I’m NED!

This topic has 40 replies, 35 voices, and was last updated 5 years, 12 months ago by MelanomaMike.

Post

- April 17, 2018 at 5:14 pm
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TexMelanomex
Participant
Warriors,

I just spoke with Dr. Amaria and I am NED! Nothing on the scans, nothing. 15 months after diagnosis, 4 rounds of PV-10 and pending (I’m not even sure today which round) another infusion of Pembro victory has been declared on this front. Still in a bit of shock over the news (in such a good way). This enemy can be beat!

Please stay in the fight Warriors, fight with your entire body & soul!! This enemy has weaknesses and we need to find and exploit the weaknesses,

Tex

Viewing 29 reply threads

Replies

- - April 17, 2018 at 5:27 pm
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  gopher38
  Participant
  Outstanding.
  - April 18, 2018 at 1:15 am
    
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    dessie
    Participant
    
    That is super duper and gives everyone hope…. Congrats and thx for sharing!!
    
    dessie
- - April 17, 2018 at 5:48 pm
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  Tracyyy
  Participant
  Seing your post made me smile, so happy for you! Congrats! Wish you many many years of NED!
  - April 17, 2018 at 6:07 pm
    
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    Newmanbell
    Participant
    
    This is one big family and I have followed your history. I have checked back 2x today just to see how you made you. I love stories like this. Congrats!!!!!!!!!!!!!!!!!!!!
    
    Donna (wife of Stage 3b hubby)
- - April 17, 2018 at 6:14 pm
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  BethL
  Participant
  FANTASTIC NEWS!! So happy to hear this. Been following your journey, and so glad for you!
  
  take care-beth
- - April 17, 2018 at 6:48 pm
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  Fen
  Participant
  Wonderful news!
- - April 17, 2018 at 7:06 pm
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  jbronicki
  Participant
  YES! That's the news we wanted to hear! Today is a good day!
  - April 17, 2018 at 8:12 pm
    
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    Kevin2016
    Participant
    
    Great news!! So happy for you!!
    
    Kevin
- - April 17, 2018 at 8:32 pm
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  BillB
  Participant
  Congrats, great news for sure!
- - April 17, 2018 at 8:40 pm
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  bjeans
  Participant
  Best three letters ever: NED! Congrats. BTW, when I found this forum after my husband was diagnosed, your screen name let me laugh for the first time when reading about melanoma. So thanks for that!
  
  Beth
- - April 17, 2018 at 8:43 pm
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  ed williams
  Participant
  That is great news Tex!!! Now, I have been meaning to ask you a question for a while now, so where exactly are you from Tex???
  - April 18, 2018 at 2:33 pm
    
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    TexMelanomex
    Participant
    
    The great state of Texas..of course!! Central Texas to be more specific 😉
  - April 18, 2018 at 3:41 pm
    
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    ed williams
    Participant
    
    I was just trying set you up for a "Forrest Gump" movie Quote!!!
- - April 17, 2018 at 9:00 pm
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  Nick C
  Participant
  Way to go! Those are words we all are striving for!
  - April 17, 2018 at 10:32 pm
    
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    vivian
    Participant
    
    Wonderful news! So happy for you, your family and all of us!
- - April 17, 2018 at 10:53 pm
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  ABlazek
  Participant
  Hooray! What incredible news — Congrats to an inspiring warrior! Thank you for sharing your battle and encouraging everyone here.
  
  Anne
- - April 18, 2018 at 12:27 am
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  jennunicorn
  Participant
  YESSS!!!!! Doing the happy dance for you Tex!!
- - April 18, 2018 at 12:38 am
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  Coragirl
  Participant
  Yay!!!!! So happy for you.
- - April 18, 2018 at 2:24 am
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  Mark_DC
  Participant
  Well done Tex, great news! I am on TVEC plus pembro and it seems to be working but only very slowly (and difficult to get insurance approval) – how easy was it to find the pv10: it seems great!
- - April 18, 2018 at 2:49 am
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  Casitas1
  Participant
  Sweeeeet! Keep it up!
  
  Paul
- - April 18, 2018 at 3:14 am
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  CancerSpouse
  Participant
  Could not be happier for you, Tex! Take a victory lap. ~ Carol
- - April 18, 2018 at 3:39 am
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  GeoTony
  Participant
  Go Tex go, with a little help form PV-10
  
  Great news
- - April 18, 2018 at 7:57 am
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  obtu.bt
  Participant
  great news Tex, very happy for you and wish the same for rest of us.
  
  congrat Warrior
- - April 18, 2018 at 11:32 am
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  rosa1
  Participant
  Great news, congrats! To many, many more NED years!!!!
  Rosa
- - April 18, 2018 at 1:04 pm
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  Bubbles
  Participant
  Awesome-NESSSSS!!!!! Great news. Way to rock it out, my dear rattie!!!! love, c
- - April 18, 2018 at 1:51 pm
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  jagstter
  Participant
  Congratulations, Tex! Wonderful news 😉
- - April 18, 2018 at 2:30 pm
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  TexMelanomex
  Participant
  Thank you ALL for the well wishes and the congatulations! I will absolutely remain engaged in the fight because the war has not been won, not until every one of you are rid of this dirty bastard of an enemy. Please, please, please stay in the fight Warriors!! The battlefield is changing at warp speed and something that is not available today as a treatment might be available tomorrow. I have a healthy respect for this enemy but more powerfully, I have a hatred of it. My approach throughout this journey and continuing forward is to be the hardest SOB this disease has ever tried to kill. Each of us have to use our own strategy to fight and win, but as long as we are in the fight we have the opportunity to win. The Warriors here have strengthened me (more than many of you know), your victories and your struggles gave me incredible motivation and resolve over the past 15 months. I know NED status is not always permanent so I remain vigilant and engaged. I will of course, celebrate briefly, and then fortify my position again. The real celebration comes when we no longer have a need for this forum and we talk about the old days when there was no cure for melanoma. I know that many of my fellow warriors are deep in battle right now and my prayers and support are with you whether I stay NED for a month, a decade, or for the rest of my life.
  
  WARRIOR ON!!
  - April 22, 2018 at 7:53 am
    
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    MelanomaMike
    Participant
    
    Yeeha! Thats of course AWESOME NEWS! (I already knew your CT report days ago) but still felt i should support you here on MRF as well haha..
    Like you said bro, continue this battle as if NED was a dream, do yer scans, look your “own” body over for suspicious bastards, eat well, and live everyday like its yer last….praise God & the makers of Pembro & PV-10 and to your whole team that treated you…
    Your Warrior Brother Mike
- - April 18, 2018 at 7:07 pm
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  Julie in SoCal
  Participant
  Wooohooooooooo!
  
  Doing a two legged happy dance for you!
  
  Thanks for sharing the news.
  
  Peace,
  
  Julie
  - April 19, 2018 at 2:36 am
    
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    Bubbles
    Participant
    
    All two both of them???!!! THAT is AWESOME!!! c
  - April 22, 2018 at 7:55 am
    
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    MelanomaMike
    Participant
    
    If your actually a cat, that dance would be funny…
- - April 18, 2018 at 8:14 pm
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  sister of patient
  Participant
  Great news Tex!! So happy for you 🙂 !!!! Well done!!! Best thoughts and wishes always!!
  
  Barb
- - April 19, 2018 at 12:26 am
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  SABKLYN
  Participant
  There's no news like good news – congrats!
- - April 19, 2018 at 4:32 pm
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  Hukill
  Participant
  Great news!! I also get treated in central Texas, VA hospital in San Antonio.
- - April 19, 2018 at 8:09 pm
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  Scooby123
  Participant
  That’s great news TeX . so happy for you .
  Scooby x
- - April 19, 2018 at 9:51 pm
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  betsyl
  Participant
  WOOT. Great news! Huge congrats!
  - April 20, 2018 at 1:47 pm
    
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    Susanlee528
    Participant
    
    That is so amazing!! That’s the kind of news that so many of us here need to read! The beast can (and will) be beaten!!
- - April 20, 2018 at 9:15 pm
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  BethPendley
  Participant
  I am SO THRILLED for this news!!! My father was just diagnosed early last week and I have been reading posts on this forum (including ALL of yours) as a source of encouragement. This is just such a great blessing – so happy for you! Have an amazing weekend!
  
  We are still waiting on scheduling of an appointment with MDA, but have one at Moffitt next Thursday so looks like we'll be starting our battle with them. I hope we have as good of an experience with our care there as you did with MDA!
- - April 20, 2018 at 9:17 pm
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  BethPendley
  Participant
  I am SO THRILLED for this news!!! My father was just diagnosed early last week and I have been reading posts on this forum (including ALL of yours) as a source of encouragement. This is just such a great blessing – so happy for you! Have an amazing weekend!
  
  We are still waiting on scheduling of an appointment with MDA, but have one at Moffitt next Thursday so looks like we'll be starting our battle with them. I hope we have as good of an experience with our care there as you did with MDA!
- - April 21, 2018 at 3:58 am
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  Rocco
  Participant
  Congrats, Tex! Such great news!
  
  -Rocco