MRF-Logo2019-Horizontal-RGB
2 years ago yesterday
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

2 years ago yesterday

› Forums › General Melanoma Community › 2 years ago yesterday

  • Post
    • June 20, 2011 at 1:48 am
    LynnLuc
    Participant

      Two years ago yesterday I had my biopsy at Mayo Clinic and they told me I had stage 4 melanoma. They also said I would be dead in 6-9 months. Happy to report I am still here and still NED. Had my latest scans on June 8 and my booster of MDX 1106!

      Two years ago yesterday I had my biopsy at Mayo Clinic and they told me I had stage 4 melanoma. They also said I would be dead in 6-9 months. Happy to report I am still here and still NED. Had my latest scans on June 8 and my booster of MDX 1106!

    Viewing 19 reply threads
    • Replies
        • June 20, 2011 at 2:05 am
        shellebrownies
        Participant

          Lynn, that's fantastic! And such an inspiration for those of us who have recently diagnosed  Stage IV loved ones. : )

          Michelle, wife of Don

          • June 20, 2011 at 2:05 am
          shellebrownies
          Participant

            Lynn, that's fantastic! And such an inspiration for those of us who have recently diagnosed  Stage IV loved ones. : )

            Michelle, wife of Don

            • June 20, 2011 at 5:39 am
            ChrisTheWilsonZoo
            Participant

              Congratulations!  Isn't it awesome to prove the doctors wrong!  May you continue to do so for many years to come.

              • June 20, 2011 at 5:39 am
              ChrisTheWilsonZoo
              Participant

                Congratulations!  Isn't it awesome to prove the doctors wrong!  May you continue to do so for many years to come.

                • June 20, 2011 at 10:40 am
                Kimmer
                Participant

                  Fantastic!  Throw down the gauntlet and come out the winner.  That's what I'm talkin' about!

                  Wishing you many more years of NEDness.

                  k.

                  • June 20, 2011 at 10:40 am
                  Kimmer
                  Participant

                    Fantastic!  Throw down the gauntlet and come out the winner.  That's what I'm talkin' about!

                    Wishing you many more years of NEDness.

                    k.

                      • June 20, 2011 at 11:00 am
                      Lisa13
                      Participant

                        Lynn,

                        I'm so happy for you and hope you continue to defy the odds and remain NED (it's possible!).

                        When I was diagnosed 2 weeks ago with Stage 4, I actually thanked my Dr that he didn't mention the 6-9 month timeframe. He said those were old stats and that new treatments were keeping people alive much longer – this will be the trend going forward in the years to come.   Infact, they suspect the typical lifespan of advanced melanoma patients will double within the next 5 years.

                        There is always hope!

                        Lisa

                        • June 20, 2011 at 11:00 am
                        Lisa13
                        Participant

                          Lynn,

                          I'm so happy for you and hope you continue to defy the odds and remain NED (it's possible!).

                          When I was diagnosed 2 weeks ago with Stage 4, I actually thanked my Dr that he didn't mention the 6-9 month timeframe. He said those were old stats and that new treatments were keeping people alive much longer – this will be the trend going forward in the years to come.   Infact, they suspect the typical lifespan of advanced melanoma patients will double within the next 5 years.

                          There is always hope!

                          Lisa

                          • June 21, 2011 at 4:03 am
                          LynnLuc
                          Participant

                            I have doubled already and being NED it gives me hope I can live much longer!

                            • June 21, 2011 at 4:03 am
                            LynnLuc
                            Participant

                              I have doubled already and being NED it gives me hope I can live much longer!

                              • June 21, 2011 at 4:13 pm
                              nicoli
                              Participant

                                I think I have read that the survival statistics are at least 10 years old.

                                Even though there hasn't been much advancement in melanoma care in the last 10 years, I think we are NOW seeing exciting breakthroughs.

                                I have to believe that many of US are ging to change those statistics. By living.

                                Nicki, Stage 3b

                                • June 21, 2011 at 4:13 pm
                                nicoli
                                Participant

                                  I think I have read that the survival statistics are at least 10 years old.

                                  Even though there hasn't been much advancement in melanoma care in the last 10 years, I think we are NOW seeing exciting breakthroughs.

                                  I have to believe that many of US are ging to change those statistics. By living.

                                  Nicki, Stage 3b

                                • June 20, 2011 at 12:27 pm
                                FormerCaregiver
                                Participant

                                  Congratulations on still having NED! You give us real hope that the statistics can
                                  continued to be defied!

                                  Frank from Australia

                                    • June 20, 2011 at 2:04 pm
                                    dawn dion
                                    Participant

                                      Rock on my friend – I am ever so excited for you!  I went for my 2nd set of scans since starting BRAF/MEK and everything is still shrinking.  YEA!  Hasn't spread anywhere else and I'm still kicking it to the curb.  6-9 months hmmm – it's been 8+ guess I better pack, cause I think I am going to be EXTREAMLY late for something – oh wait I'm not going ANYWHERE! 🙂  Keep kickin it my friend!

                                      Hugs and Smiles

                                      Dawn

                                      • June 21, 2011 at 12:02 am
                                      lhaley
                                      Participant

                                        Dawn,

                                        Glad to hear the great news! 

                                        Linda

                                        • June 21, 2011 at 12:02 am
                                        lhaley
                                        Participant

                                          Dawn,

                                          Glad to hear the great news! 

                                          Linda

                                          • June 20, 2011 at 2:04 pm
                                          dawn dion
                                          Participant

                                            Rock on my friend – I am ever so excited for you!  I went for my 2nd set of scans since starting BRAF/MEK and everything is still shrinking.  YEA!  Hasn't spread anywhere else and I'm still kicking it to the curb.  6-9 months hmmm – it's been 8+ guess I better pack, cause I think I am going to be EXTREAMLY late for something – oh wait I'm not going ANYWHERE! 🙂  Keep kickin it my friend!

                                            Hugs and Smiles

                                            Dawn

                                          • June 20, 2011 at 12:27 pm
                                          FormerCaregiver
                                          Participant

                                            Congratulations on still having NED! You give us real hope that the statistics can
                                            continued to be defied!

                                            Frank from Australia

                                            • June 20, 2011 at 2:03 pm
                                            Carol Taylor
                                            Participant

                                              What?! You defied your doctor and lived?! Hallelujah and you keep it up! Thanks for sharing and thanks for proving no one has the right or ability to put a cap on our days.

                                              Lord, in Your mercy, keep ned in Your daughter's life and mel away. Thank You for her ned time, may it continue. Amen and Amen!

                                              Grace and peace,

                                              Carol

                                              • June 20, 2011 at 2:03 pm
                                              Carol Taylor
                                              Participant

                                                What?! You defied your doctor and lived?! Hallelujah and you keep it up! Thanks for sharing and thanks for proving no one has the right or ability to put a cap on our days.

                                                Lord, in Your mercy, keep ned in Your daughter's life and mel away. Thank You for her ned time, may it continue. Amen and Amen!

                                                Grace and peace,

                                                Carol

                                                • June 20, 2011 at 3:42 pm
                                                Linny
                                                Participant

                                                  What great news!!! yesyesyesyesyesyes

                                                  Congratulations on proving those doctors wrong for the second year in a row.

                                                  Linda

                                                  • June 20, 2011 at 3:42 pm
                                                  Linny
                                                  Participant

                                                    What great news!!! yesyesyesyesyesyes

                                                    Congratulations on proving those doctors wrong for the second year in a row.

                                                    Linda

                                                    • June 20, 2011 at 4:03 pm
                                                    NYKaren
                                                    Participant

                                                      Lynn, that's wonderful news.  It's great to get such hope and inspiration.

                                                      Be well,

                                                      karen

                                                      • June 20, 2011 at 4:03 pm
                                                      NYKaren
                                                      Participant

                                                        Lynn, that's wonderful news.  It's great to get such hope and inspiration.

                                                        Be well,

                                                        karen

                                                        • June 20, 2011 at 10:20 pm
                                                        King
                                                        Participant

                                                          Great news!  Celebrate!  I have been Stage IV for almost 6 years now…not NED all the time but most of it.  Others need to know there are many long term Stage IV survivors out there.  And you and I just happen to be treated at the same facility (Moffitt).  I spent my day there.

                                                           

                                                          Stay Strong

                                                          King

                                                          Stage IV 7/05 Liver mets

                                                            • June 21, 2011 at 4:06 am
                                                            LynnLuc
                                                            Participant

                                                              I saw you from a distance one day…I heard you are a red head  and fiery!!! Dawna J told me that LOL

                                                              • June 22, 2011 at 3:01 am
                                                              King
                                                              Participant

                                                                LOL   Speak up next time.  I'd love to meet you. :)))

                                                                Stay Strong
                                                                Kathie

                                                                • June 22, 2011 at 3:01 am
                                                                King
                                                                Participant

                                                                  LOL   Speak up next time.  I'd love to meet you. :)))

                                                                  Stay Strong
                                                                  Kathie

                                                                  • June 21, 2011 at 4:06 am
                                                                  LynnLuc
                                                                  Participant

                                                                    I saw you from a distance one day…I heard you are a red head  and fiery!!! Dawna J told me that LOL

                                                                  • June 20, 2011 at 10:20 pm
                                                                  King
                                                                  Participant

                                                                    Great news!  Celebrate!  I have been Stage IV for almost 6 years now…not NED all the time but most of it.  Others need to know there are many long term Stage IV survivors out there.  And you and I just happen to be treated at the same facility (Moffitt).  I spent my day there.

                                                                     

                                                                    Stay Strong

                                                                    King

                                                                    Stage IV 7/05 Liver mets

                                                                    • June 21, 2011 at 12:05 am
                                                                    lhaley
                                                                    Participant

                                                                      Lynn,

                                                                      I am so thrilled for you!  Not only have you beat the odds, you have also kept on living!  Big move and new job!!   Keep going girlfriend!  Have you thought about sending a note to the Dr at the Mayo Clinic to let them know they were wrong!!!!   Might be an idea so they are a bit more up beat when they meet with another patient!

                                                                      Linda

                                                                      July 6th will be 5 years stage IV.  While I've had way to many recurrances during that time I'm still here and currenly NED!

                                                                      • June 21, 2011 at 12:05 am
                                                                      lhaley
                                                                      Participant

                                                                        Lynn,

                                                                        I am so thrilled for you!  Not only have you beat the odds, you have also kept on living!  Big move and new job!!   Keep going girlfriend!  Have you thought about sending a note to the Dr at the Mayo Clinic to let them know they were wrong!!!!   Might be an idea so they are a bit more up beat when they meet with another patient!

                                                                        Linda

                                                                        July 6th will be 5 years stage IV.  While I've had way to many recurrances during that time I'm still here and currenly NED!

                                                                          • June 21, 2011 at 4:07 am
                                                                          LynnLuc
                                                                          Participant

                                                                            yes It's time I wrote them again LOL…

                                                                            • June 21, 2011 at 4:07 am
                                                                            LynnLuc
                                                                            Participant

                                                                              yes It's time I wrote them again LOL…

                                                                            • October 2, 2011 at 8:00 am
                                                                            hughricf5
                                                                            Guest
                                                                              This really answered my problem, thank you!
                                                                              Cialis to buy new zealand greenmail Meridia Darkroom
                                                                              • October 2, 2011 at 8:00 am
                                                                              hughricf5
                                                                              Guest
                                                                                This really answered my problem, thank you!
                                                                                Cialis to buy new zealand greenmail Meridia Darkroom
                                                                            Viewing 19 reply threads
                                                                            • You must be logged in to reply to this topic.
                                                                            About the MRF Patient Forum

                                                                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                            Popular Topics