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Scans, all clear

Forums General Melanoma Community Scans, all clear

  • Post
    dian in spokane
    Participant

    I had PET/CT and MRI done on Thursday and saw my oncologist today for followup. I heard him say something I have never heard today. While he was recording his notes he said I was in 'complete remission'. And he told me I was a 'walking miracle', and, in a gesture completely unlike him, he HUGGED me when I left!

    I had PET/CT and MRI done on Thursday and saw my oncologist today for followup. I heard him say something I have never heard today. While he was recording his notes he said I was in 'complete remission'. And he told me I was a 'walking miracle', and, in a gesture completely unlike him, he HUGGED me when I left!

    After all my years here, I wouldn't call myself a walking miracle, because I know who THOSE folks are. DiVa.. John…Charlie.. daKING! Nicfrom Oz. I've not had to go through anything compared to what I see people endure here every day. But I am still beyond delighted to hear such things come from his lips instead of something like..'we've got this mass in your belly to look at' or some such thing!

    We've agreed to drop my scans to every 4 months, though if I get more clear scans then, I am going to push for every 6 months. PET's are almost unendurable now for me without doing pain meds for my back first. This time, for the first time ever, I spent the trip home from the center vomiting in the litter bag while bob drove, asking me if he should pull over!

    I continue to celebrate my successes against melanoma by overeating and over partying! Tomorrow, I'll brave the snowstorm and head off with a couple of fiddlers to the Portland Old Time Gathering. Then next tuesday I will be heading off with four of my best musical girlfriends for an estrogen filled week of playing music and drinking mai tais in Hawaii.

    Right now I am gonna go see True Grit!

    Good luck to ALL of you who are going through tough treatments this week

    dian 

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  • Replies
      Janner
      Participant

      This is one of the times I wish there was a LIKE button.   That's really all that needs to be said!

      XOXO

      Janner

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      Janner
      Participant

      This is one of the times I wish there was a LIKE button.   That's really all that needs to be said!

      XOXO

      Janner

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      AS123
      Participant

      Such great news! I enjoyed reading your post and love your attitude. The overeating and over partying line made me laugh. :) Enjoy your celebration!! You deserve it. :)

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      AS123
      Participant

      Such great news! I enjoyed reading your post and love your attitude. The overeating and over partying line made me laugh. :) Enjoy your celebration!! You deserve it. :)

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      NicOz
      Participant

      WOO-HOOOO! This is fantastic news, hun :D As Janner says, it needs a LIKE button! (Though not about the trip home- you poor love)

      Over eat and par-tay your butt off, Di… and play music 'til your fingers fall off. Enjoy Hawaii- though you could've swung past Oz and packed me in a suitcase *pout*

      Nic

      xxx

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      NicOz
      Participant

      WOO-HOOOO! This is fantastic news, hun :D As Janner says, it needs a LIKE button! (Though not about the trip home- you poor love)

      Over eat and par-tay your butt off, Di… and play music 'til your fingers fall off. Enjoy Hawaii- though you could've swung past Oz and packed me in a suitcase *pout*

      Nic

      xxx

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      Jerry from Cape Cod
      Participant

      dian,

      YES!, YES!, YES!…. I'm so happy for you.  Enjoy, overeat and party.

      Jerry from Cape Cod

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        Becky
        Participant

        Wow Dian, great news!

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        Becky
        Participant

        Wow Dian, great news!

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      Jerry from Cape Cod
      Participant

      dian,

      YES!, YES!, YES!…. I'm so happy for you.  Enjoy, overeat and party.

      Jerry from Cape Cod

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      lhaley
      Participant

      Wahoo!!! I am sooo happy for you!  I remember the post when they found something in your lungs, you waited and there was nothing there. To me this just confirms that you are clear all of these months later!!!  

      I have to tell you that I take reassurance in your post since I'm on watch and wait for the lung node.

      Go do whatever it is that you enjoy the most, you deserve it! 

      Linda

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      lhaley
      Participant

      Wahoo!!! I am sooo happy for you!  I remember the post when they found something in your lungs, you waited and there was nothing there. To me this just confirms that you are clear all of these months later!!!  

      I have to tell you that I take reassurance in your post since I'm on watch and wait for the lung node.

      Go do whatever it is that you enjoy the most, you deserve it! 

      Linda

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      Fen
      Participant

      flipping wonderful!!!  Send address and I will send food. 

      Fen

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      Fen
      Participant

      flipping wonderful!!!  Send address and I will send food. 

      Fen

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      debbieVA
      Participant

      Whoooo-Hooooo….You made my day!  From one MIRACLE to another MIRACLE….God is good!  

      Keep up the good work….Sing your heart out….Live life in a large way!

      You Rock!

      Love…

      Debbie Stage 4 NED  (DIVA)

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        2atlascedars
        Participant
        Dian,

        CONGRATULATIONS! This is such great news. I couldn’t be happier for you.

        Thank you setting such a strong and inspirational example for all of us dealing with this dreaded disease. Your chronicle is one of legend. You are the model of how we must advocate for our own care and remain vigilant in looking for signs of trouble.

        VIVA DIAN…may you experience immeasurable joy and satisfaction as you celebrate this victory!

        Regards,
        Mark (Stage 2A) from California

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        2atlascedars
        Participant
        Dian,

        CONGRATULATIONS! This is such great news. I couldn’t be happier for you.

        Thank you setting such a strong and inspirational example for all of us dealing with this dreaded disease. Your chronicle is one of legend. You are the model of how we must advocate for our own care and remain vigilant in looking for signs of trouble.

        VIVA DIAN…may you experience immeasurable joy and satisfaction as you celebrate this victory!

        Regards,
        Mark (Stage 2A) from California

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      debbieVA
      Participant

      Whoooo-Hooooo….You made my day!  From one MIRACLE to another MIRACLE….God is good!  

      Keep up the good work….Sing your heart out….Live life in a large way!

      You Rock!

      Love…

      Debbie Stage 4 NED  (DIVA)

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      jag
      Participant

      Very happy for you Diane, 

      May you survive to die of alcoholism, obesity, or just plain fiddling to death.

      You deserve to be healthy and happy as does everybody else on this board.

      God Bless

      John 

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      jag
      Participant

      Very happy for you Diane, 

      May you survive to die of alcoholism, obesity, or just plain fiddling to death.

      You deserve to be healthy and happy as does everybody else on this board.

      God Bless

      John 

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      Jim in Denver
      Participant

      Hey Dian – you go, go, go girl!!!  You are an amazing woman and friend to many here who are thrilled at your news.  I have to agree with JAG – eat dring and be merry (or just Dian…lol).  I firmly believe your wonderful sense of humor anf joy in life has much to do with your positive outcome.  Go kick up your heels and dance to the music that you love (and with Bob).  Travel, laugh, spend time with friends, and enjoy all that life has to offer!

      Best Always,

      Jim

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      Jim in Denver
      Participant

      Hey Dian – you go, go, go girl!!!  You are an amazing woman and friend to many here who are thrilled at your news.  I have to agree with JAG – eat dring and be merry (or just Dian…lol).  I firmly believe your wonderful sense of humor anf joy in life has much to do with your positive outcome.  Go kick up your heels and dance to the music that you love (and with Bob).  Travel, laugh, spend time with friends, and enjoy all that life has to offer!

      Best Always,

      Jim

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      Sharyn
      Participant

      Oh Dian, What wonderful news! I am absolutely thrilled for you! You go hula up a storm with "da girls" and say "aloha" to mel. Adios amigo! Hasta la vista, Baby.

      Hugs

      Sharyn, Stage IV

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      Sharyn
      Participant

      Oh Dian, What wonderful news! I am absolutely thrilled for you! You go hula up a storm with "da girls" and say "aloha" to mel. Adios amigo! Hasta la vista, Baby.

      Hugs

      Sharyn, Stage IV

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      King
      Participant

      Dian

       

      Great news!  Celebrate, celebrate!  Keep doing what you are doing.  And i agree with the doc…you are a walking miracle.

      Stay Strong

      King

      Stage IV  7/05 Liver mets

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      King
      Participant

      Dian

       

      Great news!  Celebrate, celebrate!  Keep doing what you are doing.  And i agree with the doc…you are a walking miracle.

      Stay Strong

      King

      Stage IV  7/05 Liver mets

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      Yahoo!  I am so excited for you!  You are a walking miracle.  What wonderful news and great break-throughs happening right now.    I too got great news yesterday.  My tumors are still responding the to b-raf inhibator.  I have just past the 7 month mark. 

      Hey, my parents said that Spokane was going to get 18 inches of snow…. Did you make it out? 

      It sounds like you are on your way to having a blast.  Good for you.

      Yippee Skippee!  and Congratulations!

      Many blessings to you,

      Shelly in Switzerland

       

       

       

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      Yahoo!  I am so excited for you!  You are a walking miracle.  What wonderful news and great break-throughs happening right now.    I too got great news yesterday.  My tumors are still responding the to b-raf inhibator.  I have just past the 7 month mark. 

      Hey, my parents said that Spokane was going to get 18 inches of snow…. Did you make it out? 

      It sounds like you are on your way to having a blast.  Good for you.

      Yippee Skippee!  and Congratulations!

      Many blessings to you,

      Shelly in Switzerland

       

       

       

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      Bonnie Lea
      Participant

      OH DIAN    

       

      just such great news.    wheeeeeee   add to that  after my 7 years since DX I have finallty managed to get to one check up every 12 months  (of course they add  subject to change without notice)  and I still have to see my local derm every six months but no hobbithall in TORONTO for 12 twelve months  all that for measly old me  (onnly 2B)  but I am soooooo thrilled happy elated for you it has been a rough rough road recently and I am happy    love those two words you said.

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      Bonnie Lea
      Participant

      OH DIAN    

       

      just such great news.    wheeeeeee   add to that  after my 7 years since DX I have finallty managed to get to one check up every 12 months  (of course they add  subject to change without notice)  and I still have to see my local derm every six months but no hobbithall in TORONTO for 12 twelve months  all that for measly old me  (onnly 2B)  but I am soooooo thrilled happy elated for you it has been a rough rough road recently and I am happy    love those two words you said.

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      Rocco
      Participant
      Clinical Trial ParticipantNED

      Dian,

      This is such great news.  Congrats!  Celebrate hard, you've earned it.

      Rocco – Stage IV 2005

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      Rocco
      Participant
      Clinical Trial ParticipantNED

      Dian,

      This is such great news.  Congrats!  Celebrate hard, you've earned it.

      Rocco – Stage IV 2005

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      JenM
      Participant
      Have not posted in a while but wanted to say congratulations….that is wonderful news. What a way to start the New Year!

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      JenM
      Participant
      Have not posted in a while but wanted to say congratulations….that is wonderful news. What a way to start the New Year!

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      James from Sydney
      Participant

      Dian what great words to hear from the Doctor and such great words for us to read. So so happy for you!

      best wishes

      James

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      James from Sydney
      Participant

      Dian what great words to hear from the Doctor and such great words for us to read. So so happy for you!

      best wishes

      James

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      DebbieH
      Participant

      SO happy to hear this, dian!!!  I think your music is the best therapy for you!  I know you'll have lots of fun on your trip, especially now with this wonderful news.

      Deb

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      DebbieH
      Participant

      SO happy to hear this, dian!!!  I think your music is the best therapy for you!  I know you'll have lots of fun on your trip, especially now with this wonderful news.

      Deb

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      jJackie W
      Participant

      Hey Dian, what wonderful news.  That's what I call starting the New Year right.

       

      Hugs,

      Jackie W

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      jJackie W
      Participant

      Hey Dian, what wonderful news.  That's what I call starting the New Year right.

       

      Hugs,

      Jackie W

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        Jerry from Cape Cod
        Participant

        JACKIE!!!!!!!!!!

        Is that really you.  I didn't expect to see you around for a few months. I hope the trip was good and that you are settling in for the winter.

         

        Jerry from Cape Cod

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        Jerry from Cape Cod
        Participant

        JACKIE!!!!!!!!!!

        Is that really you.  I didn't expect to see you around for a few months. I hope the trip was good and that you are settling in for the winter.

         

        Jerry from Cape Cod

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      ChrisB
      Participant

      Glad to hear such wonderful news Dian!!

       

      Chris

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      ChrisB
      Participant

      Glad to hear such wonderful news Dian!!

       

      Chris

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      BethA in VA
      Participant

      This is great news!  I am so happy for you.  Keep celebrating.  Beth 3/B

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      BethA in VA
      Participant

      This is great news!  I am so happy for you.  Keep celebrating.  Beth 3/B

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      LV
      Participant

      Great news! I'm so happy for you!

      Enjoy it all!

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      LV
      Participant

      Great news! I'm so happy for you!

      Enjoy it all!

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      joy_
      Participant

      So happy for you!  Love all the good news I'm reading here today! 

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      joy_
      Participant

      So happy for you!  Love all the good news I'm reading here today! 

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      carol b
      Participant

      I am so HAPPY for you. I hope im a walking miracle too and we get together and all the others in remission and walk walk walk walk…omg you give so much hope to me for some reason..im all jittery inside..happy day for you,,,forever

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      carol b
      Participant

      I am so HAPPY for you. I hope im a walking miracle too and we get together and all the others in remission and walk walk walk walk…omg you give so much hope to me for some reason..im all jittery inside..happy day for you,,,forever

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      Jenjen
      Participant

      That is amazing news dian! You deserve to celebrate! :)

       

      Jenjen 3a NED 17 months

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      Jenjen
      Participant

      That is amazing news dian! You deserve to celebrate! :)

       

      Jenjen 3a NED 17 months

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      Jenjen
      Participant

      That is amazing news dian! You deserve to celebrate! :)

       

      Jenjen 3a NED 17 months

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      Jenjen
      Participant

      That is amazing news dian! You deserve to celebrate! :)

       

      Jenjen 3a NED 17 months

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      NancyGM
      Participant

      Dian, Huge congrats to you on your wonderful news!! I will be 4 years out from stage IV and 3 years NED on Monday. I can relate to what you said about not quite feeling like a miracle compred to others…If you ever are heading east on I-90 come and meet me for coffee in Missoula. Have a lovely time in Hawaii!

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      NancyGM
      Participant

      Dian, Huge congrats to you on your wonderful news!! I will be 4 years out from stage IV and 3 years NED on Monday. I can relate to what you said about not quite feeling like a miracle compred to others…If you ever are heading east on I-90 come and meet me for coffee in Missoula. Have a lovely time in Hawaii!

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      MaryD
      Participant

      Fantastic news Dian!   And the best part of all  ..is that you know how to live!

      Enjoy!!

      Mary

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      MaryD
      Participant

      Fantastic news Dian!   And the best part of all  ..is that you know how to live!

      Enjoy!!

      Mary

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        Vermont_Donna
        Participant

        YAHOO!!! Such fantastic news! You go girl! You are an inspiration! Live life with GUSTO!!

        Vermont_Donna

        stage 3a

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        Vermont_Donna
        Participant

        YAHOO!!! Such fantastic news! You go girl! You are an inspiration! Live life with GUSTO!!

        Vermont_Donna

        stage 3a

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      LynnLuc
      Participant

      awesome  awesome

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      LynnLuc
      Participant

      awesome  awesome

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      Amy Busby
      Participant

      yippee!!!!  I am so happy for you dian – enjoy.  : )

      love,

      Amy

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      Amy Busby
      Participant

      yippee!!!!  I am so happy for you dian – enjoy.  : )

      love,

      Amy

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      mike_nj
      Participant

      Hi Dian

      Very glad to see an all clear report.  I  bet you are strumming away and playing your music.

      See you in chat sometimes and stay well

      Mike from NJ

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      mike_nj
      Participant

      Hi Dian

      Very glad to see an all clear report.  I  bet you are strumming away and playing your music.

      See you in chat sometimes and stay well

      Mike from NJ

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