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NancyGM
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NancyGM

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      • October 24, 2022 at 8:49 am
      NancyGM
      Participant
        Carole,
        Big congrats to you on your long term survivorship and positive attitude. I, too am a stage 4 no- evidence- of- disease (NED)melanoma survivor of 14 years. I rarely go on his forum anymore, but I hope those of us who have had full and durable results to treatments can give others hope!I used the chemotherapy pill Temodar( usually only used for brain metastasis)as a treatment for a metastasis in the mediastinum that could not be surgically removed. My Best wishes going out to all.
        • June 30, 2022 at 3:58 pm
        NancyGM
        Participant
          I rarely go on this forum anymore, as I’ve been stage 4 NED for fourteen years. Big congrats to you on your NED-iversary! Know there are many long term stage 4 survivors out there!
          • March 3, 2019 at 12:02 am
          NancyGM
          Participant
            Nicole, 2007-2008, I was treating an inoperable hilar lymph node met. My, then 15 year old daughter was in the same situation . At least, my concern for her took me out of my head about my prognosis. Eleven years later, she is a young adult who has been with the same therapist for 10 years, has her ADHD, depression and anxiety treated and is functioning well…and I’m still here…at the time, I never would have guessed that outcome. Hold on to hope.
            • March 2, 2019 at 2:21 am
            NancyGM
            Participant
              Hi Bill, I did Temodar for a mediastinum met 2007-2008 and have been “no evidence of disease”, (NED) for eleven years. I am now having a supraclivicular node checked out, but even if it’s a recurrence, I can’t believe Temodar bought me 11 years. Best of luck to you in your treatments and have a nice weekend.
              • November 7, 2017 at 4:26 am
              NancyGM
              Participant

                Hi MIke, I am a long term stage IV survivor…just wanted to offer hope. There are so many good immunotherapy treatments out there now since my stage IV progression in 2007. I did a chemo pill called Temodar. My tumor was in my mediastinum and could not be resected. Wishing you the very best of luck.

                • March 3, 2019 at 4:01 pm
                NancyGM
                Participant
                  Thanks for your well wishes and sharing your dad’s story, Jules. It seems crazy how it can come back after so many years NED.
                  • March 2, 2019 at 2:25 am
                  NancyGM
                  Participant
                    Thanks for your reply, Judy. I wish you and your husband the best.
                    • July 15, 2016 at 3:41 am
                    NancyGM
                    Participant

                      Swanee, Thanks so much for your reply and for remembering me…I am on here rarely anymore! Congrats on your six years of still being here. Flax oil is a powerful tool, it seems. I have also been on a vegan diet for 8 years now, which seems to be helping, too…best of luck and continued health to you.

                      • July 15, 2016 at 3:41 am
                      NancyGM
                      Participant

                        Swanee, Thanks so much for your reply and for remembering me…I am on here rarely anymore! Congrats on your six years of still being here. Flax oil is a powerful tool, it seems. I have also been on a vegan diet for 8 years now, which seems to be helping, too…best of luck and continued health to you.

                        • July 15, 2016 at 3:41 am
                        NancyGM
                        Participant

                          Swanee, Thanks so much for your reply and for remembering me…I am on here rarely anymore! Congrats on your six years of still being here. Flax oil is a powerful tool, it seems. I have also been on a vegan diet for 8 years now, which seems to be helping, too…best of luck and continued health to you.

                          • July 15, 2016 at 3:35 am
                          NancyGM
                          Participant

                            I hope your appointment at MD Anderson went well and the very best of luck to you.

                            • July 15, 2016 at 3:35 am
                            NancyGM
                            Participant

                              I hope your appointment at MD Anderson went well and the very best of luck to you.

                              • July 15, 2016 at 3:35 am
                              NancyGM
                              Participant

                                I hope your appointment at MD Anderson went well and the very best of luck to you.

                                • June 27, 2014 at 2:43 pm
                                NancyGM
                                Participant
                                  I appreciate this information. Hopefully, it is not csf, but I was not aware a lingering infection could cause this issue. Thanks so much.
                                  • June 27, 2014 at 2:43 pm
                                  NancyGM
                                  Participant
                                    I appreciate this information. Hopefully, it is not csf, but I was not aware a lingering infection could cause this issue. Thanks so much.
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