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Still NED :)

Forums General Melanoma Community Still NED :)

  • Post
    jennunicorn
    Participant

      Hey everyone! I wanted to report that my recent scans were borrrrrring! Still NED, a full year under my belt now, yay!

      I hope everyone is enjoying their holiday season as much as one can in some situations. I spent 3 holiday seasons dealing with the scary uncertainty of whether or not it could be my last one. Now that I am a full year with NED status, I am feeling like I'll have quite a few more Christmas mornings in my future.

      I say this to bring some hope to anyone who may need it at this time.

      Sending lots of love and hugs to you all!

       

      Merry Christmas!

    Viewing 21 reply threads
    • Replies
        SOLE
        Participant

          Jenn!!!!! So happy for you! And yes INDEED, you will have a lot of decades of Xmas mornings to testify to your journey! I don’t come to the board often but since we were diagnosed a few months apart about 2+ years ago, I am EXTREMELY happy to see you recovered from this impossible scary place! Am a bit over the top these days, forgive me (lol). As for me, after much research and third and fourth opinions and somehow restaged at 2b earlier this year and still NED, I’m doing as best as I can with a lot of lifestyle changes since there is nothing offered for me at this moment because of my stage and because I am in Canada; diet and all the extra non-clinically approved, yet scientifically researched modalities to boost the immune system as much as possible and trying to get all the systems back to balance: hormones, blood markers, inflammation, etc… I will be going to my 2.5 year scan in February and for the first time since the initial diagnosis, I am cautiously more optimistic about the outcome. 

          I am still on the hunt and hungry as hell for new information on the beast as always and I wish you and your loved ones the best Xmas ever!

          Take good care and enjoy! NED now and very soon, when the clinical trials history results will have matured a bit, you will be referred as cured. One day, soon enough, they will use the word because FINALLY, we will have the long term results to prove it!!!

          Lots of Love!

          Marc

            jennunicorn
            Participant

              Thank you for the kind words Marc and I am so glad to hear you're doing well! Sending good vibes for your February scan!

              SOLE
              Participant

                Thanks so much Jenn! 

              GeoTony
              Participant

                Thanks s great news Jenn, keep on going, we're all aiming to join you one day

                SABKLYN
                Participant

                  Terrific news!

                  Tracyyy
                  Participant

                    Great news, Jenn! So happy for you! I hope my mother will be NED too, but currently we are waiting for another set of scans, as her PET/CT in the end of November showed some enlarged lymph nodes in her chest. She had inoperable pelvic nodes which diasppeared and she had no other mets, that's why her onc thinks they might be reactive nodes as side effect from treatment. I follow your posts and as I remember something similar happenned to you. Hope things will turn out well for us too! Enjoy the holidays! Sending lots of hugs

                      jennunicorn
                      Participant

                        Hi Tracy, reactive nodes are so common and yes I had all sorts of them. Seemed like every scan for a while there was a new node lighting up. But, after a while it stopped and now nothing shows up at all. Sending good vibes to your mom!

                      MichelleRHG
                      Participant
                        Hurray for boring! Merry Christmas!
                        Bubbles
                        Participant

                          Wonderful!!!  Merry Christmas, indeed!!!  celeste

                            caman
                            Participant

                              Well done!..Something tells me you'll be enjoying much more than just a "few" Christmas Holidays.  Keep doing the right things and internally motivated.  Meanwhile more melanoma therapy on its way.  Pipeline looks good.  Enjoy your Christmas!

                            Casitas1
                            Participant
                              Yes!!!!
                              lkb
                              Participant

                                Congratulations and Happy Holidays! May your scans remain forever boring!

                                Lisa

                                BillB
                                Participant

                                  Cheers, Happy Holidays!

                                  Julie in SoCal
                                  Participant

                                    Great news, Jen!  Hope you have a wonderful Christmas time with your family.

                                    Julie

                                    WithinMySkin
                                    Participant
                                      Woop woop! That’s amazing news, Jenn – congrats!! Internet hugs and hope you have an extra joyful Christmas!

                                      Lauren

                                      Hukill
                                      Participant

                                        Congrats!!!!!!!!!!!!!!!!!

                                        TexMelanomex
                                        Participant

                                          Awesome news Jenn! I love hearing it! One year is great, do you get less frequent scans now??

                                           

                                            jennunicorn
                                            Participant

                                              Hi Tex! Yep I get them every 6 months now, it was nerve wracking the first 6 month wait but this last one wasn't so bad.. and I think it gets easier as time goes on ๐Ÿ™‚

                                            MelMel
                                            Participant

                                              Fantastic news Jenn and thank you for such a detailed profile post! May your Christmas be Merry and your New Year super healthy and happy!

                                              Melanie 

                                              Coragirl
                                              Participant

                                                So happy to read your good news. I love boring it means everything is ok! Your picture is adorable, what a cute dog. Thank you for sharing hope and happiness. I hope you have a very merry holiday.

                                                kb9718
                                                Participant

                                                  As a new member of this group this is something so great to see! Enjoy your holidays and congratulations this will be one of many many Christmases for you ๐Ÿ™‚ 

                                                  jbronicki
                                                  Participant

                                                    Merry Christmas to you too Jenn!  Nothing better to hear than your update, wishing you a lifetime of NED xmas mornings!

                                                      sing123
                                                      Participant

                                                        Yay! Wonderful news! Thanks for sharing your joy.

                                                      sister of patient
                                                      Participant

                                                        Hi Jenn – Boring is sooooo good!! I'm thrilled to see your news and to know you're looking forward to your Christmas – may it be very merry and extra special!!!

                                                        Lots of big hugs to you (from a great green north ๐Ÿ™‚ !!!

                                                        Barb

                                                         

                                                        localbaby
                                                        Guest
                                                          AMcReader
                                                          Participant

                                                            I was so thrilled to read this news! I hope you have the best holidays celebrating with your dear ones!

                                                            jennunicorn
                                                            Participant

                                                              Thank you everyone for the kind words! (minus that one random spam post with a link to escorts…. but thanks for the laugh I guess)

                                                              Merry Christmas to you all!

                                                                Tilly1402
                                                                Participant

                                                                  Wonderful news! Gives hope to me and others I’m sure.

                                                                  Merry Christmas! X

                                                                Wonderful news!  Happy holidays!

                                                                Good wishes to you,

                                                                Jennifer

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