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scan results-AMAZING

Forums General Melanoma Community scan results-AMAZING

  • Post
    Ali
    Participant

      Background: radiation and IL-2 in January.  Finished end of May.  End of June found 25 brain mets, and cancer all over the body.  One dose of IPI, began Temodar same day.  12 week post IPI scans came back today:

      Background: radiation and IL-2 in January.  Finished end of May.  End of June found 25 brain mets, and cancer all over the body.  One dose of IPI, began Temodar same day.  12 week post IPI scans came back today:

      The nurse practitioner came into the room with the biggest smile on her face.  "Good news?"  I ask, as my smile starts matching hers.  "Yes, just read it."  She handed me the print out from the radiologist.

      MRI Brain wwo Cont

      "Just skip to the end."

      IMPRESSION:

      Interval near complete resolution of enhancement associated with multiple metastatic lesions.  Very faint residual enhancement associated with a right frontal parafalcine mass.  No new enhancing lesions, acute ischemia, or hemorrhagic metastases.

      Me (kind of tearing up): "So this is uncommon, yes?" 

      Her: "This like…never happens." 

      She hands me the other report.

      PET CT Whole Body

      Again I skip the bottom.

      Impression:
      1.  Marked interval improvement suggesting treatement response having demonstrated between 50 and 100 hypermetabolic lesions on prior imaging, now demonstrating 4 hypermetabolic lesions.  Lesions include a right adrenal nodule, nodule superior to the right kidney, anterior mediastinal nodule, and right axillary node.
      2.  Increased activity withing the right maxilla consistent with periodotal disease.  
      3.  Multiple small metastatic lesions demonstrated on the prior MR of the brain are too small to characterize by PET.

      You read that right.  4 tumors left.  None of them in the brain.

      ARE YOU KIDDING ME???  I am still in shock.  I know I still have cancer, but lots less, and nothing new.  Such a good day for my little family!  Had to share!

    Viewing 71 reply threads
    • Replies
        deardad
        Participant

          ALI……THAT'S FANTASTIC!!!

          I'm tearing up for you….

          Wow I hope that's the IPI doing it's magic, really great news.

          Keep kicking it!

          Hope the rest die too.

          All the best.

          Nahmi from Melbourne

          deardad
          Participant

            ALI……THAT'S FANTASTIC!!!

            I'm tearing up for you….

            Wow I hope that's the IPI doing it's magic, really great news.

            Keep kicking it!

            Hope the rest die too.

            All the best.

            Nahmi from Melbourne

            deardad
            Participant

              ALI……THAT'S FANTASTIC!!!

              I'm tearing up for you….

              Wow I hope that's the IPI doing it's magic, really great news.

              Keep kicking it!

              Hope the rest die too.

              All the best.

              Nahmi from Melbourne

              hope4cure1
              Participant

                Oh gosh, Ali.  Nahmi ad I are on the same wave length……..your post bring really happy tears.  Thank you!!!!

                Hope

                hope4cure1
                Participant

                  Oh gosh, Ali.  Nahmi ad I are on the same wave length……..your post bring really happy tears.  Thank you!!!!

                  Hope

                  hope4cure1
                  Participant

                    Oh gosh, Ali.  Nahmi ad I are on the same wave length……..your post bring really happy tears.  Thank you!!!!

                    Hope

                    aldakota22
                    Participant

                      You GO Girl.Totally AWESOME news.Love the good posts.Keep them comming.Will keep you in my prayers.Beat the Beast .   Al

                      aldakota22
                      Participant

                        You GO Girl.Totally AWESOME news.Love the good posts.Keep them comming.Will keep you in my prayers.Beat the Beast .   Al

                        aldakota22
                        Participant

                          You GO Girl.Totally AWESOME news.Love the good posts.Keep them comming.Will keep you in my prayers.Beat the Beast .   Al

                          Richard_K
                          Participant
                            Wow. That is great news to read.
                            Dick
                            Richard_K
                            Participant
                              Wow. That is great news to read.
                              Dick
                              Richard_K
                              Participant
                                Wow. That is great news to read.
                                Dick
                                Owl
                                Participant

                                  Ali, moved to tears! So happy for you, been following your story the last weeks.

                                  Jenny

                                  Owl
                                  Participant

                                    Ali, moved to tears! So happy for you, been following your story the last weeks.

                                    Jenny

                                    Owl
                                    Participant

                                      Ali, moved to tears! So happy for you, been following your story the last weeks.

                                      Jenny

                                      rosa1
                                      Participant
                                        Ali, you brought tears to my eyes. This is such a wonderful thing, hope and pray for continued tumor shrinking. Keep the faith!

                                        God bless!

                                        rosa1
                                        Participant
                                          Ali, you brought tears to my eyes. This is such a wonderful thing, hope and pray for continued tumor shrinking. Keep the faith!

                                          God bless!

                                          rosa1
                                          Participant
                                            Ali, you brought tears to my eyes. This is such a wonderful thing, hope and pray for continued tumor shrinking. Keep the faith!

                                            God bless!

                                            Linny
                                            Participant

                                              What FANTASTIC news!!! You've been through so much. I pray that whatever you're doing zaps the remaining 4 tumors.

                                              Linny
                                              Participant

                                                What FANTASTIC news!!! You've been through so much. I pray that whatever you're doing zaps the remaining 4 tumors.

                                                Linny
                                                Participant

                                                  What FANTASTIC news!!! You've been through so much. I pray that whatever you're doing zaps the remaining 4 tumors.

                                                    Phil S
                                                    Participant
                                                      Ali, You dont even know the JOY your post gave me, it is beyond words the happiness I feel for you, your husband, and your boys. Keep up the good fight, you are doing something right! We all want to believe in miracles, and today you showed us a wonderful glimmer! Thanks so much for sharing your journey, now go out and take a nice long drive! God bless, Valerie (Phil’s wife)
                                                      Phil S
                                                      Participant
                                                        Ali, You dont even know the JOY your post gave me, it is beyond words the happiness I feel for you, your husband, and your boys. Keep up the good fight, you are doing something right! We all want to believe in miracles, and today you showed us a wonderful glimmer! Thanks so much for sharing your journey, now go out and take a nice long drive! God bless, Valerie (Phil’s wife)
                                                        Phil S
                                                        Participant
                                                          Ali, You dont even know the JOY your post gave me, it is beyond words the happiness I feel for you, your husband, and your boys. Keep up the good fight, you are doing something right! We all want to believe in miracles, and today you showed us a wonderful glimmer! Thanks so much for sharing your journey, now go out and take a nice long drive! God bless, Valerie (Phil’s wife)
                                                        lhaley
                                                        Participant

                                                          I am so happy for you!   Dancing for you.

                                                          Linda

                                                          lhaley
                                                          Participant

                                                            I am so happy for you!   Dancing for you.

                                                            Linda

                                                            lhaley
                                                            Participant

                                                              I am so happy for you!   Dancing for you.

                                                              Linda

                                                              awillett1991
                                                              Participant
                                                                Congrats Ali and thanks for posting this. I am starting IPI soon since Zel has failed after 5 mos and I needed to hear this today!

                                                                awillett1991
                                                                Participant
                                                                  Congrats Ali and thanks for posting this. I am starting IPI soon since Zel has failed after 5 mos and I needed to hear this today!

                                                                  awillett1991
                                                                  Participant
                                                                    Congrats Ali and thanks for posting this. I am starting IPI soon since Zel has failed after 5 mos and I needed to hear this today!

                                                                    mom3girlsFL
                                                                    Participant

                                                                      Ali,

                                                                      SOOO HAPPY for you!  Great news!

                                                                      ๐Ÿ™‚ Laurie

                                                                      mom3girlsFL
                                                                      Participant

                                                                        Ali,

                                                                        SOOO HAPPY for you!  Great news!

                                                                        ๐Ÿ™‚ Laurie

                                                                        mom3girlsFL
                                                                        Participant

                                                                          Ali,

                                                                          SOOO HAPPY for you!  Great news!

                                                                          ๐Ÿ™‚ Laurie

                                                                          Kim41
                                                                          Participant

                                                                            Hi Ali, I am so happy for you. I have been following your story for the last year. Wonderful news.  Kim

                                                                                                                                                                                

                                                                            Kim41
                                                                            Participant

                                                                              Hi Ali, I am so happy for you. I have been following your story for the last year. Wonderful news.  Kim

                                                                                                                                                                                  

                                                                              Kim41
                                                                              Participant

                                                                                Hi Ali, I am so happy for you. I have been following your story for the last year. Wonderful news.  Kim

                                                                                                                                                                                    

                                                                                madeclaire
                                                                                Participant

                                                                                  Ali,  I am so happy for you and pray for continued great results.  This gives me so much hope.  Thank you for posting.

                                                                                   

                                                                                  Madeline from Chicago

                                                                                  madeclaire
                                                                                  Participant

                                                                                    Ali,  I am so happy for you and pray for continued great results.  This gives me so much hope.  Thank you for posting.

                                                                                     

                                                                                    Madeline from Chicago

                                                                                    madeclaire
                                                                                    Participant

                                                                                      Ali,  I am so happy for you and pray for continued great results.  This gives me so much hope.  Thank you for posting.

                                                                                       

                                                                                      Madeline from Chicago

                                                                                      Rebecca and Bob
                                                                                      Participant

                                                                                        Ali,

                                                                                         

                                                                                        WOW! The best news, so happy for you and your family. I hope you did a little something to celebrate because you deserve it!

                                                                                         

                                                                                        Rebecca

                                                                                          NYKaren
                                                                                          Participant

                                                                                            Ali,

                                                                                            Fantastic news.  I'm so happy for you and your family.  Lots of tissues being used today.

                                                                                            big hugs,

                                                                                            karen

                                                                                            NYKaren
                                                                                            Participant

                                                                                              Ali,

                                                                                              Fantastic news.  I'm so happy for you and your family.  Lots of tissues being used today.

                                                                                              big hugs,

                                                                                              karen

                                                                                              NYKaren
                                                                                              Participant

                                                                                                Ali,

                                                                                                Fantastic news.  I'm so happy for you and your family.  Lots of tissues being used today.

                                                                                                big hugs,

                                                                                                karen

                                                                                              Rebecca and Bob
                                                                                              Participant

                                                                                                Ali,

                                                                                                 

                                                                                                WOW! The best news, so happy for you and your family. I hope you did a little something to celebrate because you deserve it!

                                                                                                 

                                                                                                Rebecca

                                                                                                Rebecca and Bob
                                                                                                Participant

                                                                                                  Ali,

                                                                                                   

                                                                                                  WOW! The best news, so happy for you and your family. I hope you did a little something to celebrate because you deserve it!

                                                                                                   

                                                                                                  Rebecca

                                                                                                  H555
                                                                                                  Participant

                                                                                                    that is outstanding. My oncologist did something similar 8 weeks ago (I'm on Zelboraf) and we were just shocked, tearful and thankful as I k now you are. Congratulations!

                                                                                                      Tina D
                                                                                                      Participant

                                                                                                        YES!!! This is wonderful news!! So very very happy for you. Truly amazinglaugh

                                                                                                        Tina

                                                                                                        Tina D
                                                                                                        Participant

                                                                                                          YES!!! This is wonderful news!! So very very happy for you. Truly amazinglaugh

                                                                                                          Tina

                                                                                                          Tina D
                                                                                                          Participant

                                                                                                            YES!!! This is wonderful news!! So very very happy for you. Truly amazinglaugh

                                                                                                            Tina

                                                                                                          H555
                                                                                                          Participant

                                                                                                            that is outstanding. My oncologist did something similar 8 weeks ago (I'm on Zelboraf) and we were just shocked, tearful and thankful as I k now you are. Congratulations!

                                                                                                            H555
                                                                                                            Participant

                                                                                                              that is outstanding. My oncologist did something similar 8 weeks ago (I'm on Zelboraf) and we were just shocked, tearful and thankful as I k now you are. Congratulations!

                                                                                                              triciad
                                                                                                              Participant

                                                                                                                Ali,

                                                                                                                God bless you!  This is such wonderful news.  My prayers are with you for continued success!

                                                                                                                Tricia

                                                                                                                triciad
                                                                                                                Participant

                                                                                                                  Ali,

                                                                                                                  God bless you!  This is such wonderful news.  My prayers are with you for continued success!

                                                                                                                  Tricia

                                                                                                                  triciad
                                                                                                                  Participant

                                                                                                                    Ali,

                                                                                                                    God bless you!  This is such wonderful news.  My prayers are with you for continued success!

                                                                                                                    Tricia

                                                                                                                    gabsound
                                                                                                                    Participant
                                                                                                                      Ali,

                                                                                                                      Congratulations! I wonder if combining radiation with other treatment is what did the trick. I’m so happy to hear your good news. Thanks for sharing.

                                                                                                                      Julie in las Vegas

                                                                                                                      gabsound
                                                                                                                      Participant
                                                                                                                        Ali,

                                                                                                                        Congratulations! I wonder if combining radiation with other treatment is what did the trick. I’m so happy to hear your good news. Thanks for sharing.

                                                                                                                        Julie in las Vegas

                                                                                                                        gabsound
                                                                                                                        Participant
                                                                                                                          Ali,

                                                                                                                          Congratulations! I wonder if combining radiation with other treatment is what did the trick. I’m so happy to hear your good news. Thanks for sharing.

                                                                                                                          Julie in las Vegas

                                                                                                                          s Mom
                                                                                                                          Participant

                                                                                                                            YAY!!  So good to hear that you are responding!!  Stay tough – God Bless!!

                                                                                                                            Jeff's Mom (Bridgette)

                                                                                                                            s Mom
                                                                                                                            Participant

                                                                                                                              YAY!!  So good to hear that you are responding!!  Stay tough – God Bless!!

                                                                                                                              Jeff's Mom (Bridgette)

                                                                                                                              s Mom
                                                                                                                              Participant

                                                                                                                                YAY!!  So good to hear that you are responding!!  Stay tough – God Bless!!

                                                                                                                                Jeff's Mom (Bridgette)

                                                                                                                                benp
                                                                                                                                Participant

                                                                                                                                  Wow, that is amazing! Congratulations! That kind of news is really motivating, hope to have some similar news myself soon.

                                                                                                                                  benp
                                                                                                                                  Participant

                                                                                                                                    Wow, that is amazing! Congratulations! That kind of news is really motivating, hope to have some similar news myself soon.

                                                                                                                                    benp
                                                                                                                                    Participant

                                                                                                                                      Wow, that is amazing! Congratulations! That kind of news is really motivating, hope to have some similar news myself soon.

                                                                                                                                      MaryD
                                                                                                                                      Participant

                                                                                                                                        Oh my gosh Ali – that is just AMAZING news!     I'm so happy that you've had such incredible results and what an encouraging update!     Hoping that you go out and have a huge celebration with your family.

                                                                                                                                        Sending good thoughts for those great results to keep on coming!

                                                                                                                                        Best regards,

                                                                                                                                        Mary

                                                                                                                                        MaryD
                                                                                                                                        Participant

                                                                                                                                          Oh my gosh Ali – that is just AMAZING news!     I'm so happy that you've had such incredible results and what an encouraging update!     Hoping that you go out and have a huge celebration with your family.

                                                                                                                                          Sending good thoughts for those great results to keep on coming!

                                                                                                                                          Best regards,

                                                                                                                                          Mary

                                                                                                                                          MaryD
                                                                                                                                          Participant

                                                                                                                                            Oh my gosh Ali – that is just AMAZING news!     I'm so happy that you've had such incredible results and what an encouraging update!     Hoping that you go out and have a huge celebration with your family.

                                                                                                                                            Sending good thoughts for those great results to keep on coming!

                                                                                                                                            Best regards,

                                                                                                                                            Mary

                                                                                                                                            audgator
                                                                                                                                            Participant

                                                                                                                                              Gosh, too bad about the periodotal disease…JUST KIDDING!  Great News!  Very happy for you!   Dan

                                                                                                                                              audgator
                                                                                                                                              Participant

                                                                                                                                                Gosh, too bad about the periodotal disease…JUST KIDDING!  Great News!  Very happy for you!   Dan

                                                                                                                                                audgator
                                                                                                                                                Participant

                                                                                                                                                  Gosh, too bad about the periodotal disease…JUST KIDDING!  Great News!  Very happy for you!   Dan

                                                                                                                                                  Dgentz
                                                                                                                                                  Participant
                                                                                                                                                    Fantastic news!!!
                                                                                                                                                    Dgentz
                                                                                                                                                    Participant
                                                                                                                                                      Fantastic news!!!
                                                                                                                                                      Dgentz
                                                                                                                                                      Participant
                                                                                                                                                        Fantastic news!!!
                                                                                                                                                        Congratulations!!! Truly amazing that IPI is! I had all 4doses and have been NED for 8 months now! Just awesome news!!!!
                                                                                                                                                        Congratulations!!! Truly amazing that IPI is! I had all 4doses and have been NED for 8 months now! Just awesome news!!!!
                                                                                                                                                        Congratulations!!! Truly amazing that IPI is! I had all 4doses and have been NED for 8 months now! Just awesome news!!!!
                                                                                                                                                        rbruce
                                                                                                                                                        Participant

                                                                                                                                                          Awesome news Ali.  As soon as you get over the shock, run your butt off!  There are more and more good days like this for those of us with M and soon we will all be able to share in the joy of NED!  God Bless, Robert

                                                                                                                                                            Karin L
                                                                                                                                                            Participant

                                                                                                                                                              Ali….I think of you and pray for you everyday.  This is such AWESOME news!!!!  Now don't disappear on us but go enjoy those boys and hubby and stop in once in a while. 

                                                                                                                                                               

                                                                                                                                                              Karin

                                                                                                                                                              Karin L
                                                                                                                                                              Participant

                                                                                                                                                                Ali….I think of you and pray for you everyday.  This is such AWESOME news!!!!  Now don't disappear on us but go enjoy those boys and hubby and stop in once in a while. 

                                                                                                                                                                 

                                                                                                                                                                Karin

                                                                                                                                                                Karin L
                                                                                                                                                                Participant

                                                                                                                                                                  Ali….I think of you and pray for you everyday.  This is such AWESOME news!!!!  Now don't disappear on us but go enjoy those boys and hubby and stop in once in a while. 

                                                                                                                                                                   

                                                                                                                                                                  Karin

                                                                                                                                                                rbruce
                                                                                                                                                                Participant

                                                                                                                                                                  Awesome news Ali.  As soon as you get over the shock, run your butt off!  There are more and more good days like this for those of us with M and soon we will all be able to share in the joy of NED!  God Bless, Robert

                                                                                                                                                                  rbruce
                                                                                                                                                                  Participant

                                                                                                                                                                    Awesome news Ali.  As soon as you get over the shock, run your butt off!  There are more and more good days like this for those of us with M and soon we will all be able to share in the joy of NED!  God Bless, Robert

                                                                                                                                                                    rrrule32
                                                                                                                                                                    Participant

                                                                                                                                                                      Ali, I've been following your story for some time now because I've been using you as an example to my oncologist.  My fiance, Kaitlyn, 23, has Stage IV Melanoma.  It's in her brain.  Her Zelboraf recently stopped working.  Temodar was one of the options her oncologist is considering.  But, I don't want to do Temodar unless we do Ipilimumab with it at the same time. 

                                                                                                                                                                      Can you tell me, how did you convince your oncologist to let you go with both treatments?  Also, did your insurance cover both, or just one?

                                                                                                                                                                      Thank you so much in advance for the information, and congratulations on your great news. 

                                                                                                                                                                      Travis

                                                                                                                                                                      rrrule32
                                                                                                                                                                      Participant

                                                                                                                                                                        Ali, I've been following your story for some time now because I've been using you as an example to my oncologist.  My fiance, Kaitlyn, 23, has Stage IV Melanoma.  It's in her brain.  Her Zelboraf recently stopped working.  Temodar was one of the options her oncologist is considering.  But, I don't want to do Temodar unless we do Ipilimumab with it at the same time. 

                                                                                                                                                                        Can you tell me, how did you convince your oncologist to let you go with both treatments?  Also, did your insurance cover both, or just one?

                                                                                                                                                                        Thank you so much in advance for the information, and congratulations on your great news. 

                                                                                                                                                                        Travis

                                                                                                                                                                        rrrule32
                                                                                                                                                                        Participant

                                                                                                                                                                          Ali, I've been following your story for some time now because I've been using you as an example to my oncologist.  My fiance, Kaitlyn, 23, has Stage IV Melanoma.  It's in her brain.  Her Zelboraf recently stopped working.  Temodar was one of the options her oncologist is considering.  But, I don't want to do Temodar unless we do Ipilimumab with it at the same time. 

                                                                                                                                                                          Can you tell me, how did you convince your oncologist to let you go with both treatments?  Also, did your insurance cover both, or just one?

                                                                                                                                                                          Thank you so much in advance for the information, and congratulations on your great news. 

                                                                                                                                                                          Travis

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