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Two years NED
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Two years NED

› Forums › General Melanoma Community › Two years NED

  • Post
    • February 1, 2019 at 8:55 pm
    Jubes
    Participant

      Hi all

       

      just checking in with you all. Had my three monthly scans and all clear!  We are moving to 4 monthly now. I have been on Humira for joint pain, so we were scanning a bit more often as it suppresses the immune system. 

      Humira since September, and that has worked very well for me. 

      Im back at work and did a month tour of Europe with a concert in a different city almost every night. 

      So please to those of you going through a hard time, sometimes the combinations of treatments and surgeries really keep us going well for a long time. I wish you all wonderful recoveries and will keep on here to follow your stories

      much love

       

      anne-Louise 

    Viewing 11 reply threads
    • Replies
        • February 1, 2019 at 9:54 pm
        Julie in SoCal
        Participant

          WOOHOOOOOOOOOOOO

          Happy dancing here in SoCal with you!

          Julie

          • February 1, 2019 at 10:47 pm
          Tilly1402
          Participant

            Fantastic news! Love to see positive posts it gives me and I’m sure many others hope, positivity and strength! X

            • February 1, 2019 at 11:01 pm
            lkb
            Participant

              Hooray, Anne-Louise! And concertizing–yes! Want to name me a piece from your repertoire, so I can associate it with good NED vibes? Congratulations!

                • February 10, 2019 at 8:08 pm
                Jubes
                Participant

                  Well. The major works we played on tour were Mahler 5 and prokofiev 5. If they’re too long for you just listen to the Mahler 5 slow movement. You will love it!! 

                • February 1, 2019 at 11:15 pm
                Bubbles
                Participant

                  So wonderful to hear this, Anne-Louise!!!!  And I swear….I am going to hear you play that fiddle for realz, one of these days!!!  Enjoy!  Love, c

                    • February 10, 2019 at 8:27 pm
                    Jubes
                    Participant

                      I will try to send you something Celeste. Not that I won’t come and meet you in person at my first opportunity, but just for the meantime I’ll try to post a video of a small performance I did at our golf girls get together. Not sure if it will work. 

                      • February 10, 2019 at 8:47 pm
                      Jubes
                      Participant

                        Any hints on how to upload a video onto here?

                        • February 11, 2019 at 6:56 pm
                        Bubbles
                        Participant

                          You can upload a link…to a video…I don't about a video in and of itself.  We WILL get together one of these days!!!  So glad you are well and making music!!  c

                        • February 1, 2019 at 11:47 pm
                        MarkR
                        Participant

                          Congratulations on your two years NED – great news!!

                          i have just read your bio and your story is a bit similar to mine although I am at the just been surgically respected to NED stage so 2 years behind you, but very much hoping to follow your example

                          Mark

                            • February 10, 2019 at 8:24 pm
                            Jubes
                            Participant

                              I hope you have the same result Mark! In any case we can feel like every bit of our life is a great bonus now! 

                            • February 2, 2019 at 12:30 am
                            Mark_DC
                            Participant

                              Jubes — great news and amazing you are touring and playing in all these concerts!!!

                              Mark

                              • February 2, 2019 at 12:43 am
                              Casitas1
                              Participant
                                Oh Yeah! Wonderful. Best, Paul
                                • February 2, 2019 at 1:06 am
                                SABKLYN
                                Participant

                                  Great news Jubaloo!!

                                  • February 2, 2019 at 2:09 am
                                  jbronicki
                                  Participant

                                    Wonderful post Jubes, I know you have suffered with joint pain greatly.  Just glad your music is able to be shared with the world, the world is lucky 🙂  I'm glad the Humira is working on the pain!

                                    • February 2, 2019 at 4:34 pm
                                    Coragirl
                                    Participant

                                      Wonderful news! Thank you for sharing.

                                      • February 4, 2019 at 10:00 am
                                      obtu.bt
                                      Participant
                                        Perfect news..
                                        • February 4, 2019 at 10:23 pm
                                        Hukill
                                        Participant

                                          So happy for you.

                                      Viewing 11 reply threads
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