Stage 3 rollcall for Mark and others…
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Stage 3 rollcall for Mark and others…

› Forums › General Melanoma Community › Stage 3 rollcall for Mark and others…

  • Post
    • September 14, 2011 at 9:24 pm
    DebbieH
    Participant

    It looks like Mark, below, and other newly diagnoses stage 3 people could use some encouragement. 

    Let's let them know we're still here and doing well.  If I hadn't seen a lot of this when I went to 3C in 2001 I don't know what I would have done.

    So, I'll go first, DebbieH, stage IIIC, NED 10 years last Sunday, 9/11/2011.

    It looks like Mark, below, and other newly diagnoses stage 3 people could use some encouragement. 

    Let's let them know we're still here and doing well.  If I hadn't seen a lot of this when I went to 3C in 2001 I don't know what I would have done.

    So, I'll go first, DebbieH, stage IIIC, NED 10 years last Sunday, 9/11/2011.

Viewing 57 reply threads
  • Replies
      • September 14, 2011 at 10:12 pm
      RMcLegal
      Participant

      Diagnosed Stage IIIc in 2003, did biochemotherapy, still here and NED.

      Rich

      http://www.hotelmelanoma.blogspot.com

      • September 14, 2011 at 10:12 pm
      RMcLegal
      Participant

      Diagnosed Stage IIIc in 2003, did biochemotherapy, still here and NED.

      Rich

      http://www.hotelmelanoma.blogspot.com

      • September 14, 2011 at 10:48 pm
      mcanova
      Participant

      I was diagnosed in June 2007 and was confirmed stage IIIA (micromet in one node) in Sept.   We took the watch, wait and see approach.  I just had my 4 year checkup and tests (chest xray and bloodwork) and I'm celebrating my 4th year of NED!

       

      Mike from Richmond

      • September 14, 2011 at 10:48 pm
      mcanova
      Participant

      I was diagnosed in June 2007 and was confirmed stage IIIA (micromet in one node) in Sept.   We took the watch, wait and see approach.  I just had my 4 year checkup and tests (chest xray and bloodwork) and I'm celebrating my 4th year of NED!

       

      Mike from Richmond

      • September 14, 2011 at 11:09 pm
      JakeinNY
      Participant

      Jake, stage IIIB, NED 4 years end of this month.

      • September 14, 2011 at 11:09 pm
      JakeinNY
      Participant

      Jake, stage IIIB, NED 4 years end of this month.

      • September 14, 2011 at 11:53 pm
      ChrisTheWilsonZoo
      Participant

      Initial diagnosis 1992, unknown stage.  Recurrence in a lymph node in 2009, stage III.  Treated with CLND & Interferon.  NED 2 years as of 1 Sep 2011.

       

      Chris, Head Zookeepr at The Wilson Zoo 🙂

      • September 14, 2011 at 11:53 pm
      ChrisTheWilsonZoo
      Participant

      Initial diagnosis 1992, unknown stage.  Recurrence in a lymph node in 2009, stage III.  Treated with CLND & Interferon.  NED 2 years as of 1 Sep 2011.

       

      Chris, Head Zookeepr at The Wilson Zoo 🙂

      • September 15, 2011 at 1:14 am
      caratindell@comcast.net
      Participant

      Diagnosed stage 3 in June, 2000 with micromets to one sentinel node. Did a year of Interferon. Still going strong over 11 years later!!

      Cara 

      • September 15, 2011 at 1:14 am
      caratindell@comcast.net
      Participant

      Diagnosed stage 3 in June, 2000 with micromets to one sentinel node. Did a year of Interferon. Still going strong over 11 years later!!

      Cara 

      • September 15, 2011 at 2:13 am
      BethA
      Participant

      BethA, Stage 3B, NED since 2004

      • September 15, 2011 at 2:13 am
      BethA
      Participant

      BethA, Stage 3B, NED since 2004

      • September 15, 2011 at 2:20 am
      King
      Participant

      Debbie,

       

      Congratulations on the 10 year mark…..wow!  That is just awesome.  I hope you celebrated this milestone.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

      • September 15, 2011 at 2:20 am
      King
      Participant

      Debbie,

       

      Congratulations on the 10 year mark…..wow!  That is just awesome.  I hope you celebrated this milestone.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

      • September 15, 2011 at 3:24 am
      deeczar
      Participant

      Thank you stage 3 people!!!  I am newly diagnosed stage 3, I needed that!!!

      • September 15, 2011 at 3:24 am
      deeczar
      Participant

      Thank you stage 3 people!!!  I am newly diagnosed stage 3, I needed that!!!

      • September 15, 2011 at 12:22 pm
      Donna M.
      Participant

      Having just been diagnosed at IIIa in July, this means SO much to me.  Thanks everyone!

      • September 15, 2011 at 12:22 pm
      Donna M.
      Participant

      Having just been diagnosed at IIIa in July, this means SO much to me.  Thanks everyone!

      • September 15, 2011 at 12:31 pm
      Julie in SoCal
      Participant

      Stage 3a since July 2009.   Still alive and kicking: in the middle of dissertation reserach (that 3 years ago I thought I would never even start, let alone finish!).

       

      Julie

      WLE; SNB; LND, HD-Inf; 11 mos GM-CSF.

      • September 15, 2011 at 12:31 pm
      Julie in SoCal
      Participant

      Stage 3a since July 2009.   Still alive and kicking: in the middle of dissertation reserach (that 3 years ago I thought I would never even start, let alone finish!).

       

      Julie

      WLE; SNB; LND, HD-Inf; 11 mos GM-CSF.

        • September 15, 2011 at 8:46 pm
        killmel
        Participant

        Hi Julie,

         

        Nice to see your post.

        Have you heard anything about Dr. O'day resturning to Angeles clinic?

        Stay well.

        Dave

        • September 15, 2011 at 8:46 pm
        killmel
        Participant

        Hi Julie,

         

        Nice to see your post.

        Have you heard anything about Dr. O'day resturning to Angeles clinic?

        Stay well.

        Dave

      • September 15, 2011 at 1:22 pm
      renakimu
      Participant

      thanke you soooooooo much for this!my mum diagnosed with IIIb in april!you are giving me courage and strenght.

       

      keep going for ever NED!!!

      best wishes!

      DiRena

      • September 15, 2011 at 1:22 pm
      renakimu
      Participant

      thanke you soooooooo much for this!my mum diagnosed with IIIb in april!you are giving me courage and strenght.

       

      keep going for ever NED!!!

      best wishes!

      DiRena

      • September 15, 2011 at 5:16 pm
      washoegal
      Participant

      Mary, Stage 3a NED 16 months Wait and Watch.  Living ife on my terms!

      • September 15, 2011 at 5:16 pm
      washoegal
      Participant

      Mary, Stage 3a NED 16 months Wait and Watch.  Living ife on my terms!

      • September 15, 2011 at 10:50 pm
      vivian
      Participant

      Lear, stage IIIa, 10 months NED and 9 years in remission from bone marrow failure.  There is always hope!

      • September 15, 2011 at 10:50 pm
      vivian
      Participant

      Lear, stage IIIa, 10 months NED and 9 years in remission from bone marrow failure.  There is always hope!

      • September 16, 2011 at 12:43 am
      mom3girlsFL
      Participant

      Hi All,

      Stage 1 2002, Stage IIIC 2010, failed interferon

      Hoping to be NED after PET on Monday! Will let you know.

      Laurie

      • September 16, 2011 at 12:43 am
      mom3girlsFL
      Participant

      Hi All,

      Stage 1 2002, Stage IIIC 2010, failed interferon

      Hoping to be NED after PET on Monday! Will let you know.

      Laurie

        • September 16, 2011 at 1:53 am
        bs010kbb
        Participant
        Laurie, thank you for your post. I was wondering if you could elaborate as to what you meant by failed interferon as I was reviewing your profile and it doesn’t appear that you have had a recurrence, thank goodness…were you implying that you had to stop due to your levels?Getting ready to start and just wanted to know a bit more of you experience. Thank you…

        Donna, thank you for posting…this was terrific. If you have the chance, can you send me your email address, thank you.

        • September 16, 2011 at 1:53 am
        bs010kbb
        Participant
        Laurie, thank you for your post. I was wondering if you could elaborate as to what you meant by failed interferon as I was reviewing your profile and it doesn’t appear that you have had a recurrence, thank goodness…were you implying that you had to stop due to your levels?Getting ready to start and just wanted to know a bit more of you experience. Thank you…

        Donna, thank you for posting…this was terrific. If you have the chance, can you send me your email address, thank you.

      • September 16, 2011 at 2:03 am
      bs010kbb
      Participant
      Debbie, this was wonderful….THANK YOU so much for posting this as it was very encouraging to hear all these wonderful survivorship stories and congrats to you…how wonderful….many blessings for 10+ more years of being NED….Looking to be as fortunate as you!
      • September 16, 2011 at 2:03 am
      bs010kbb
      Participant
      Debbie, this was wonderful….THANK YOU so much for posting this as it was very encouraging to hear all these wonderful survivorship stories and congrats to you…how wonderful….many blessings for 10+ more years of being NED….Looking to be as fortunate as you!
      • September 16, 2011 at 3:08 am
      Kathy B
      Participant

       Stage IIIB, NED 4.5 years since recurrence, first diagnosed 2004 with vulva melanoma

      only did one month interferon, then radiation following recurrence surgery.

      Kathy B.

      still teaching

      • September 16, 2011 at 3:08 am
      Kathy B
      Participant

       Stage IIIB, NED 4.5 years since recurrence, first diagnosed 2004 with vulva melanoma

      only did one month interferon, then radiation following recurrence surgery.

      Kathy B.

      still teaching

      • September 16, 2011 at 4:27 am
      Cynthia C
      Participant

       Stage IIIb. Ten and a half years NED. Primary was 3.1mm ulcerated lower leg lesion, Clark's IV with 2 positive groin nodes. I did 8 doses of interferon and that's all.

      • September 16, 2011 at 4:27 am
      Cynthia C
      Participant

       Stage IIIb. Ten and a half years NED. Primary was 3.1mm ulcerated lower leg lesion, Clark's IV with 2 positive groin nodes. I did 8 doses of interferon and that's all.

      • September 16, 2011 at 7:07 pm
      djpayn
      Participant

      Diagnosed June, 2008 –  IIIC –

      still NED!!! 🙂

      • September 16, 2011 at 7:07 pm
      djpayn
      Participant

      Diagnosed June, 2008 –  IIIC –

      still NED!!! 🙂

      • September 16, 2011 at 7:30 pm
      patobs01
      Participant

      I'm Patricia, and I was dx. September, 2009, stage III A. I had a SNB with micro mets to one node followed by a LMD on left axcillary site. I elected to take one month high dose Interferon. All of this might sound agressive for IIIA, but I lost my younger brother to MM when he was 30, so I knew what I could be up against. Fortunately, no progression since, and glad to be her for roll call. This site saved my mind!

      • September 16, 2011 at 7:30 pm
      patobs01
      Participant

      I'm Patricia, and I was dx. September, 2009, stage III A. I had a SNB with micro mets to one node followed by a LMD on left axcillary site. I elected to take one month high dose Interferon. All of this might sound agressive for IIIA, but I lost my younger brother to MM when he was 30, so I knew what I could be up against. Fortunately, no progression since, and glad to be her for roll call. This site saved my mind!

      • September 16, 2011 at 8:08 pm
      Barb
      Participant

      I was DX in June 2009,ulcerated in my right breast.One node had Mel Stage 3A.I have been NED for over two years thank God!  I plan on being around a long time.

       

      Jeremiah 29:11 "For I know the Plans I have for YOU, declares the LORD, Plans to Prosper YOU and NOT Harm you, Plans to GIVE YOU Hope and a Future 

       

      Barbara Stage 3A

      • September 16, 2011 at 8:08 pm
      Barb
      Participant

      I was DX in June 2009,ulcerated in my right breast.One node had Mel Stage 3A.I have been NED for over two years thank God!  I plan on being around a long time.

       

      Jeremiah 29:11 "For I know the Plans I have for YOU, declares the LORD, Plans to Prosper YOU and NOT Harm you, Plans to GIVE YOU Hope and a Future 

       

      Barbara Stage 3A

      • September 17, 2011 at 11:30 pm
      Spanishlady OZ
      Participant

      Hi

      Stage IIIB 2005 groin disection and radiation 6 years NED.  Whoo Hooo

      • September 17, 2011 at 11:30 pm
      Spanishlady OZ
      Participant

      Hi

      Stage IIIB 2005 groin disection and radiation 6 years NED.  Whoo Hooo

      • September 19, 2011 at 2:27 pm
      newmanmark
      Participant

      I want to thank all of you for posting these positive stories.  I hate to be the downer but at times this disease takes over my mind.  I am trying my best to move on with my life and live in the now.  I love being a father and I am grateful for all of the time I have spent with my daughter.  She was born in the middle of my melanoma treatment and I know she was sent as a reminder of how precious life really is.

      I'd like to personally thank Debbie for rallying the troops.  It means a lot.  I am sending positive vibes to everyone on this forum!

      Mark

      • September 19, 2011 at 2:27 pm
      newmanmark
      Participant

      I want to thank all of you for posting these positive stories.  I hate to be the downer but at times this disease takes over my mind.  I am trying my best to move on with my life and live in the now.  I love being a father and I am grateful for all of the time I have spent with my daughter.  She was born in the middle of my melanoma treatment and I know she was sent as a reminder of how precious life really is.

      I'd like to personally thank Debbie for rallying the troops.  It means a lot.  I am sending positive vibes to everyone on this forum!

      Mark

      • September 20, 2011 at 9:02 pm
      Linny
      Participant

      Thought I'd put in my 2 cents worth . 🙂

      I was diagnosed in December 2010 with Stage III melanoma, unknown primary. I currently in the MAGE vaccine clinical trial and after today's scans I am still NED.

      Linda

      • September 20, 2011 at 9:02 pm
      Linny
      Participant

      Thought I'd put in my 2 cents worth . 🙂

      I was diagnosed in December 2010 with Stage III melanoma, unknown primary. I currently in the MAGE vaccine clinical trial and after today's scans I am still NED.

      Linda

        • September 25, 2011 at 7:29 pm
        Gwen in Maine
        Participant

        I'm getting ready for a follow-up with my doctors and saw this thread. I'm stage 3c and NED since Aug 2010. While melanoma's always somewhere in the back of my mind, I'm busy living life.

         

        Gwen in Maine

        • September 25, 2011 at 7:29 pm
        Gwen in Maine
        Participant

        I'm getting ready for a follow-up with my doctors and saw this thread. I'm stage 3c and NED since Aug 2010. While melanoma's always somewhere in the back of my mind, I'm busy living life.

         

        Gwen in Maine

      • October 5, 2011 at 1:08 am
      concernedaughter2011
      Participant

      My mom (MAH in TX ) was stage 1 in 2004. Stage IIIC in June 2011. 

      • October 5, 2011 at 1:08 am
      concernedaughter2011
      Participant

      My mom (MAH in TX ) was stage 1 in 2004. Stage IIIC in June 2011. 

      • October 5, 2011 at 1:08 am
      concernedaughter2011
      Participant

      My mom (MAH in TX ) was stage 1 in 2004. Stage IIIC in June 2011. 

      • March 11, 2013 at 8:54 am
      ruby
      Participant

      THANK YOU THIS IS THE BEST!!! XX WELL DONE ALL THOSE SURVIVING AND GOOD LUCK 🙂

      • March 11, 2013 at 8:54 am
      ruby
      Participant

      THANK YOU THIS IS THE BEST!!! XX WELL DONE ALL THOSE SURVIVING AND GOOD LUCK 🙂

        • March 11, 2013 at 8:57 am
        ruby
        Participant

        should have said been 1A since 2008 newly diagnosed stage 3b 21/12/ 2012  and needing alot of encouragement to feel I have a future so thank you this is a real boost  🙂 x

        • March 11, 2013 at 8:57 am
        ruby
        Participant

        should have said been 1A since 2008 newly diagnosed stage 3b 21/12/ 2012  and needing alot of encouragement to feel I have a future so thank you this is a real boost  🙂 x

        • March 11, 2013 at 8:57 am
        ruby
        Participant

        should have said been 1A since 2008 newly diagnosed stage 3b 21/12/ 2012  and needing alot of encouragement to feel I have a future so thank you this is a real boost  🙂 x

      • March 11, 2013 at 8:54 am
      ruby
      Participant

      THANK YOU THIS IS THE BEST!!! XX WELL DONE ALL THOSE SURVIVING AND GOOD LUCK 🙂

      • March 11, 2013 at 1:37 pm
      kjkaralekas
      Participant

      Stage IIIB. NED since 10/2011.

       

      Kelly

      • March 11, 2013 at 1:37 pm
      kjkaralekas
      Participant

      Stage IIIB. NED since 10/2011.

       

      Kelly

        • March 3, 2014 at 10:47 pm
        Kelly Smith
        Participant

        You have no idea how much this has just helped me. Thank  you all 🙂

        • March 3, 2014 at 10:47 pm
        Kelly Smith
        Participant

        You have no idea how much this has just helped me. Thank  you all 🙂

        • March 3, 2014 at 10:47 pm
        Kelly Smith
        Participant

        You have no idea how much this has just helped me. Thank  you all 🙂

      • March 11, 2013 at 1:37 pm
      kjkaralekas
      Participant

      Stage IIIB. NED since 10/2011.

       

      Kelly

      • March 11, 2013 at 2:28 pm
      Gene_S
      Participant

      Hello,

      My husband started out at IIIC in Jan. 2008 progressed to IV in Oct. 2010 is on a clinical trial for IPI (Yervoy) in Mar. 2011 and has been NED for 6 months.

      Judy (loving wife of Gene)

      • March 11, 2013 at 2:28 pm
      Gene_S
      Participant

      Hello,

      My husband started out at IIIC in Jan. 2008 progressed to IV in Oct. 2010 is on a clinical trial for IPI (Yervoy) in Mar. 2011 and has been NED for 6 months.

      Judy (loving wife of Gene)

      • March 11, 2013 at 2:28 pm
      Gene_S
      Participant

      Hello,

      My husband started out at IIIC in Jan. 2008 progressed to IV in Oct. 2010 is on a clinical trial for IPI (Yervoy) in Mar. 2011 and has been NED for 6 months.

      Judy (loving wife of Gene)

Viewing 57 reply threads
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