Just got results from my PET/CT, first one since starting Ipi/Nivo, and the main area of concern was the groin lymph node that tested positive in October sending me back down the path of needing a better treatment plan… and that lymph node is now very small and very little uptake, so much that they believe there isn't much, if any, cancer in that lymph node anymore. Woo! Happy birthday to me!
I've been dealing with fevers nightly for over 2 weeks (slowly getting better and less intense) and feeling pretty crappy, so I expected to hear there were a lot of reactive lymph nodes.. and yes, a bunch. My neck, clavicle, chest, armpits, abdomen.. basically all over my lymph nodes are pretty pissed off. But, all looking reactive. My spleen is a little enlarged as well. Liver enzymes are 3 times the norm so my first Nivo only infusion was cancelled today.. next one is in two weeks.. so hopefully this extra time will help my body calm down and not be so mad at me.
Tumor board will still review my report tomorrow, just good to get lots of good doc's opinions and see what they think too. The only area they might want to investigate again would be my left armpit lymph node since that was another one that was questionable back in Sept and it's grown since then. But, I won't worry about it if they don't bring it up.
My 30th birthday is on Saturday and I'm ready to just feel better and start the next decade of my life!
question: This might be a silly question and I can just email my onc, but I am having a birthday party next weekend and it's a wine and cheese theme.. because those are my 2 favorite things… but, with my liver being a little angry, is it safe to have some wine?
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