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RhondaF

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      RhondaF
      Participant
        Many thanks to all who contribute here! There is HOPE always. Glad for good reports. I keep up as I keep up with my husband’s progress. It helps to hear from others. May God bless..
        RhondaF
        Participant
          Here’s a short update on Lee:
          His drain is out now. He’s up going to the bathroom, but still attached to stuff. He’s progressing in the right direction. They don’t have labs back on the fluid. The other blood work is improving in regards to liver enzymes, etc. Working on moving him to another floor. The nurse said he would not be surprised if he might be released tomorrow.
          RhondaF
          Participant
            Anyway, I’ll make a really short post to update on my husband.

            He’s back in the hospital. Fluid buildup again around his heart. He had an Echo on July 8 that showed no fluid.

            He was coughing and had a fever and pain in his right chest. Couldn’t keep any liquids or food down. Took him to ER Saturday evening, they tried to drain the fluid with a needle 2 times and couldn’t. Did surgery Sunday morning to cut a window in the pericardium to drain it. They think he’s septic. He’s on 4 antibiotics.

            They think his gall bladder is infected. They keep treating the symptoms, but not answering why the fluid is building up. His TSH was high so Dr raised his levo on Saturday. His ALT and AST are high. Is there anything else I should look for?

            I’m beside myself what to do. I don’t know how to advocate for him.

            Today the hospital isn’t letting any visitors in that haven’t been vaccinated. I have not been. I discussed with his nurse. He says they have a lot of elderly in the hospital now and had a couple of outbreaks the past few weeks, so decided to implement this for safety. So I can’t see him.

            Any advice is appreciated.

            Peace, Rhonda

            RhondaF
            Participant
              I’m not sure what is going on with this forum, but I just lost my 2nd post on this thread and it was long. I should have saved it, but I didn’t.  I am writing this to see if it will actually post.

              Rhonda

              RhondaF
              Participant
                SJ,

                Sounds great that your scans are clear! You are doing well on the cardiac diet. Do you have a link to the cardiac plan you are following?

                Rhonda

                RhondaF
                Participant
                  This reply has been marked as private.
                  RhondaF
                  Participant
                    Aloha,  It was brought to my attention that you live in Hawaii. My husband & I live on Maui. I’m glad to know you are doing well. Wanted to see if you found a Melanoma specialist in Hawaii. Our Dr isn’t.  I just joined this forum this week as my husband had a severe reaction to the Immunotherapy after 9 months of treatments. They were treating him for an infection and I told the Dr I thought it was from the immunotherapy. Anyway, they got it figured out, but I thought we were going to lose him. Would be nice to connect with you to learn more.

                    Mahalo,

                    Rhonda

                    RhondaF
                    Participant
                      Rosie,  So happy for your report! Have a blessed Christmas!

                      Rhonda

                      RhondaF
                      Participant
                        The doctor should be able to give you something for the nausea.  My husband was dealing with nausea and couldn’t eat. His tsh was off. They changed it. I bought him protein drinks which helped and nutrient dense foods. I also made fruit smoothies with whole milk, yogurt, whey protein, & frozen fruit.

                        Hope this helps.

                        R

                        RhondaF
                        Participant
                          I know they are working on this issue. I wish they could find my post!
                          RhondaF
                          Participant
                            Hi Celeste, Your links are a wealth of information – didn’t read everything, but gained more understanding.

                            My husband is gradually gaining strength and been working out in the mornings and wet go walking after dinner. He is eating very well. My only concern is that he is still losing weight. He’s lost 15 lbs since he came home from the hospital. Amount a lb power day. But eating very well. My thought was maybe he is now hyperthyroid rather than hypothyroid. He had not had any blood tests, but next week we will have blood test for T3, T4, TSH.

                            We also found out we’ll have a 3rd oncologist in less than a year. I’ve contacted or dermatologist to see who she recommends in Hawaii as well as in CA that is a melanoma specialist. I think I’ll try to connect with both of them.

                            He’s still being seen by a cardiologist to make sure fluid isn’t building around his heart – so far none. Just praying he will recover from this crisis and we can find another treatment plan for him.

                            Rhonda

                            RhondaF
                            Participant
                              Thank you so much Celeste! I’ll check out the links and try to see if there is another oncologist on Maui. We are not like on the mainland with numerous specialty doctors. We are lucky if we have 1.

                              Rhonda

                              RhondaF
                              Participant
                                Caman,

                                No, we neither one got the covid shot. We didn’t believe it to be in our best interest.

                                I’m so sorry for the bad reactions you’ve had especially after being free from issues taking the treatments.

                                Praying you’ll get thru this and return to better health.

                                My husband’s Dr wanted him to get the shot, but he said no. They had a strong discussion about it and the Dr left in a huff.

                                Rhonda

                                RhondaF
                                Participant
                                  Thank you Mark! I found his profile and commented on a thread he had. It’s good to see how well he’s doing even though still dealing with the effects.
                                  RhondaF
                                  Participant

                                    The oncologist will stop treatments. We don’t have a melanoma specialist here in Hawaii that I know of. I checked the site for the closest and it looks the mainland would be our closest option.

                                    It has been so scary and not over yet. Whether it’s from the shock my husband was experiencing with low blood pressure and inflammation, he has been periods of confusion. The doctor is a man of few words. When he was giving me updated during the week, all he would say is that it’s serious. I’m like okay, what do you mean? But never got any more out of him.

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