› Forums › General Melanoma Community › Treatment Plan…Short Window
- This topic has 93 replies, 28 voices, and was last updated 7 years, 3 months ago by
Mark_DC.
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- December 20, 2016 at 1:14 pm
So plan is Abraxene and Keytruda. The panic button has been hit. Sounds like if this doesn't work, my time will be limited (6-10 weeks)before I go into liver failure. Oddly enough the oncologist at MDA Mike Davies didn't share that news. Coward. Yes I'm bitter about my experience at MDA. Don't blame them but I definitely have issues with the way they handled some things. This post isn't about that though. I am bitter about not getting compassionate TIL…my cells, they should give them to me…I'd absolve them of anything.
Anyway trying to get treated ASAP…possibly this week. They're going to keep close tabs on me and scan frequently to check on progress. Sounded like Biochemo, chemo embolization or radio embolization may be options but at this point 3 melanoma specialists feel my best chance is this systemic treatment. I believe if this doesn't work, I'm finished. Outside of having an LDH of 10,000 my blood work isn't horrible. I've felt pretty good. I'm stunned and adding the fact that so many others are hanging in balance is just painful. I can take this but tucking my kids into bed last night just tore my heart out. I'm going to pack as much living in with them, my family and friends. But it's bittersweet. We've never personally met but I think many of you have figured me out. I'm a former Marine who is as tough as they come but I've always have had a soft heart. People suffering impacts me greatly, people are invaluable…especially good people. So it hurts to see others suffering. My family is everything and they will suffer and there's nothing I can do. It has broken me. The other thing about me is I don't quit, I'm a realist and not afraid to discuss the realities of where this can go. So now I get ready to fight and pray that this buys me time so I can get into TIL or another promising trial. I didn't mean to get long winded but I'm not sure I'll be back here and wanted to conclude with that so many of you have been like family to me. The kindness, sincerity and love I've received has been a blessing. We've celebrated successes and grieved as we lost friends. Finding this group almost 6 years ago was a good thing. I love you all! To those who contribute knowledge and advice…keep it going, it's invaluable. Those who just support and offer comfort…stick around, it's uplifting and meaningful. I hope to be back but if I'm not I wanted to get this out and let everyone know what this community has meant to me. Finally special nod to Celeste, Ed, JBroncki, BrianP, Mat, KyleZ, Jaimeth29,casagrayson, Patrisa and so many others who have been here with me for a long long time. I'm sure I missed many others…not intentionally. Just emotionally worn out. Love and peace to you all!
Josh
- Replies
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- December 20, 2016 at 1:31 pm
Dear Josh, I am staying positive that this treatment will work for you! I refuse to think anything else at this point. I understand that you have to process both scenarios, but everyone on the board will send out prayers and positive vibes that this treatment will be a success! As you go through processing a possible negative outcome, don’t give up on hope, it is not over yet! Love on your kids and your family, and envision many more years of doing so! All my love and prayers go out to you.Annie
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- December 20, 2016 at 1:31 pm
Dear Josh, I am staying positive that this treatment will work for you! I refuse to think anything else at this point. I understand that you have to process both scenarios, but everyone on the board will send out prayers and positive vibes that this treatment will be a success! As you go through processing a possible negative outcome, don’t give up on hope, it is not over yet! Love on your kids and your family, and envision many more years of doing so! All my love and prayers go out to you.Annie
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- December 20, 2016 at 1:31 pm
Dear Josh, I am staying positive that this treatment will work for you! I refuse to think anything else at this point. I understand that you have to process both scenarios, but everyone on the board will send out prayers and positive vibes that this treatment will be a success! As you go through processing a possible negative outcome, don’t give up on hope, it is not over yet! Love on your kids and your family, and envision many more years of doing so! All my love and prayers go out to you.Annie
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- December 20, 2016 at 1:47 pm
Josh, Ive follwed your story for the last year and a half. Ive thought of you, prayed for you and hoped for you. You have given me hope for my situation and I admire you greatly. Im not sure you realize the lives you have touched here. You certainly have mine. Love that family with everything you have. Make the best of memories, keep fighting. You are loved. God bless you.
R
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- December 20, 2016 at 1:47 pm
Josh, Ive follwed your story for the last year and a half. Ive thought of you, prayed for you and hoped for you. You have given me hope for my situation and I admire you greatly. Im not sure you realize the lives you have touched here. You certainly have mine. Love that family with everything you have. Make the best of memories, keep fighting. You are loved. God bless you.
R
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- December 20, 2016 at 1:47 pm
Josh, Ive follwed your story for the last year and a half. Ive thought of you, prayed for you and hoped for you. You have given me hope for my situation and I admire you greatly. Im not sure you realize the lives you have touched here. You certainly have mine. Love that family with everything you have. Make the best of memories, keep fighting. You are loved. God bless you.
R
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- December 20, 2016 at 2:41 pm
Josh, I am new here, having stage 3b and about to start trial of either yervoy or keytruda. I will pray for peace and comfort for you and your family, and of course healing. I know your heart is broken but it sounds like there is still some hope. God bless and comfort you and your loved ones.-
- December 20, 2016 at 3:13 pm
Josh, I'm so sorry for the news. Prayers going your way. Your story has touched so many on this board. I don't post often, but I check this site daily. Stay strong, keep the faith and trust God. His plan is perfect even when we don't understand it. Just to throw this out there, I am stage 4 mel that has spread to several areas & have been placed in genetic trail (G.E.M.M. sponsored by Stand Up To Cancer & Yale University) after other options have failed. It's amazing how they can tell the genetics/mutation of the tumor and match you up with a targeted drug. I've been matched with a drug that's recently approved for breast cancer. There's about 29 different drugs in the study that is a possible match according to the mutation. Maybe a thought & worth looking into. I wish you the best!!
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- December 20, 2016 at 3:13 pm
Josh, I'm so sorry for the news. Prayers going your way. Your story has touched so many on this board. I don't post often, but I check this site daily. Stay strong, keep the faith and trust God. His plan is perfect even when we don't understand it. Just to throw this out there, I am stage 4 mel that has spread to several areas & have been placed in genetic trail (G.E.M.M. sponsored by Stand Up To Cancer & Yale University) after other options have failed. It's amazing how they can tell the genetics/mutation of the tumor and match you up with a targeted drug. I've been matched with a drug that's recently approved for breast cancer. There's about 29 different drugs in the study that is a possible match according to the mutation. Maybe a thought & worth looking into. I wish you the best!!
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- December 20, 2016 at 3:13 pm
Josh, I'm so sorry for the news. Prayers going your way. Your story has touched so many on this board. I don't post often, but I check this site daily. Stay strong, keep the faith and trust God. His plan is perfect even when we don't understand it. Just to throw this out there, I am stage 4 mel that has spread to several areas & have been placed in genetic trail (G.E.M.M. sponsored by Stand Up To Cancer & Yale University) after other options have failed. It's amazing how they can tell the genetics/mutation of the tumor and match you up with a targeted drug. I've been matched with a drug that's recently approved for breast cancer. There's about 29 different drugs in the study that is a possible match according to the mutation. Maybe a thought & worth looking into. I wish you the best!!
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- December 20, 2016 at 2:41 pm
Josh, I am new here, having stage 3b and about to start trial of either yervoy or keytruda. I will pray for peace and comfort for you and your family, and of course healing. I know your heart is broken but it sounds like there is still some hope. God bless and comfort you and your loved ones. -
- December 20, 2016 at 2:41 pm
Josh, I am new here, having stage 3b and about to start trial of either yervoy or keytruda. I will pray for peace and comfort for you and your family, and of course healing. I know your heart is broken but it sounds like there is still some hope. God bless and comfort you and your loved ones. -
- December 20, 2016 at 4:42 pm
Josh, hon, I'm tearing up reading this post. I knew from the first time I saw your picture that you were a man with a great heart. You've given so much to so many here, even when fighting your own tough battles. This disease is a beast, and it is so unpredictable that it's twists and turns can knock the wind out of your sails. I'm angry for you — but I also want to tell you to stay strong and persevere. If this new treatment can just buy you some time until the right trial becomes available, that's all you need. Just some more time.
Please … I know posting here can be difficult, but I don't want to lose touch with you while you are fighting this latest battle. If you are on Facebook, friend me at Susan Foster Grayson (anyone else is welcome to do the same).
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- December 20, 2016 at 4:50 pm
Josh,
My father was at UCLA and after progression on IPI/Nivo and then Nivo alone, the doctors put him on chemo/immunotherapy combo as progression was aggressive (Nivo and Temodar, chose Temodar as he had multiple brain mets and hope was Temodar would help with them). His response to this chemo/immunotherapy treatment was robust and rapid. While he unfortunately ran into some other issues that slowed his progress, the scan results after only second does of chemo (i.e. after two months) showed most tumors drastically reduced in size and some altogether resolved.
Our experience bodes well for similar success with chemo/immunotherapy treatments, particulalrly in someone younger and healthier with an immense drive and will to get better, like yourself.
Stay strong my friend, and good luck.
Cameron
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- December 20, 2016 at 4:50 pm
Josh,
My father was at UCLA and after progression on IPI/Nivo and then Nivo alone, the doctors put him on chemo/immunotherapy combo as progression was aggressive (Nivo and Temodar, chose Temodar as he had multiple brain mets and hope was Temodar would help with them). His response to this chemo/immunotherapy treatment was robust and rapid. While he unfortunately ran into some other issues that slowed his progress, the scan results after only second does of chemo (i.e. after two months) showed most tumors drastically reduced in size and some altogether resolved.
Our experience bodes well for similar success with chemo/immunotherapy treatments, particulalrly in someone younger and healthier with an immense drive and will to get better, like yourself.
Stay strong my friend, and good luck.
Cameron
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- December 20, 2016 at 4:50 pm
Josh,
My father was at UCLA and after progression on IPI/Nivo and then Nivo alone, the doctors put him on chemo/immunotherapy combo as progression was aggressive (Nivo and Temodar, chose Temodar as he had multiple brain mets and hope was Temodar would help with them). His response to this chemo/immunotherapy treatment was robust and rapid. While he unfortunately ran into some other issues that slowed his progress, the scan results after only second does of chemo (i.e. after two months) showed most tumors drastically reduced in size and some altogether resolved.
Our experience bodes well for similar success with chemo/immunotherapy treatments, particulalrly in someone younger and healthier with an immense drive and will to get better, like yourself.
Stay strong my friend, and good luck.
Cameron
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- December 20, 2016 at 4:42 pm
Josh, hon, I'm tearing up reading this post. I knew from the first time I saw your picture that you were a man with a great heart. You've given so much to so many here, even when fighting your own tough battles. This disease is a beast, and it is so unpredictable that it's twists and turns can knock the wind out of your sails. I'm angry for you — but I also want to tell you to stay strong and persevere. If this new treatment can just buy you some time until the right trial becomes available, that's all you need. Just some more time.
Please … I know posting here can be difficult, but I don't want to lose touch with you while you are fighting this latest battle. If you are on Facebook, friend me at Susan Foster Grayson (anyone else is welcome to do the same).
-
- December 20, 2016 at 4:42 pm
Josh, hon, I'm tearing up reading this post. I knew from the first time I saw your picture that you were a man with a great heart. You've given so much to so many here, even when fighting your own tough battles. This disease is a beast, and it is so unpredictable that it's twists and turns can knock the wind out of your sails. I'm angry for you — but I also want to tell you to stay strong and persevere. If this new treatment can just buy you some time until the right trial becomes available, that's all you need. Just some more time.
Please … I know posting here can be difficult, but I don't want to lose touch with you while you are fighting this latest battle. If you are on Facebook, friend me at Susan Foster Grayson (anyone else is welcome to do the same).
-
- December 20, 2016 at 5:28 pm
No shortage of tears over here for you Josh. I am rooting as loud as I can, telling the universe that melanoma cannot win again! You're a great man and a great father, this world needs you in it a whole lot longer.
Keep those fists up, you've still got fight in you.
Lots of hugs and love from California,
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- December 20, 2016 at 5:28 pm
No shortage of tears over here for you Josh. I am rooting as loud as I can, telling the universe that melanoma cannot win again! You're a great man and a great father, this world needs you in it a whole lot longer.
Keep those fists up, you've still got fight in you.
Lots of hugs and love from California,
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- December 20, 2016 at 5:28 pm
No shortage of tears over here for you Josh. I am rooting as loud as I can, telling the universe that melanoma cannot win again! You're a great man and a great father, this world needs you in it a whole lot longer.
Keep those fists up, you've still got fight in you.
Lots of hugs and love from California,
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- December 20, 2016 at 7:01 pm
Dear Josh,
words can not express how deeply sorry i am that you have to go through this, but it's not quitting time just yet… Have faith in the combo (dear Artie posted his ldh reduced by 20% just after first round of treatment!), i have read that many people respond to chemo immuno combo well, you will too and then continue with TIL treatment…
You find that marine guy and bring him to the front lines, you will get through this!!!!!!
I will pray for you until you have some good news to share, don't despair, be brave and you will come out of this as a winner!
Love,
Patrisa
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- December 20, 2016 at 7:01 pm
Dear Josh,
words can not express how deeply sorry i am that you have to go through this, but it's not quitting time just yet… Have faith in the combo (dear Artie posted his ldh reduced by 20% just after first round of treatment!), i have read that many people respond to chemo immuno combo well, you will too and then continue with TIL treatment…
You find that marine guy and bring him to the front lines, you will get through this!!!!!!
I will pray for you until you have some good news to share, don't despair, be brave and you will come out of this as a winner!
Love,
Patrisa
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- December 20, 2016 at 7:01 pm
Dear Josh,
words can not express how deeply sorry i am that you have to go through this, but it's not quitting time just yet… Have faith in the combo (dear Artie posted his ldh reduced by 20% just after first round of treatment!), i have read that many people respond to chemo immuno combo well, you will too and then continue with TIL treatment…
You find that marine guy and bring him to the front lines, you will get through this!!!!!!
I will pray for you until you have some good news to share, don't despair, be brave and you will come out of this as a winner!
Love,
Patrisa
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- December 20, 2016 at 8:53 pm
Josh,
When I was at MDA, Dr. Glitza told me that they had been having good results with chemo. The folks here at SCCA are saying the same thing, but that it is a short term response.
In fact, they think I may experience reduction in pain because the chemo may shrink my tumors. Today they actually bumped me up to Dilaudid, so pain reduction sounds great to me.
Even if you only get a short lived response, this could be your bridge to the TIL. You just need to reduce that tumor burden in your liver for the short term.
You are at the top of my prayer list.
Your friend – Paul
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- December 20, 2016 at 8:53 pm
Josh,
When I was at MDA, Dr. Glitza told me that they had been having good results with chemo. The folks here at SCCA are saying the same thing, but that it is a short term response.
In fact, they think I may experience reduction in pain because the chemo may shrink my tumors. Today they actually bumped me up to Dilaudid, so pain reduction sounds great to me.
Even if you only get a short lived response, this could be your bridge to the TIL. You just need to reduce that tumor burden in your liver for the short term.
You are at the top of my prayer list.
Your friend – Paul
-
- December 20, 2016 at 8:53 pm
Josh,
When I was at MDA, Dr. Glitza told me that they had been having good results with chemo. The folks here at SCCA are saying the same thing, but that it is a short term response.
In fact, they think I may experience reduction in pain because the chemo may shrink my tumors. Today they actually bumped me up to Dilaudid, so pain reduction sounds great to me.
Even if you only get a short lived response, this could be your bridge to the TIL. You just need to reduce that tumor burden in your liver for the short term.
You are at the top of my prayer list.
Your friend – Paul
-
- December 20, 2016 at 9:11 pm
Josh-
I read your post earlier this morning, oddly enough while i was sitting in the waiting room of my oncologist…..as others have said, the tears were hard to hold back…..i have read and re-read it several times since then….and now that i am back home, the tears are abundant.
Many are talking about the good results from CHEMO combos….I am hoping you will have that, even if just to hold on until the right trial or next treatment.
Remember its not over til its over….and ITS NOT!!!!!!
I know you're a tough guy, and former marine….but apparently one with a huge heart…..which I know must be breaking.
Please know how many of us are sending you virtual hugs, BEST thoughts, and hope for that magic bullet, miracle or whatever you want to call it!
Please try and keep us posted on what I hope will be GOOD PROGRESS.
FOR NOW……all my best!
jenny
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- December 20, 2016 at 9:11 pm
Josh-
I read your post earlier this morning, oddly enough while i was sitting in the waiting room of my oncologist…..as others have said, the tears were hard to hold back…..i have read and re-read it several times since then….and now that i am back home, the tears are abundant.
Many are talking about the good results from CHEMO combos….I am hoping you will have that, even if just to hold on until the right trial or next treatment.
Remember its not over til its over….and ITS NOT!!!!!!
I know you're a tough guy, and former marine….but apparently one with a huge heart…..which I know must be breaking.
Please know how many of us are sending you virtual hugs, BEST thoughts, and hope for that magic bullet, miracle or whatever you want to call it!
Please try and keep us posted on what I hope will be GOOD PROGRESS.
FOR NOW……all my best!
jenny
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- December 20, 2016 at 9:59 pm
I thnk it's been mentioned in this thread before, but ASK FOR RADIATION! Lots of it if you feel comfortable with it. There are ways to hit liver mets with rads that are not overly destructive. Pulling for you! These are going to be some hardest several weeks of your life — fight like hell, hug your kids tight, and beat this thing!
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- December 20, 2016 at 9:59 pm
I thnk it's been mentioned in this thread before, but ASK FOR RADIATION! Lots of it if you feel comfortable with it. There are ways to hit liver mets with rads that are not overly destructive. Pulling for you! These are going to be some hardest several weeks of your life — fight like hell, hug your kids tight, and beat this thing!
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- December 20, 2016 at 9:59 pm
I thnk it's been mentioned in this thread before, but ASK FOR RADIATION! Lots of it if you feel comfortable with it. There are ways to hit liver mets with rads that are not overly destructive. Pulling for you! These are going to be some hardest several weeks of your life — fight like hell, hug your kids tight, and beat this thing!
-
- December 20, 2016 at 9:11 pm
Josh-
I read your post earlier this morning, oddly enough while i was sitting in the waiting room of my oncologist…..as others have said, the tears were hard to hold back…..i have read and re-read it several times since then….and now that i am back home, the tears are abundant.
Many are talking about the good results from CHEMO combos….I am hoping you will have that, even if just to hold on until the right trial or next treatment.
Remember its not over til its over….and ITS NOT!!!!!!
I know you're a tough guy, and former marine….but apparently one with a huge heart…..which I know must be breaking.
Please know how many of us are sending you virtual hugs, BEST thoughts, and hope for that magic bullet, miracle or whatever you want to call it!
Please try and keep us posted on what I hope will be GOOD PROGRESS.
FOR NOW……all my best!
jenny
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- December 20, 2016 at 10:12 pm
Well…I could not say it any better than the words that everyone above me has expressed. KEEP FIGHTING!!!!!!!!!! This new combo is going to get you through until a new trial or some other magic bullet comes along for you. I really do have faith in this. Just keep taking it minute by minute, keep loving your family, keep doing what you do best, you are a WARRIOR!
This is very selfish of me to ask, but if you could possibly just let us know you are with us, it would mean the world. I know posting and reading becomes tiresome, but we are here to support you! Please just don't give up! I read your post this morning, but honestly my tears wouldn't allow me to post a reply until now. I thank you for your support not only to me and my Dad, but to all on this forum who have benefited from your insight, words of encouragement and cyber love.
Stay strong!
xo Jen
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- December 20, 2016 at 10:31 pm
Jen- that was so perfectly put.
JOSH- PLEASE KEEP FIGHTING…DON'T GIVE UP…..come here often and see how many are pulling for you..and as Jen said, PLEASE, if you can, let us know how you're doing!!!!!!
WITH LOTS OF
XXXXXXXXXXXXXXXXOOOOOOOOOOOOOOOOOOOOs
jenny
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- December 20, 2016 at 10:31 pm
Jen- that was so perfectly put.
JOSH- PLEASE KEEP FIGHTING…DON'T GIVE UP…..come here often and see how many are pulling for you..and as Jen said, PLEASE, if you can, let us know how you're doing!!!!!!
WITH LOTS OF
XXXXXXXXXXXXXXXXOOOOOOOOOOOOOOOOOOOOs
jenny
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- December 20, 2016 at 10:31 pm
Jen- that was so perfectly put.
JOSH- PLEASE KEEP FIGHTING…DON'T GIVE UP…..come here often and see how many are pulling for you..and as Jen said, PLEASE, if you can, let us know how you're doing!!!!!!
WITH LOTS OF
XXXXXXXXXXXXXXXXOOOOOOOOOOOOOOOOOOOOs
jenny
-
- December 20, 2016 at 10:12 pm
Well…I could not say it any better than the words that everyone above me has expressed. KEEP FIGHTING!!!!!!!!!! This new combo is going to get you through until a new trial or some other magic bullet comes along for you. I really do have faith in this. Just keep taking it minute by minute, keep loving your family, keep doing what you do best, you are a WARRIOR!
This is very selfish of me to ask, but if you could possibly just let us know you are with us, it would mean the world. I know posting and reading becomes tiresome, but we are here to support you! Please just don't give up! I read your post this morning, but honestly my tears wouldn't allow me to post a reply until now. I thank you for your support not only to me and my Dad, but to all on this forum who have benefited from your insight, words of encouragement and cyber love.
Stay strong!
xo Jen
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- December 20, 2016 at 10:12 pm
Well…I could not say it any better than the words that everyone above me has expressed. KEEP FIGHTING!!!!!!!!!! This new combo is going to get you through until a new trial or some other magic bullet comes along for you. I really do have faith in this. Just keep taking it minute by minute, keep loving your family, keep doing what you do best, you are a WARRIOR!
This is very selfish of me to ask, but if you could possibly just let us know you are with us, it would mean the world. I know posting and reading becomes tiresome, but we are here to support you! Please just don't give up! I read your post this morning, but honestly my tears wouldn't allow me to post a reply until now. I thank you for your support not only to me and my Dad, but to all on this forum who have benefited from your insight, words of encouragement and cyber love.
Stay strong!
xo Jen
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- December 20, 2016 at 10:50 pm
Hi Josh, I hope you do read these comments and stay on the forum as others have suggested. It would take a Marine who is a bears fan to make a Patriots fan cry this morning!!! I had a harder time telling my wife about your post (second cry) thanks!!! My daugther turned 8 in October and I remember clearly making all kinds of videos for her going back 4 or 5 years ago. Wanting to leave something that she could remember me bye. When you brought up Dominic and Gianna and putting them to bed it really hit home. Things were pretty sporty for me 3 years ago but I am still here!!!! Susan offered you earlier to become friends on Facebook which offers the ability to talk more directly to friends and so I would like to make the same offer. Mine is pretty easy to find 'Ed Williams" there is a few of them,so look for the photo of a guy riding his mountain bike down a country road. My bio reads school teacher and coach and living in Russell Ontario Canada. I think Susan might be on to something with the facebook idea. Best Wishes!!!Ed
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- December 20, 2016 at 10:50 pm
Hi Josh, I hope you do read these comments and stay on the forum as others have suggested. It would take a Marine who is a bears fan to make a Patriots fan cry this morning!!! I had a harder time telling my wife about your post (second cry) thanks!!! My daugther turned 8 in October and I remember clearly making all kinds of videos for her going back 4 or 5 years ago. Wanting to leave something that she could remember me bye. When you brought up Dominic and Gianna and putting them to bed it really hit home. Things were pretty sporty for me 3 years ago but I am still here!!!! Susan offered you earlier to become friends on Facebook which offers the ability to talk more directly to friends and so I would like to make the same offer. Mine is pretty easy to find 'Ed Williams" there is a few of them,so look for the photo of a guy riding his mountain bike down a country road. My bio reads school teacher and coach and living in Russell Ontario Canada. I think Susan might be on to something with the facebook idea. Best Wishes!!!Ed
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- December 20, 2016 at 10:50 pm
Hi Josh, I hope you do read these comments and stay on the forum as others have suggested. It would take a Marine who is a bears fan to make a Patriots fan cry this morning!!! I had a harder time telling my wife about your post (second cry) thanks!!! My daugther turned 8 in October and I remember clearly making all kinds of videos for her going back 4 or 5 years ago. Wanting to leave something that she could remember me bye. When you brought up Dominic and Gianna and putting them to bed it really hit home. Things were pretty sporty for me 3 years ago but I am still here!!!! Susan offered you earlier to become friends on Facebook which offers the ability to talk more directly to friends and so I would like to make the same offer. Mine is pretty easy to find 'Ed Williams" there is a few of them,so look for the photo of a guy riding his mountain bike down a country road. My bio reads school teacher and coach and living in Russell Ontario Canada. I think Susan might be on to something with the facebook idea. Best Wishes!!!Ed
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- December 21, 2016 at 12:48 am
Hey Joshie,
Dear sweetie. You've given much more than you've ever received. Go for it. Try to get them to add radio-embolization of the liver now…why not??? Got two sisters who were Jar Heads!! Should'a known!!! Love you mucho. Hang tough. Simper fi! Holding you and yours in my heart. Celeste
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- December 21, 2016 at 12:48 am
Hey Joshie,
Dear sweetie. You've given much more than you've ever received. Go for it. Try to get them to add radio-embolization of the liver now…why not??? Got two sisters who were Jar Heads!! Should'a known!!! Love you mucho. Hang tough. Simper fi! Holding you and yours in my heart. Celeste
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- December 21, 2016 at 12:48 am
Hey Joshie,
Dear sweetie. You've given much more than you've ever received. Go for it. Try to get them to add radio-embolization of the liver now…why not??? Got two sisters who were Jar Heads!! Should'a known!!! Love you mucho. Hang tough. Simper fi! Holding you and yours in my heart. Celeste
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- December 21, 2016 at 3:07 am
Josh My Friend,
I'm with Celeste…go for it and show this thing it's dealing with a Marine ready to go Iwo Jima on it. You have prayers of scores of people and most importantly a strong family fighting with you. I always read your updates and always pray for your good outcome. Setbacks can be draining, but we pick up and fight on. Your life has great meaning to all of us and you will continue to inspire us to gpfight on too.
Looking forward to your next update.
peace and love
Stan
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- December 21, 2016 at 3:07 am
Josh My Friend,
I'm with Celeste…go for it and show this thing it's dealing with a Marine ready to go Iwo Jima on it. You have prayers of scores of people and most importantly a strong family fighting with you. I always read your updates and always pray for your good outcome. Setbacks can be draining, but we pick up and fight on. Your life has great meaning to all of us and you will continue to inspire us to gpfight on too.
Looking forward to your next update.
peace and love
Stan
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- December 21, 2016 at 3:07 am
Josh My Friend,
I'm with Celeste…go for it and show this thing it's dealing with a Marine ready to go Iwo Jima on it. You have prayers of scores of people and most importantly a strong family fighting with you. I always read your updates and always pray for your good outcome. Setbacks can be draining, but we pick up and fight on. Your life has great meaning to all of us and you will continue to inspire us to gpfight on too.
Looking forward to your next update.
peace and love
Stan
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- December 21, 2016 at 4:30 am
Josh…..I've followed your story from the beginning and have kept a watch on your journey. My heart has soared with your good news and sank with the not so good news. You are on my heart and when I'm checking in with MPIP, you are who I'm seeking and a few others, hoping for good news. I can tell from your many posts what a loving caring person you are, a big teddy bear of sorts, a family guy, but a tough guy, Marine strength….the best! And by the way, thank you for your service and contribution to our country, keeping us and our families safe and out of harms way. Your strength and grit has inspired me and so many others, way more than you know, but also your honest, tell it like it is, has also touched so many of us here on MPIP. I wish you continued strength and courage with your battle and at home with your loved ones. Like so many of us in the battle, it takes a lot of strength to put on a happy face and hold back tears to reassure our loved ones we will beat this and be here tomorrow. There are so many here on this site that never post but are praying for you, thinking positive thoughts and hoping you find a success in your next treatment to beat this, we all want this for you.
Thinking of you tonight, praying for comfort and peace for you and your family and for your health to be restored.
Wishing you a beautiful holiday season with your sweet family.
Blessings,
Swanee
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- December 21, 2016 at 4:30 am
Josh…..I've followed your story from the beginning and have kept a watch on your journey. My heart has soared with your good news and sank with the not so good news. You are on my heart and when I'm checking in with MPIP, you are who I'm seeking and a few others, hoping for good news. I can tell from your many posts what a loving caring person you are, a big teddy bear of sorts, a family guy, but a tough guy, Marine strength….the best! And by the way, thank you for your service and contribution to our country, keeping us and our families safe and out of harms way. Your strength and grit has inspired me and so many others, way more than you know, but also your honest, tell it like it is, has also touched so many of us here on MPIP. I wish you continued strength and courage with your battle and at home with your loved ones. Like so many of us in the battle, it takes a lot of strength to put on a happy face and hold back tears to reassure our loved ones we will beat this and be here tomorrow. There are so many here on this site that never post but are praying for you, thinking positive thoughts and hoping you find a success in your next treatment to beat this, we all want this for you.
Thinking of you tonight, praying for comfort and peace for you and your family and for your health to be restored.
Wishing you a beautiful holiday season with your sweet family.
Blessings,
Swanee
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- December 21, 2016 at 4:30 am
Josh…..I've followed your story from the beginning and have kept a watch on your journey. My heart has soared with your good news and sank with the not so good news. You are on my heart and when I'm checking in with MPIP, you are who I'm seeking and a few others, hoping for good news. I can tell from your many posts what a loving caring person you are, a big teddy bear of sorts, a family guy, but a tough guy, Marine strength….the best! And by the way, thank you for your service and contribution to our country, keeping us and our families safe and out of harms way. Your strength and grit has inspired me and so many others, way more than you know, but also your honest, tell it like it is, has also touched so many of us here on MPIP. I wish you continued strength and courage with your battle and at home with your loved ones. Like so many of us in the battle, it takes a lot of strength to put on a happy face and hold back tears to reassure our loved ones we will beat this and be here tomorrow. There are so many here on this site that never post but are praying for you, thinking positive thoughts and hoping you find a success in your next treatment to beat this, we all want this for you.
Thinking of you tonight, praying for comfort and peace for you and your family and for your health to be restored.
Wishing you a beautiful holiday season with your sweet family.
Blessings,
Swanee
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- December 21, 2016 at 4:55 am
Don't give up Josh! I appreciate your sharing. You help me understand my young man who struggles with this too. Just found out Jake has brain mets. We get down, then we get up again. It's what we do. You have been our hero Josh. Know we love you no matter what!
Keeri
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- December 21, 2016 at 4:55 am
Don't give up Josh! I appreciate your sharing. You help me understand my young man who struggles with this too. Just found out Jake has brain mets. We get down, then we get up again. It's what we do. You have been our hero Josh. Know we love you no matter what!
Keeri
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- December 21, 2016 at 4:55 am
Don't give up Josh! I appreciate your sharing. You help me understand my young man who struggles with this too. Just found out Jake has brain mets. We get down, then we get up again. It's what we do. You have been our hero Josh. Know we love you no matter what!
Keeri
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- December 21, 2016 at 11:38 am
So sorry to read the challenges you are facing. You can do this. The chemo/immuni will get the shrinkage started, then some liver embolization can do some more and then you will be ready to get your T-cells. Although the LDH is very high, the fact that you are feeling well will help you get through all this!
praying for you
maria
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- December 21, 2016 at 11:38 am
So sorry to read the challenges you are facing. You can do this. The chemo/immuni will get the shrinkage started, then some liver embolization can do some more and then you will be ready to get your T-cells. Although the LDH is very high, the fact that you are feeling well will help you get through all this!
praying for you
maria
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- December 21, 2016 at 11:38 am
So sorry to read the challenges you are facing. You can do this. The chemo/immuni will get the shrinkage started, then some liver embolization can do some more and then you will be ready to get your T-cells. Although the LDH is very high, the fact that you are feeling well will help you get through all this!
praying for you
maria
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- December 21, 2016 at 1:24 pm
Dear Josh-
As so many others, I have followed your story since I found this site. Thank you for sharing your experiences so honestly- you have touched my heart. Your compassionate soul is evident in every post. You are in my thoughts and prayers. Fight on! MANY MANY are behind you.
Love and courage-
Peggy
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- December 21, 2016 at 1:24 pm
Dear Josh-
As so many others, I have followed your story since I found this site. Thank you for sharing your experiences so honestly- you have touched my heart. Your compassionate soul is evident in every post. You are in my thoughts and prayers. Fight on! MANY MANY are behind you.
Love and courage-
Peggy
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- December 21, 2016 at 1:24 pm
Dear Josh-
As so many others, I have followed your story since I found this site. Thank you for sharing your experiences so honestly- you have touched my heart. Your compassionate soul is evident in every post. You are in my thoughts and prayers. Fight on! MANY MANY are behind you.
Love and courage-
Peggy
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- December 21, 2016 at 7:01 pm
Hey Josh,
I've just returned to board, after my living hell of 5 days/4 nights in the hospital for my surgery. I was deeply saddened by your post, yet more than ever, understand how you feel. We are both pragmatic in our outlook, and while I can boast, today, no measurable disease, for the first time in four years of battle, I remain under no delusions about this insidious beast. I came across this quote in my email this morning by Carlos Castaneda – "A warrior never worries about his fear." You are one such warrior, as tough as they come. I have often wondered, how much is enough? When do you finally just say uncle, and walk-away from the fight? Then I find my strength again, and remember what the fight is for, and it becomes clear. I just know you are feeling it, gathering strength again for the next round. You must press on. Best wishes that the next treatment buys time, and that we find a real fix. Just know that with so many of us shedding tears that we must insist you post again, and again.
With aloha my friend, Gary
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- December 21, 2016 at 7:01 pm
Hey Josh,
I've just returned to board, after my living hell of 5 days/4 nights in the hospital for my surgery. I was deeply saddened by your post, yet more than ever, understand how you feel. We are both pragmatic in our outlook, and while I can boast, today, no measurable disease, for the first time in four years of battle, I remain under no delusions about this insidious beast. I came across this quote in my email this morning by Carlos Castaneda – "A warrior never worries about his fear." You are one such warrior, as tough as they come. I have often wondered, how much is enough? When do you finally just say uncle, and walk-away from the fight? Then I find my strength again, and remember what the fight is for, and it becomes clear. I just know you are feeling it, gathering strength again for the next round. You must press on. Best wishes that the next treatment buys time, and that we find a real fix. Just know that with so many of us shedding tears that we must insist you post again, and again.
With aloha my friend, Gary
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- December 21, 2016 at 7:01 pm
Hey Josh,
I've just returned to board, after my living hell of 5 days/4 nights in the hospital for my surgery. I was deeply saddened by your post, yet more than ever, understand how you feel. We are both pragmatic in our outlook, and while I can boast, today, no measurable disease, for the first time in four years of battle, I remain under no delusions about this insidious beast. I came across this quote in my email this morning by Carlos Castaneda – "A warrior never worries about his fear." You are one such warrior, as tough as they come. I have often wondered, how much is enough? When do you finally just say uncle, and walk-away from the fight? Then I find my strength again, and remember what the fight is for, and it becomes clear. I just know you are feeling it, gathering strength again for the next round. You must press on. Best wishes that the next treatment buys time, and that we find a real fix. Just know that with so many of us shedding tears that we must insist you post again, and again.
With aloha my friend, Gary
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- December 27, 2016 at 7:53 am
I should have guessed you were a Marine Josh. They are fighters, especially when they seem to be out of options. And you are a FIGHTER! You've also exemplified all that a Marine should be. While you are in a tight spot, know that you do still have options and that the fight isn't over. Keytruda has shown great success for many here and I hope that you will find great success with it.
You have a lot of people praying for you here. Please reconsider and keep in touch. We will be here for you if you need us.
You'll remain in my thoughts and prays Josh. Keep fighting and know we are all pulling for you.
PS
If I may offer a suggestion, please speak to your doctor about stereotactic body radiation therapy. We talked about this type of therapy (soft tissue) with my Mom's radiation oncologist recently. My uncle has just had this therapy for two sarcomas that were found in his lungs and he is doing well. This therapy has been used on melanoma patients successfully.
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- December 27, 2016 at 7:53 am
I should have guessed you were a Marine Josh. They are fighters, especially when they seem to be out of options. And you are a FIGHTER! You've also exemplified all that a Marine should be. While you are in a tight spot, know that you do still have options and that the fight isn't over. Keytruda has shown great success for many here and I hope that you will find great success with it.
You have a lot of people praying for you here. Please reconsider and keep in touch. We will be here for you if you need us.
You'll remain in my thoughts and prays Josh. Keep fighting and know we are all pulling for you.
PS
If I may offer a suggestion, please speak to your doctor about stereotactic body radiation therapy. We talked about this type of therapy (soft tissue) with my Mom's radiation oncologist recently. My uncle has just had this therapy for two sarcomas that were found in his lungs and he is doing well. This therapy has been used on melanoma patients successfully.
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- December 27, 2016 at 7:53 am
I should have guessed you were a Marine Josh. They are fighters, especially when they seem to be out of options. And you are a FIGHTER! You've also exemplified all that a Marine should be. While you are in a tight spot, know that you do still have options and that the fight isn't over. Keytruda has shown great success for many here and I hope that you will find great success with it.
You have a lot of people praying for you here. Please reconsider and keep in touch. We will be here for you if you need us.
You'll remain in my thoughts and prays Josh. Keep fighting and know we are all pulling for you.
PS
If I may offer a suggestion, please speak to your doctor about stereotactic body radiation therapy. We talked about this type of therapy (soft tissue) with my Mom's radiation oncologist recently. My uncle has just had this therapy for two sarcomas that were found in his lungs and he is doing well. This therapy has been used on melanoma patients successfully.
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- December 29, 2016 at 8:22 pm
Dear Josh — I'm just back to the board after several months of side effects leaving me out of energy to do much of anything. I've thought of you often, wondering how the TIL treatment was going. I'm sorry to hear that it didn't happen and I'm so sorry to hear the dispair in your post. I have no words to add to what others have said but I wanted you to know that you are in my heart and I am praying for you to get through this.
Gwen
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- December 29, 2016 at 8:22 pm
Dear Josh — I'm just back to the board after several months of side effects leaving me out of energy to do much of anything. I've thought of you often, wondering how the TIL treatment was going. I'm sorry to hear that it didn't happen and I'm so sorry to hear the dispair in your post. I have no words to add to what others have said but I wanted you to know that you are in my heart and I am praying for you to get through this.
Gwen
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- December 29, 2016 at 8:22 pm
Dear Josh — I'm just back to the board after several months of side effects leaving me out of energy to do much of anything. I've thought of you often, wondering how the TIL treatment was going. I'm sorry to hear that it didn't happen and I'm so sorry to hear the dispair in your post. I have no words to add to what others have said but I wanted you to know that you are in my heart and I am praying for you to get through this.
Gwen
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- December 31, 2016 at 5:24 am
Thinking of you and praying for you Josh. You are an inspiration to us all.
Fight like hell!
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- December 31, 2016 at 5:24 am
Thinking of you and praying for you Josh. You are an inspiration to us all.
Fight like hell!
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- December 31, 2016 at 5:24 am
Thinking of you and praying for you Josh. You are an inspiration to us all.
Fight like hell!
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