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Still Here!

Forums General Melanoma Community Still Here!

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      Hello everyone,

      Originally 2C in 2019 but moved on to 4 in Feb of 2020.
      Well, I had 13 mets in my liver, 3 in my lungs, and one in my brain in February 2020. After 3 doses of the combo, I had high liver numbers 713/565 and went to Cellcept and Prednisone. The doctor looking after me refused to let me go on the single dose of Opdivo because of the liver numbers, so I changed hospitals and started on Opdivo in December 2020. No side effects that I am aware of and, best of all, clear scans.
      Thank you to everyone who is so supportive on this forum.
      Enjoying life.

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          Dear Beany,

          Those are fantastic news. I am very happy for you. Getting a complete response to immunotherapy lasting already approx 3 years is amazing. From what I understand after so many months with clear scans,according to statistics, you have there moved from NED to the “cured” category !!!! Love Christian

            Hello chrispl1974,

            Thank you for your reply. Cured! I thought that was a word that they never used! Althoug I have heard Dr Weber use that word in some Youtube videos.

            Thanks again,

              This is wonderful news! I am so happy for you.
                Congratulations. And brave and wise news to change doctors.
                  Thank you all very much
                    Well done too! Great you found a doctor who would still treat you despite the bad liver numbers
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