The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

NED 2 years – stage 4

Forums General Melanoma Community NED 2 years – stage 4

  • Post
    Affinity4Mountains
    Participant
      Just wanted to update on my progress. I am NED for the last 2 years after finding melanoma in my gallbladder and groin lymph node. Had both Optivo for 7 months and BRAF inhibitors Baftovi and Mektovi for 8 months.

      I appreciate this forum and wish everyone on here to gain the strength to fight this disease. Some of the things I credit in my fight (besides doctors and treatments) is constant exercise, all the healthy food I continued to eat, raising my vitamin D levels and monitoring (as I was deficient at diagnosis) and practicing strict sleep hygiene.

      Best wishes to everyone and let’s keep fighting and supporting more research for this disease.

    Viewing 4 reply threads
    • Replies
        Bubbles
        Participant
          Congrats! Enjoy!!! – celeste
          ThinkingPositive
          Participant
            Great news Affinity! I wish you the best going forward too!!!
            SABKLYN
            Participant
              Excellent! Congratulations
              NancyGM
              Participant
                I rarely go on this forum anymore, as I’ve been stage 4 NED for fourteen years. Big congrats to you on your NED-iversary! Know there are many long term stage 4 survivors out there!
                JudiAU
                Participant
                  Wonderful. I love happy reports!
              Viewing 4 reply threads
              • You must be logged in to reply to this topic.
              About the MRF Patient Forum

              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

              Popular Topics