in Your mercy see Amy through this. Let blessings arise, protect her wit and intellect and enable her to share those attributes with others. And God, we pray she keeps her clarity. Hold her, grant her Your grace and peace about this, and thank You for using her as a source of hope and inspiration. Much mercy for Amy. Amen.

                                                                                    • April 23, 2011 at 10:03 pm
                                                                                    NancyGM
                                                                                    Participant

                                                                                      Amy, I wish you the best of luck with your Temodar treatment and the WBR. I did 10 rounds of Temodar ( for lung met) with very minor side effects in 2007 and had a full, durable response. Sending lots of support your way!

                                                                                      • April 23, 2011 at 10:03 pm
                                                                                      NancyGM
                                                                                      Participant

                                                                                        Amy, I wish you the best of luck with your Temodar treatment and the WBR. I did 10 rounds of Temodar ( for lung met) with very minor side effects in 2007 and had a full, durable response. Sending lots of support your way!

                                                                                        • April 23, 2011 at 10:45 pm
                                                                                        TAC
                                                                                        Participant

                                                                                          Amy, your grace in the face of such formidable odds is inspiring. May God grant you His healing power and eradicate the mets while preserving your essence, you. We have all witnessed miracles and I pray for one for you. You have demonstrated for us all how to deal with adversity and yet not succumb to bitterness. Lots of folks here lifting your name to the Almighty…..He is listening and will bring you peace.

                                                                                          • April 23, 2011 at 10:45 pm
                                                                                          TAC
                                                                                          Participant

                                                                                            Amy, your grace in the face of such formidable odds is inspiring. May God grant you His healing power and eradicate the mets while preserving your essence, you. We have all witnessed miracles and I pray for one for you. You have demonstrated for us all how to deal with adversity and yet not succumb to bitterness. Lots of folks here lifting your name to the Almighty…..He is listening and will bring you peace.

                                                                                            • April 23, 2011 at 11:10 pm
                                                                                            PSD
                                                                                            Participant

                                                                                              Amy,

                                                                                              Best thoughts and wishes for you and your family! I will give an extra prayer for all of you Monday!

                                                                                              Pam – PSD

                                                                                              • April 23, 2011 at 11:10 pm
                                                                                              PSD
                                                                                              Participant

                                                                                                Amy,

                                                                                                Best thoughts and wishes for you and your family! I will give an extra prayer for all of you Monday!

                                                                                                Pam – PSD

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