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YoJa

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      YoJa
      Participant
        This is wonderful news! I am so happy for you.
        YoJa
        Participant
          I wouldn’t worry about the lung module. My doc told me most people have lung nodules that aren’t related to cancer, like 80% of people. Your report doesn’t sound like it has suspicious features.

          Try not to worry, but I know that is very hard at this stage!!! I get it. It will get easier, trust me. Also know stage 3A has pretty good outcomes, better than most stage 2.

          YoJa
          Participant
            I highly recommend getting anything checked out that concerns. Best case you will ease your anxiety.
            Many of us are on this forum because we waited to too long to get a spot checked out.

            Myoja

            YoJa
            Participant
              Hi,

              I am in the middle of treatment now for stage 2C. I have had no side effects. But I underestimated what a time commitment this is. I go every 6 weeks now (3 week interval for a first 2-3 months), and those appointments are not short. Nevertheless, I’m glad I’m doing it.

              I would have done it if I was stage 2 B. For me, the anxiety of recurrence has only increased with time so I’m glad I’m doing what I can now.

              Another thing to consider, which both my oncologist and Celeste had mentioned, is if you do get side effects, you can stop treatment while still getting a benefit. It’s unknown exactly how much treatment each person needs.

              Good luck with your decision. The odds are in your favor at stage 2B.

              Best,
              M

              YoJa
              Participant
                Amazing news! Thanks for sharing. Enjoy!
                YoJa
                Participant
                  I agree with Celeste. This is a really crazy place to find some much spam.
                  YoJa
                  Participant
                    Hi there,

                    I’m not sure about this but I can tell you my experience. I also had SLNB in my groin. My stitches are “thick” and somewhat bumpy but it’s all within the skin and scar. I would imagine that a lymph node bump would feel like a bump underneath the skin. I assume the difference between stitch bumps and a cancerous lymph node would be very distinct.

                    Anyway, as you know surgical oncologist specialize in removing cancer, not necessarily identifying it or looking for signs of it coming back. So I would get a second opinion from a medical oncologist. Your GP thought it was worth getting a second opinion.

                    It is smart that you are taken action now to get this figured out. It could be nothing and you can put your mind to rest. Or it could be something and you will have jumped on it as early as possible.

                    I would do whatever to takes to put your mind to rest so you can move on with your life.

                    M

                    YoJa
                    Participant
                      This is amazing news! Always great to read these kinds of updates.

                      Enjoy!

                      YoJa
                      Participant
                        First of all, congrats! This is obviously wonderful news.

                        Second, at what point did you start to feel even slightly less anxious? I’m almost 6 months out and everyday I struggle to not think about my own mortality and recurrence. So far my scans have been clean but that was only a recent CT scan. Seems like a PET scan is better at detecting.

                        I’m on pembro now but those odds aren’t great either. The only way I’ll know if it is working, is if it doesn’t.

                        Anyway, when do you start to feel any less ridden with anxiety? I feel like I’m jinxing myself even asking this.

                        M

                        YoJa
                        Participant
                          Thank for your response and congrats on NED. 6 years is solid!

                          I have a question: did they have any clue about how much they cut through? Like, did they give you a measurement in the WLE path report? Just curious.

                          M

                          YoJa
                          Participant
                            Wow! I certainly hope that is true. Thank you for sharing that.

                            What about joint paint? And other side effects eta? How much longer from when you stopped treatment did side effects go away? Other than the ones that are permanent.

                            YoJa
                            Participant
                              Praying that the TIL does the trick!
                              YoJa
                              Participant
                                15 years NED for stage 3 is very encouraging to hear! Stage A,B or C if you don’t mind me asking?
                                YoJa
                                Participant
                                  Hi,

                                  I’m sorry you are going through this. I am in a similar boat as I diagnosed when my son was 5 weeks old. It was a thick melanoma which is not good, but it hasn’t shown any signs of spread so far so that’s good.

                                  It is VERY good that you caught yours now since it seems that pregnancy delays diagnosis resulting in unfavorable outcomes. But you caught yours and you didn’t wait. That is a good thing. Maybe pregnancy stimulated the growth of the melanoma (I am certain mine did) and it was only growing for a short period.

                                  Its hard to say anything without info from your path report or staging, but one thing I know for sure is that you can safely do a wide local excision (removing a margin around the biopsy) while pregnant. And you should do that asap!

                                  I was diagnosed at stage 2C and I decided to get treatment because that is an option for stage 2B/C as of one year ago. Although, none of this has been easy. But I am coming to terms with it. As hard as it is, try to take it one day at a time. Once you get more information then you can think about next steps.

                                  I will be hoping for the best for you!

                                  Martha

                                  YoJa
                                  Participant
                                    Thanks for the reply Joyce. That’s very reassuring. Hitting the five-year mark seems like a big milestone! I also did the castle test and got a “2A” which isn’t great, but you never know with these things.

                                    I decided to do treatment and will start soon. My Onc made is very clear that there is still a risk of treatment failure and recurrence, but I hope it will give me some peace of mind.

                                    My best to you too!

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