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Tilly1402
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Tilly1402

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      • January 29, 2021 at 6:15 pm
      Tilly1402
      Participant
        This is such sad news. Mike had a way to brighten even the darkest moments. May his light live on. RIP Mike and thank you! Xxx
        • January 12, 2020 at 7:34 pm
        Tilly1402
        Participant
          Your strength and humour inspires me!
          I am gutted that the last trial wasn’t a success but over the moon another is lined up.
          Sending positivity, my very best wishes for something that shrinks those blighters and of course some respite from this relentless pounding your body (and mental health) is taking.

          Thinking of you and, like so many, remain by your side.

          Take of Yourself!
          XxX

          • December 7, 2019 at 9:41 pm
          Tilly1402
          Participant
            Lovely to hear from you Mike and completely agree with what everyone has said above. You’re loved and thought of daily and whilst you may not feel well today I do hope you are able to soon. God bless you! X
            • December 6, 2019 at 2:23 pm
            Tilly1402
            Participant
              Yes. Please get in touch Mike. I rarely post or comment, but always look at the posts. You’re amazing and I love reading your updates x
              • February 1, 2019 at 10:47 pm
              Tilly1402
              Participant

                Fantastic news! Love to see positive posts it gives me and I’m sure many others hope, positivity and strength! X

                • December 7, 2019 at 9:48 pm
                Tilly1402
                Participant
                  Thank you LKB for your reply.

                  There is talk of an ultrasound with a possibility of biopsy, but waiting appointment and couldn’t confirm if it would be done before Christmas .

                  So hope it’s nothing will update this thread when I know x

                  • December 7, 2019 at 9:45 pm
                  Tilly1402
                  Participant
                    Thank you so much for your reply and sound advice.

                    But just as importantly you have given hope. 50+ years! I LOVE this. I have 2 small children and had bad news on Christmas Eve last year, so desperately didn’t want this year to be the same. Keeping everything crossed and pray for a clear CT and no disease.

                    Gods bless you x

                    • December 6, 2019 at 9:28 pm
                    Tilly1402
                    Participant
                      As ever you are not only offer the knowledge but much needed sanity and clarity to the situation.

                      You truly are an angel and I am so grateful.

                      Will keep you updated and hope that it’s just inflammation or basically ANYTHING that isn’t Melabloodynoma!

                      Thank you so much again.

                      Xx

                      • January 29, 2019 at 2:52 am
                      Tilly1402
                      Participant

                        Thank you Ed. Think I’m going to go for the adjuvant therapy of Pembro just needed to weigh it up. 🙂

                        • January 28, 2019 at 8:41 pm
                        Tilly1402
                        Participant

                          Thank you Celeste. Apologies for asking twice – I feel I’m going round in circles at the moment, being hit by curve balls. But hopefully once treatment underway the chaos and fear of the unknown will subside. Thank you for your patience x

                          • December 29, 2018 at 12:13 am
                          Tilly1402
                          Participant

                            Thanks C!!!

                            Love the info. Will definitely check in to your blog – fascinating and def something I can dip in and out of too.

                            May need to ask for your opinion when it comes to what the ‘plan’ is, when we have all the info.

                            Ultrasound scheduled for Monday 7th.

                            Until then hope you have a fab New Years and  2019 is NED for us all!

                            X

                            • December 27, 2018 at 12:17 am
                            Tilly1402
                            Participant

                              Thank you so much Celeste.

                              Just the thing I need, some information and perspective.

                              Its quarter past midnight here in the UK and have just got up to settle my 2yo.

                              Having to stop myself reading this as need to get some sleep, but looking forward to tomorrow.

                              Thank you xxx

                              • December 26, 2018 at 9:57 pm
                              Tilly1402
                              Participant

                                Unfortunately a node lit up on the other side. Opposite axilla and lower than before.

                                My consultant said that it may not be melanoma and I would need a ultrasound to check.

                                I now have the excruciating task of wtg again to see if it is melanoma and I guess if it is becoming stage 4.

                                The last couple of days have been horrible. I’ve been in tears and not been able to enjoy Christmas at all. It all seems so bittersweet with my 2yo and 5yo.

                                My consultant was surprised by the fact it was on my opposite side and am just praying that it’s not melanoma.

                                I want to see my children grow up. I want to be there to hold their hands when they need me and this just feels like it could all come crashing down around me.

                                Sorry I’m normally such a positive person but I am getting weary of expecting the best and receiving mediocre and potentially worse news.

                                Any tips on getting through this? I feel totally helpless. Is there any diet or lifestyle choices / changes I could make to help myself?

                                 

                                Always grateful for your support and advice

                                Jess

                                 

                                • December 25, 2018 at 9:06 am
                                Tilly1402
                                Participant

                                  Thank you Jenn for the wonderful gift of hope!

                                  Merry Christmas and here’s hoping for 2019 being NED x

                                  • December 23, 2018 at 12:31 am
                                  Tilly1402
                                  Participant

                                    Wonderful news! Gives hope to me and others I’m sure.

                                    Merry Christmas! X

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