Melanoma Research Foundation | JudiAU | Activity https://forum.melanoma.org/user/judiau/activity/ Activity feed for JudiAU. Wed, 22 Apr 2026 18:07:05 -0400 https://buddypress.org/?v= en-US 30 hourly 2 80d5bf040b7dda20fb94c03620a8e889 JudiAU replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280588 Thu, 09 Jan 2025 07:44:32 -0500 Following. After many treatments and a a very heavy steroid and anti-seizure load I know it is coming.

]]> 89230f9c6e1e1a7fd7731ab5ef35741d JudiAU replied to the topic BRAF/MEK 6/6 - Vision Change 1st day - Chance of Permanent? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/braf-mek-6-6-vision-change-1st-day-chance-of-permanent/#post-280573 Fri, 03 Jan 2025 04:19:28 -0500 Hopefully things have cleared up up by now but almost all vision changes, including those from steroids, are temporary.

]]> 33d8030eea25b49773fe49ec12be4eb6 JudiAU replied to the topic We Lost a Marvelous Friend in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/we-lost-a-marvelous-friend/#post-280572 Fri, 03 Jan 2025 04:14:29 -0500 I am so, so sorry to hear this. I guess I haven’t checked the boards in a while. Absolutely devastating. Bubbles, you were the best of us. Thank you. Your blog and advice was so useful when I was in such a deep place. And your fashion was out of this world.

]]> 667c40ffd0713f8edc24c4177d7b9e53 JudiAU replied to the topic Gamma knife before or after craniotomy? Radiation seeds? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/gamma-knife-before-or-after-craniotomy-radiation-seeds/#post-280495 Tue, 01 Oct 2024 05:02:46 -0400 I’ve had radiation used twice after craniotomies, once for a melanoma met and another time for my actual brain tumor that had a tiny bit of growth. In both cases it was to deal with the small scraps that of tumor or cancer that is left behind and the surgeon can’t get. Neither was a big treatment just 2-4 sessions and not the big radiation ses…Read more

]]> 50618482c27096a959ba9bed18b81cc6 JudiAU replied to the topic Lung Mets? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lung-mets-2/#post-280488 Mon, 23 Sep 2024 20:51:18 -0400 When I was initially stage IV and I had a small area of lung met/biopsy for confirmed melanoma. Immunotherapy made the area inactive. I later had a terrible cough I got from my kid at the end of immunotherapy. I seemed to get much sicker then and I had three kids. It was awful. They finally did X-rays to check for pneumonia and my lungs were so…Read more

]]> 814b99891fafe907948731b7ec927e96 JudiAU replied to the topic stage 4 and timing in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stage-4-and-timing/#post-280412 Thu, 01 Aug 2024 23:33:40 -0400 There is no clock but he did you a disservice by denying you access to a higher level of drugs? Is that the case? You have only had single agent? What level of scans have you had? Where do you or did you have Mets? I would personally switch oncologists, switch drug regimes, and wipe out the Mets if you can. They had more time in your body to…Read more

]]> ec5b33d0d9554bb81e09c4487d210956 JudiAU replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280382 Sat, 20 Jul 2024 02:44:49 -0400 To put it as politely as I can, there is a very large “divide” among melanoma specialist about steroids and melanoma and many specialists particularly mine absolutely would have treated with the immunotherapy the absolute minute she could physical tolerate it. Because it needs to get in the body working and she would still be tapering. And the…Read more

]]> de9a42164886b32f6d7846457b7026a9 JudiAU replied to the topic Melanoma Focus Group in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-focus-group/#post-280346 Sat, 06 Jul 2024 21:20:26 -0400 AIM/MRF do a good job of giving a good overview of stages of melanoma etc. but I wish there was more information about common treatment issues like detailed side effects and how to manage them, and steroid basics. Also, now that people are living longer with previous rare issues doctors are frequently treating radiation necrosis. These issues need…Read more

]]> e8a6ecc36f78d65fca535a2df1487b00 JudiAU replied to the topic Success stories with only one dose opdivo/yervoy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/success-stories-with-only-one-dose-opdivo-yervoy/#post-280336 Tue, 25 Jun 2024 02:59:32 -0400 I am glad to hear about the positive CT scan!

]]> 886d615d7d977106e65d51336da3b593 JudiAU replied to the topic Success stories with only one dose opdivo/yervoy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/success-stories-with-only-one-dose-opdivo-yervoy/#post-280334 Mon, 24 Jun 2024 17:24:13 -0400 I am glad you feel you are in good hands. Because immunotherapy has so transformed melanoma care, a lot of patients and less experienced doctors I read about online are acting like it is sort of a done deal. But really we have much to learn about how immunotherapy can and cannot be administered to people with serious AE. I think many experienced…Read more

]]> 8011711b032fa3c9e8e187955ebea81a JudiAU replied to the topic Success stories with only one dose opdivo/yervoy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/success-stories-with-only-one-dose-opdivo-yervoy/#post-280321 Thu, 20 Jun 2024 03:27:41 -0400 I don’t have personal experience.

But you should you know that there are lots of ways to administer immunotherapy. 1/2 doses or different pacings etc. There are different ways to administer to reduce side effects. Treating the side effect and returning to drugs. Returning to drugs at a different dose. Treating the side effect and returning to…Read more

]]> 8af280461fea5da0dec399e3168247ad JudiAU replied to the topic Cognitive decline in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/cognitive-decline/#post-280284 Tue, 04 Jun 2024 03:21:14 -0400 I’ve noticed it with myself. But I have also had multiple intense crainiotomies, have an unrelated brain tumor, had a stroke, etc. I have taken many heavy rounds of steroids and current rounds of anti seizure meds. Immunotherapy drugs were hard but steroids and anti seizure meds are just as hard for me. I have picked up a lot of damage a long t…Read more

]]> 7da1deb5bf02c4950005581f7016a123 JudiAU replied to the topic Metastatic melanoma stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/metastatic-melanoma-stage-4-2/#post-280180 Sat, 20 Apr 2024 04:56:19 -0400 Really terrific news Luvnlyf. But take all the drugs you get lol. I asked for extra and tried to stay on immunotherapy for as long as they would let me!

]]> b46c04335c0e14360ae7d3fdde09b58e JudiAU replied to the topic After 11 1/2 years cancer free, now have lesions on my liver in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/after-11-1-2-years-cancer-free-now-have-lesions-on-my-liver/#post-280161 Wed, 10 Apr 2024 00:35:57 -0400 I am sorry. Whatever it is, I am sorry. Your doctor has probably already explained this but it may or may not be melanoma. There are plenty or people in this board who have had multiple major health conditions, even multiple cancers. If the MRI seems to suggest metastasis then a careful doctor and frankly, likely required by insurance, will…Read more

]]> b083940d280411210a8928dff82c400c JudiAU replied to the topic A little encouragement from a 7 year stage 4, TIL, Rad, Chemo, Immuno, survivor. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/a-little-encouragement-from-a-7-year-stage-4-til-rad-chemo-immuno-survivor/#post-280156 Sat, 06 Apr 2024 23:14:17 -0400 Thank you a lot for sharing. I hope the TIL continues to keep you strong. Weirdly enough I shared many of these experience through my prior brain tumor journey, prior to melanoma. Dry eye and mouth from nerve damage and terrible shaking from sepsis once and immunotherapy fevers another time. You have my utmost sympathy.

]]> f4e14f83160016414d7102ddb35118fd JudiAU replied to the topic Diagnosed stage 1 0.85mm Clarks level III NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/diagnosed-stage-1-0-85mm-clarks-level-iii-ned/#post-280075 Fri, 23 Feb 2024 00:26:08 -0500 Thanks for updating. Great to see people doing well.

]]> 2bb30b295e7f9d32047fd476ffff3caa JudiAU replied to the topic Newly Diagnosed in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newly-diagnosed-47/#post-280074 Fri, 23 Feb 2024 00:24:15 -0500 If you are indeed 1B it is entirely possible that you will not require more treatment at all! I believe there are some trials for immunotherapy for 2b which I wish I had access to but 1B involves careful sun care.

]]> e7eef5278ae48394823514220d855a86 JudiAU replied to the topic Sister got biopsy results, waiting for next stage (sister) extremely anxious in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/sister-got-biopsy-results-waiting-for-next-stage-sister-extremely-anxious/#post-280073 Fri, 23 Feb 2024 00:15:16 -0500 Depending on the depth of the melanoma, more tissue is taken at the surgical site and the lymph nodes. This helps in determining stage and treatment. If fairly superficial, no further treatment. If more advanced, scans and immunotherapy are likely next steps.

The surgical process seems awful in the moment but. You’d be surprised how well t…Read more

]]> fad2369ca5e6908e14f259944f49d371 JudiAU replied to the topic Multiple melanomas in situ in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/multiple-melanomas-in-situ/#post-280072 Fri, 23 Feb 2024 00:03:26 -0500 It happens. People here and other melanoma forums report multiple independent primaries sometimes. One user here reports 20+ It doesn’t seem to indicate an increased risk of metastasis. It does seem to increase stress so I am sorry about that.

]]> 4f540e6008a3455e2b236085540b9bdf JudiAU replied to the topic Marijuana when not on immunotherapy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/marijuana-when-not-on-immunotherapy/#post-279952 Sat, 03 Feb 2024 04:33:45 -0500 Sorry I was unclear. Point of reference I live in CA. Stage IV and went through immunotherapy, resection, radiation. I get asked at every appointment if I use and they list off a long list of forms and reminded that I should not use.

And I get drug screened up the wazoo whenever I am in the hospital too. I have no idea why.

]]> c1ae79b371b8475709d62dae689b09a3 JudiAU replied to the topic Marijuana when not on immunotherapy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/marijuana-when-not-on-immunotherapy/#post-279928 Wed, 31 Jan 2024 04:02:31 -0500 I don’t use but I am regularly asked about usage at my oncologist, both before, during, and after immunotherapy. Very opposed. I am also regularly offered services for mental health support etc.

Otherwise my doc is very live and let live although prefers I avoid stress. Doesn’t care if I have wine and cheese or a strict vegan diet if either mak…Read more

]]> d8ec6832603f8300e103f2f4b5c985bc JudiAU replied to the topic opdivo and yervoy side effects in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-and-yervoy-side-effects/#post-279727 Sun, 31 Dec 2023 02:28:42 -0500 After my first two treatments I was hospitalized for two weeks with raging fevers, took a break for brain surgery and radiation, and was treated with steroids. I returned to immunotherapy and used low dose steroids to complete my two years. I had other side effects that came and went but got through it. The steroids helped. Good luck. NED now.

]]> 3b3bcba5358d44b788f2aa7545c6cb9e JudiAU replied to the topic 4 Year NED and Question on Follow-up Scans / Insurance Issues in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/4-year-ned-and-question-on-follow-up-scans-insurance-issues/#post-279675 Sun, 17 Dec 2023 04:58:34 -0500 At stage 4 with a brain met and NED since immunotherapy, I was still getting brain MRI and and CT scans every four months until I just hit four years. Then I switched to six months. Occasionally the doctor switched to PET from CT.

]]> 29a7efd4dc6c23db831c6b5770c81c5e JudiAU replied to the topic Ugly duckling mole biopsied and I would really like some advice in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ugly-duckling-mole-biopsied-and-i-would-really-like-some-advice/#post-279662 Tue, 12 Dec 2023 18:21:28 -0500 There is really nothing to be done other than to biopsy and wait for results. I too have a lot of moles and unless there is some magical way to remove them practically they are never going to be able to do that. So dermatologists do their best. So watch our skin and then wait. Mostly they come back as nothing. And when they come back as something,…Read more

]]> 16c1f779e9bf9f5ce353d89851e5236f JudiAU replied to the topic Rash after immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/rash-after-immunotherapy/#post-279638 Sun, 10 Dec 2023 07:56:57 -0500 Yes. I had a rash pop up for about six months. Mild. Also similar for steroids and anti seizure medicine. They would rotate. They seemed to make me prone to minor staph infections, not MRSA, not horrible big staph, little staph that looked like a rash but eventual would be treated with antibiotics.

]]> 1383e82e8dccf09982b688db44f7a28e JudiAU replied to the topic Metastatic melanoma stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/metastatic-melanoma-stage-4-2/#post-279606 Thu, 07 Dec 2023 07:38:14 -0500 Angeles Clinic is great. Dr. Hamid is wonderful.

]]> c0f7f6afa622a84c3c374d4540e8277e JudiAU replied to the topic Bleeding Mole=new melanoma? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bleeding-molenew-melanoma/#post-279490 Thu, 09 Nov 2023 20:51:55 -0500 Well, sometimes new unrelated melanomas show up. (Very rare) And sometimes melanoma does metastasize to skin, although usually to primary site. Usually scalp melanoma metastasizes to the brain. So it would be pretty unlikely it would just pop up somewhere else. More likely to be a snagged cyst or something. But with a history of melanoma, you…Read more

]]> 62866facf0bbf771d6c487f030c70dec JudiAU replied to the topic Question on Mitotic in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/question-on-mitotic/#post-279489 Thu, 09 Nov 2023 20:45:39 -0500 If I recall correctly it was the suspected rate of change but it does not hold a lot of weight. The overall staging is much more important. Assuming your melanoma was removed, you are continuing to seek derm visits as advised, and you are avoiding sun exposure you are doing everything you should be. Do not be surprised if you have more mole…Read more

]]> 116afb316090fca61b8ab2e6b456f88d JudiAU replied to the topic Specimen A-INFLAMED COMPOUND DYSPLASTIC NEVUS WITH MODERATE TO SEVERE ATYPIA, MA in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/specimen-a-inflamed-compound-dysplastic-nevus-with-moderate-to-severe-atypia-ma/#post-279399 Sat, 21 Oct 2023 00:29:29 -0400 If your doctor recommends a follow up schedule for skin checks, do it. That, and skin protection, is pretty much how we all live. I am fair and have lots of moles. I’ve had lots of removals. Lots of weird ones. Until finally, a bad one. Hopefully you will never face that situation.

]]> 9558a6bce29207d6743dad2f825ba953 JudiAU replied to the topic Imlygic® Therapy in the U.S in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/imlygic-therapy-in-the-u-s/#post-279333 Tue, 10 Oct 2023 04:49:13 -0400 Hello, I am sorry to hear this. My primary is on my neck as well.

I am not familiar with the treatment but Los Angeles does have multiple doctors who work on research trials and do a lot of cutting edge treatment melanoma. Dr. Hamid/Angeles Clinic/Cedars Sinai https://www.theangelesclinic.org/meet-our-team/doctors/ and I can’t recall the name o…Read more

]]> a3ac8d204e0ad1150966e38af7f916f8 JudiAU replied to the topic Some more necrosis questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/some-more-necrosis-questions/#post-279327 Sat, 07 Oct 2023 21:01:04 -0400 Yes. Unfortunately it is very difficult to distinguish between metastatic disease and necrosis and very often, other factors help make the final decision. I hope everything turns out well.

]]> 97909bde6d8e5f532f7281d32eb73c8a JudiAU replied to the topic Some more necrosis questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/some-more-necrosis-questions/#post-279302 Wed, 04 Oct 2023 02:59:48 -0400 Well here I am updating my seizure journey roughly seven and a half months later. Why so specific, you might ask? Well, I never had another seizure. I never had any complications from Covid. I never had any issues from necrosis. The drugs caused a reduction in visible necrosis and I never developed necrosis symptoms. I have never had melanoma…Read more

]]> 91c77244d08cd72b5097c643f154502d JudiAU replied to the topic 32F Stage 1a in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/32f-stage-1a/#post-279287 Fri, 29 Sep 2023 21:34:28 -0400 I had my 2b removed at 41 when still nursing a baby and I felt very young. But was told I was not actually young at all for a first melanoma. Some areas of the world have had a big uptick in skin cancer and they are being diagnosed at younger ages. I really didn’t think I’d see him start K let alone start 5th grade. When I progressed to stage IV…Read more

]]> 5243f98b7f1d201bef8cce1483434783 JudiAU replied to the topic New.. Trying to understand in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-trying-to-understand/#post-279246 Sat, 23 Sep 2023 02:00:39 -0400 Jeez. I’m really sorry. How absolutely crazy and frustrating. Health care is filled with contradictions and leaps forwards and advances that seem like miracles and stupid mistakes and big blunders and very smart and educated people with different opinions. I hope you have some confidence in your diagnosis going forward soon. I wonder if you s…Read more

]]> a7dfad490e71f83d0ffc5372a039bfe5 JudiAU replied to the topic Stage IV need help in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stage-iv-need-help/#post-279244 Fri, 22 Sep 2023 13:49:04 -0400 Hello, I had a nasty journey with a non melanoma brain tumor with surgery twice and was receiving regular MRIs. Which is how we discovered my stage IV melanoma and whopper of a brain met in one go. Luckily, my neurosurgeon had one of the top melanoma specialists in the country on speed dial and actually at the major hospital I was already at at…Read more

]]> 7f008dbd80683b85612fb2bcac907204 JudiAU replied to the topic Still Here! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-here-3/#post-279216 Mon, 18 Sep 2023 04:41:16 -0400 Congratulations. And brave and wise news to change doctors.

]]> 8f2d91208d7bd723419a81ff6105c9d2 JudiAU replied to the topic New.. Trying to understand in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-trying-to-understand/#post-279215 Mon, 18 Sep 2023 04:39:31 -0400 Even with a rapidly growing tumor, I am shocked your doctors started chemo before the pathology arrived. I’ve heard of emergency radiation to stop a fast growing tumor but I distinctly remember my oncologist telling me could not treat my cancer even though they were “pretty sure” given my history it was melanoma. Treatments for different cance…Read more

]]> a5ca8488ea4e3325ba05b506a949c0f4 JudiAU replied to the topic Regression of metastatic melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/regression-of-metastatic-melanoma/#post-279177 Sun, 10 Sep 2023 03:04:35 -0400 Melanoma without a known primary is actually pretty well known and thus pretty documented on this site and other places although obviously really surprising to the person when it happens. If you search here you find find people. I am not sure what you mean by “complete regression.” Do you mean “cured.” I don’t think doctors really have case stud…Read more

]]> 16087c356b975abfc538912dde16d015 JudiAU replied to the topic Can someone help clarify the right sequence of staging tests? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/can-someone-help-clarify-the-right-sequence-of-staging-tests/#post-279176 Sun, 10 Sep 2023 02:56:13 -0400 That seems like a lot of contradictory statements certainly. I am not certain where you are. In the US a PET scan is often used when cancer is diagnosed but insurance companies don’t like them because they cost twice as much as a CT so only only some people get them routinely. My very good oncologist doesn’t really care and only cares if som…Read more

]]> f6bf1663baf64942f4dd888f6bad5907 JudiAU replied to the topic Help anxious and need reassurance in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/help-anxious-and-need-reassurance/#post-279175 Sun, 10 Sep 2023 02:44:21 -0400 I am pretty sure the “post” above is a predatory bot.

No. You can’t pick off cancer or a mole and hid it or make it go away. It will return. If you injure a mole or even rip it off intentionally it will return when it heals. Cancer is the same. We only see the top layer of the cells. The is why everything should be checked in a lab when it is re…Read more

]]> 02bb3e594380191c6edf31f7c1af270a JudiAU replied to the topic Paralysis in arms and legs(keytruda) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/paralysis-in-arms-and-legskeytruda/#post-279050 Thu, 17 Aug 2023 06:39:03 -0400 Yuck. I am sorry you are going through through this. I didn’t experience this with immunotherapy. But I have had a major stroke during my brain surgery for trigeminal Schwannoma and have taken a depressing number of neurological drugs many of which seem to have this effect. I’ve cycled through a lot of anti seizure drugs this year and I seem to…Read more

]]> 088339e0c4056357bdaf268a2eb6d895 JudiAU replied to the topic Melanoma lymph node resection on neck in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-lymph-node-resection-on-neck/#post-279015 Tue, 08 Aug 2023 04:18:54 -0400 I am quite surprised they took that many nodes. I thought the standard these days days was to take fewer. I had about six taken. Clean. Hideous scar on collarbone; quite nice now. Fairly discreet scars on neck. It took about six months to get neck mobility back. It still a little numb. I was 2B. Metastasis to my brain about five years later.…Read more

]]> eb48160d0cd7038466ddbacdcfebd669 JudiAU replied to the topic Methotrexate in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/methotrexate/#post-279014 Tue, 08 Aug 2023 04:06:59 -0400 Possibly? It is unclear if I am suffering nasty side effects from some nasty drugs or some late to the party immunotherapy side effects. Only time will tell. It really could be either. Certainly is unpleasant. The problem is thereare lots of alternative drugs but they actually have worse side effects so not much of a choice.

]]> 1ddfef3145c693e4ee97037bcda547a9 JudiAU replied to the topic Newly diagnose, confused and scared in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newly-diagnose-confused-and-scared/#post-279010 Mon, 07 Aug 2023 05:32:29 -0400 Hi Nicole, I agree with YoJa with inflamed nodes are very common from a range of condition and drugs. I wouldn’t be concerned about that per se.

But I would also choose immunotherapy if I was in your position.

I was 2B when diagnosed on neck and had a brain met five years later. It was almost instantly caught because I was already having f…Read more

]]> e73e9b24f3f1adc33d907316c9042f46 JudiAU replied to the topic Melanoma and BRAF in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-and-braf/#post-278955 Tue, 25 Jul 2023 00:56:31 -0400 I believe that information only comes from genetic testing and takes some time to process. It does not happen automatically, everywhere and often depends on insurance. It may not be automatic so you may need to confirm that it was done. At the very least, it will not be information that is immediately available.

]]> 4d9f44be78f57492d91be15255d9d088 JudiAU replied to the topic Tafinlar fever in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/tafinlar-fever/#post-278797 Sat, 24 Jun 2023 03:59:19 -0400 After two rounds of combo ipi/Nivo I was hospitalized for a week for 107 fevers. I know it sounds impossible and likely was but ever single thermometer at the hospital the whole week read that temp when it was was spiking. I had to be packed with ice. They finally got it under control with 1,000 mg of Tylenol never found an infection etc. I…Read more

]]> acb8a6af714386a902920bf1de281cdf JudiAU replied to the topic Any success taking Ippi and Nivo the 2nd time? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/any-success-taking-ippi-and-nivo-the-2nd-time/#post-278746 Thu, 15 Jun 2023 17:36:04 -0400 Thanks for the link Bubbles. I’ve always worried about this.

]]> f590f1fcda0f018dece32fdb1e8d5042 JudiAU replied to the topic Recent Malignant Melanoma Diagnosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recent-malignant-melanoma-diagnosis/#post-278730 Sun, 11 Jun 2023 03:51:35 -0400 Great to hear. Just do any follow up care they recommend.

]]> e47e1458968e95f0b1304da662102911 JudiAU replied to the topic Please take a look and let me know if this looks cancerous to you. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/please-take-a-look-and-let-me-know-if-this-looks-cancerous-to-you/#post-278647 Wed, 17 May 2023 13:39:05 -0400 No one these boards can diagnose you. Please see a derm to biopsy.

]]> 49d26899153abea26c304d82456fd462 JudiAU replied to the topic Recent Malignant Melanoma Diagnosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recent-malignant-melanoma-diagnosis/#post-278627 Thu, 11 May 2023 23:12:56 -0400 It is hard. I’m sorry. But there are a lot of treatments today so try and breathe and get through the first stages without panicking! Happy healing.

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