MRF-Logo2019-Horizontal-RGB
Pet scan results clear!!
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Pet scan results clear!!

› Forums › General Melanoma Community › Pet scan results clear!!

  • Post
    • April 5, 2017 at 10:22 pm
    Jubes
    Participant

      Hi all

      after my lung resection in November (lower lobe) I had a pet in January that was clear. My oncologist has organized 3 monthly pets for this year and if I make it clear to 2018 we will move to 6 monthly. Well the good news is that this weeks pet was clear so 5 months after the op I'm still NED. However severe joint inflammation still evident on the pet. I have been on sulfazalasine for a few weeks and waiting for it to kick in and managing to keep working so I am over the moon happy. Hoping for positive results for all of you wonderful supportive people who I rely on so much for help and information

      Anne-Louise 

    Viewing 20 reply threads
    • Replies
        • April 5, 2017 at 11:01 pm
        Bubbles
        Participant

          Awesome Sauce!!!!!!!  So happy for your continued NED status!!!  That is wonderful!  Sorry the joint issues and pain continue.  I hope relief comes soon!  love, c

            • April 7, 2017 at 12:45 am
            Jubes
            Participant

              heart

            • April 6, 2017 at 12:04 am
            Julie in SoCal
            Participant

              Woohoooo!  Happy dancing here in SoCal! Ok, honestly it's more like waving my arms in the air for joy as my knees and back don't dance anymore… but know there's a celebration happening here!

              Shalom,

              Julie

                • April 7, 2017 at 12:45 am
                Jubes
                Participant

                  heart

                • April 6, 2017 at 12:29 am
                SABKLYN
                Participant

                  Yay Jubes!!

                   

                  • April 6, 2017 at 12:54 am
                  Mark_DC
                  Participant

                    Well done Jubes, great news!

                    • April 6, 2017 at 1:11 am
                    BrianP
                    Participant

                      Fantastic Anne-Louise!  I like the sound of 6 month scans.

                      • April 6, 2017 at 1:36 am
                      jennunicorn
                      Participant

                        Awesome news!

                          • April 6, 2017 at 3:58 am
                          TexMelanomex
                          Participant

                            YES! YES! YES! Awesome and congratulations!!!

                          • April 6, 2017 at 6:39 am
                          Cindyco
                          Participant

                            Great news! So happy for you!

                            • April 6, 2017 at 9:53 am
                            raun cesar
                            Participant

                              That is wonderful…Good Luck for the future

                              • April 6, 2017 at 3:46 pm
                              iskitwo
                              Participant

                                Great new!! Always nice to hear about good scan results!! 

                                • April 6, 2017 at 4:29 pm
                                Mat
                                Participant

                                  Anne-Louise, great news!  And please let us know how you make out on the sulfzalasine.  I started methatrexate 2 weeks ago.  So far, no significant benefit–but still too early to expect a benefit.  Also finding that the Kenalog shots don't last very long–back to walking quite slowly.

                                  • April 6, 2017 at 5:14 pm
                                  Jahendry12
                                  Participant

                                    Thanks for sharing.  Love hearing good news.  Awesome – so happy for you!!!!!!!

                                      • April 6, 2017 at 8:31 pm
                                      jbronicki
                                      Participant

                                        There is really nothing better than hearing news like that! Congrats!

                                      • April 6, 2017 at 11:00 pm
                                      cancersnewnormal
                                      Participant

                                        That's great news! Well… mostly great news  : )  Now to kick that inflammation to the curb… grrrrrrr. 

                                        • April 7, 2017 at 12:14 am
                                        Casitas1
                                        Participant
                                          That’s Great News! Happy limping with you as well.Best, Paul
                                          • April 7, 2017 at 12:47 am
                                          Jubes
                                          Participant

                                            I wanted to thank you all individually with a heart but I got confused where I was up to so thanks everyone heart

                                            • April 7, 2017 at 11:26 am
                                            maperny
                                            Participant

                                              Wonderful!  Fantastic! Excellent!  

                                              Maria

                                              • April 7, 2017 at 2:42 pm
                                              jenny22
                                              Participant

                                                Congrats on such great news…………………..celebrate and lets hope for same for all your upcoming PETS.

                                                • April 7, 2017 at 6:37 pm
                                                snow white
                                                Participant

                                                  Yahooooooooo! Congrats!

                                                  • April 8, 2017 at 8:57 pm
                                                  Scooby123
                                                  Participant

                                                    Hi Jubes I keep trying to reply but problem. So if this goes then we'll done Hun keep up the good work enjoy .

                                                    scooby 

                                                    • April 8, 2017 at 9:51 pm
                                                    rabbits68
                                                    Participant

                                                      Rejoicing with you in your good news and praying for continued healing for you!

                                                      • April 10, 2017 at 8:57 pm
                                                      MikeW
                                                      Participant

                                                        Fantastic news!!

                                                        • April 14, 2017 at 9:01 pm
                                                        debwray
                                                        Participant

                                                          Geat news.. We all need to hear success stories. DElighted for you nd your family.

                                                          Deb

                                                      Viewing 20 reply threads
                                                      • You must be logged in to reply to this topic.
                                                      About the MRF Patient Forum

                                                      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                      The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                      Popular Topics