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  • Post
    • January 9, 2017 at 1:23 am
    JoshF
    Participant

    Hi Everyone! I'm sorry I haven't checked in and my wife told me Casagrayson sent her a message checking in on me. I appreciate everyone's concern. I've been hanging in there best I can. Not sure where I left off from last post but I've done 1 round of Keytruda and Abraxene. I've had good days and bad days. Unfortunately now I'm having I guess what would be called referred pain in right side from liver. Scan and next infusion is scheduled for this Thursday. Liver function tests aren't out of whack but I'm not sure if that means anything. There's still talk of starting TIL at end of month but I've got to get there first and meet all inclusion criteria. So I go day to day. I hate the discomfort in my side, scares me. Few weeks ago they said I'm not too far off from liver failure. We'll see, praying for some positive news in the future. Going to browse forum now…check in on Paul etc… Thank you all for you support, concerns and well wishes. Love you all.

    Josh

Viewing 56 reply threads
  • Replies
      • January 9, 2017 at 1:27 am
      Bubbles
      Participant

      Hey Joshie!!!  So happy to hear from you.  I know it all must be a scary mess, but you are one awesome dude!!  Hang in there.  Will have all fingers and toes crossed for you on Thursday! Love you bunches. Celeste

      • January 9, 2017 at 1:27 am
      Bubbles
      Participant

      Hey Joshie!!!  So happy to hear from you.  I know it all must be a scary mess, but you are one awesome dude!!  Hang in there.  Will have all fingers and toes crossed for you on Thursday! Love you bunches. Celeste

      • January 9, 2017 at 1:27 am
      Bubbles
      Participant

      Hey Joshie!!!  So happy to hear from you.  I know it all must be a scary mess, but you are one awesome dude!!  Hang in there.  Will have all fingers and toes crossed for you on Thursday! Love you bunches. Celeste

      • January 9, 2017 at 1:49 am
      Polymath
      Participant

      Hey Josh,

      Great to hear from you!  Forge ahead brother.

      Gary

      • January 9, 2017 at 1:49 am
      Polymath
      Participant

      Hey Josh,

      Great to hear from you!  Forge ahead brother.

      Gary

      • January 9, 2017 at 1:49 am
      Polymath
      Participant

      Hey Josh,

      Great to hear from you!  Forge ahead brother.

      Gary

      • January 9, 2017 at 1:51 am
      BrianP
      Participant

      Thanks for the update Josh.  Keeping you in my prayers especially next Thursday for your scans.  Hang in there.

      Brian

      • January 9, 2017 at 1:51 am
      BrianP
      Participant

      Thanks for the update Josh.  Keeping you in my prayers especially next Thursday for your scans.  Hang in there.

      Brian

      • January 9, 2017 at 1:51 am
      BrianP
      Participant

      Thanks for the update Josh.  Keeping you in my prayers especially next Thursday for your scans.  Hang in there.

      Brian

      • January 9, 2017 at 2:52 am
      jennunicorn
      Participant

      So happy to hear from you and always thinking good thoughts for you Josh!

      • January 9, 2017 at 2:52 am
      jennunicorn
      Participant

      So happy to hear from you and always thinking good thoughts for you Josh!

      • January 9, 2017 at 2:52 am
      jennunicorn
      Participant

      So happy to hear from you and always thinking good thoughts for you Josh!

      • January 9, 2017 at 4:05 am
      casagrayson
      Participant

      Thank you for checking in, Josh!  And thanks to your lovely wife for telling you (please assure her I'm not really a Facebook stalker blush).   I'm glad you are having some good days, and I hope you  were able to have some wonderful times with your family over the holidays.

      • January 9, 2017 at 4:05 am
      casagrayson
      Participant

      Thank you for checking in, Josh!  And thanks to your lovely wife for telling you (please assure her I'm not really a Facebook stalker blush).   I'm glad you are having some good days, and I hope you  were able to have some wonderful times with your family over the holidays.

      • January 9, 2017 at 4:05 am
      casagrayson
      Participant

      Thank you for checking in, Josh!  And thanks to your lovely wife for telling you (please assure her I'm not really a Facebook stalker blush).   I'm glad you are having some good days, and I hope you  were able to have some wonderful times with your family over the holidays.

      • January 9, 2017 at 5:22 am
      snow white
      Participant

      Oh Man am I happy to see your post!!!!!!!  Thank you so much for posting, I know you don't feel well.  i am so relieved that you are hanging in there, you made a really crappy week end on a positive note.  Hang in there Josh, we are ALL pulling for you!!!!!!! Keep the faith!

      XOXOXOXO Jen

      • January 9, 2017 at 5:22 am
      snow white
      Participant

      Oh Man am I happy to see your post!!!!!!!  Thank you so much for posting, I know you don't feel well.  i am so relieved that you are hanging in there, you made a really crappy week end on a positive note.  Hang in there Josh, we are ALL pulling for you!!!!!!! Keep the faith!

      XOXOXOXO Jen

      • January 9, 2017 at 5:22 am
      snow white
      Participant

      Oh Man am I happy to see your post!!!!!!!  Thank you so much for posting, I know you don't feel well.  i am so relieved that you are hanging in there, you made a really crappy week end on a positive note.  Hang in there Josh, we are ALL pulling for you!!!!!!! Keep the faith!

      XOXOXOXO Jen

      • January 9, 2017 at 5:22 am
      snow white
      Participant

      Oh Man am I happy to see your post!!!!!!!  Thank you so much for posting, I know you don't feel well.  i am so relieved that you are hanging in there, you made a really crappy week end on a positive note.  Hang in there Josh, we are ALL pulling for you!!!!!!! Keep the faith!

      XOXOXOXO Jen

      • January 9, 2017 at 5:22 am
      snow white
      Participant

      Oh Man am I happy to see your post!!!!!!!  Thank you so much for posting, I know you don't feel well.  i am so relieved that you are hanging in there, you made a really crappy week end on a positive note.  Hang in there Josh, we are ALL pulling for you!!!!!!! Keep the faith!

      XOXOXOXO Jen

      • January 9, 2017 at 5:22 am
      snow white
      Participant

      Oh Man am I happy to see your post!!!!!!!  Thank you so much for posting, I know you don't feel well.  i am so relieved that you are hanging in there, you made a really crappy week end on a positive note.  Hang in there Josh, we are ALL pulling for you!!!!!!! Keep the faith!

      XOXOXOXO Jen

      • January 9, 2017 at 6:24 am
      Casitas1
      Participant
      Keep on Josh!
      • January 9, 2017 at 6:24 am
      Casitas1
      Participant
      Keep on Josh!
      • January 9, 2017 at 6:24 am
      Casitas1
      Participant
      Keep on Josh!
      • January 9, 2017 at 9:21 am
      Jubes
      Participant

      What a relief to know you 'ok'. I really hope the liver problem gets sorted soon and you are more comfortable. Meanwhile day by day is good!

      anne-Louise 

      • January 9, 2017 at 9:21 am
      Jubes
      Participant

      What a relief to know you 'ok'. I really hope the liver problem gets sorted soon and you are more comfortable. Meanwhile day by day is good!

      anne-Louise 

      • January 9, 2017 at 9:21 am
      Jubes
      Participant

      What a relief to know you 'ok'. I really hope the liver problem gets sorted soon and you are more comfortable. Meanwhile day by day is good!

      anne-Louise 

      • January 9, 2017 at 11:46 am
      maperny
      Participant

      Hi Josh,

      Very pleased the plan is moving forward and  to hear from you.  Delighted TIL has not been taken off the table, praying and hoping for some positive steps on this combo for a few weeks so that you can kick this with TIL.

      You are so strong and inspiring for everyone and best wishes to your wife (I know her shoes very well).

      Maria

      • January 9, 2017 at 11:46 am
      maperny
      Participant

      Hi Josh,

      Very pleased the plan is moving forward and  to hear from you.  Delighted TIL has not been taken off the table, praying and hoping for some positive steps on this combo for a few weeks so that you can kick this with TIL.

      You are so strong and inspiring for everyone and best wishes to your wife (I know her shoes very well).

      Maria

      • January 9, 2017 at 11:46 am
      maperny
      Participant

      Hi Josh,

      Very pleased the plan is moving forward and  to hear from you.  Delighted TIL has not been taken off the table, praying and hoping for some positive steps on this combo for a few weeks so that you can kick this with TIL.

      You are so strong and inspiring for everyone and best wishes to your wife (I know her shoes very well).

      Maria

      • January 9, 2017 at 1:49 pm
      momof4boys
      Participant
      Thanks for the update Josh, as you can see we are all worried about you and hoping for the best! Your attitude is good and am glad you are just fighting one day at a time and not giving up. Something will work for you I just know it!
      • January 9, 2017 at 1:49 pm
      momof4boys
      Participant
      Thanks for the update Josh, as you can see we are all worried about you and hoping for the best! Your attitude is good and am glad you are just fighting one day at a time and not giving up. Something will work for you I just know it!
      • January 9, 2017 at 1:49 pm
      momof4boys
      Participant
      Thanks for the update Josh, as you can see we are all worried about you and hoping for the best! Your attitude is good and am glad you are just fighting one day at a time and not giving up. Something will work for you I just know it!
      • January 9, 2017 at 1:52 pm
      Hukill
      Participant

      Glad to see you have been able to start other treatments.

      • January 9, 2017 at 1:52 pm
      Hukill
      Participant

      Glad to see you have been able to start other treatments.

      • January 9, 2017 at 1:52 pm
      Hukill
      Participant

      Glad to see you have been able to start other treatments.

      • January 9, 2017 at 3:45 pm
      jenny22
      Participant

      Hey josh- So happy to see your post….always on the lookout to hear how you are doing.  I am happy to hear some treatment has started and that TIL may still be an option.

      For now I will keep my fingers crossed for decent scans on Thursday.

      Think of you often….and hoping for some better news.

       

      best,

      jenny

      • January 9, 2017 at 3:45 pm
      jenny22
      Participant

      Hey josh- So happy to see your post….always on the lookout to hear how you are doing.  I am happy to hear some treatment has started and that TIL may still be an option.

      For now I will keep my fingers crossed for decent scans on Thursday.

      Think of you often….and hoping for some better news.

       

      best,

      jenny

      • January 9, 2017 at 3:45 pm
      jenny22
      Participant

      Hey josh- So happy to see your post….always on the lookout to hear how you are doing.  I am happy to hear some treatment has started and that TIL may still be an option.

      For now I will keep my fingers crossed for decent scans on Thursday.

      Think of you often….and hoping for some better news.

       

      best,

      jenny

      • January 9, 2017 at 5:08 pm
      RayPMcConnell
      Participant

      Thank you so much for the update, Josh.

      I prayed a 15 decade Rosary for you at Mass on Saturday.

      Ray

      • January 9, 2017 at 5:08 pm
      RayPMcConnell
      Participant

      Thank you so much for the update, Josh.

      I prayed a 15 decade Rosary for you at Mass on Saturday.

      Ray

      • January 9, 2017 at 5:08 pm
      RayPMcConnell
      Participant

      Thank you so much for the update, Josh.

      I prayed a 15 decade Rosary for you at Mass on Saturday.

      Ray

      • January 9, 2017 at 6:42 pm
      Mat
      Participant

      Josh, your in my thoughts.  Good luck with the scans.

      • January 9, 2017 at 6:42 pm
      Mat
      Participant

      Josh, your in my thoughts.  Good luck with the scans.

      • January 9, 2017 at 6:42 pm
      Mat
      Participant

      Josh, your in my thoughts.  Good luck with the scans.

      • January 10, 2017 at 1:11 am
      Mark_DC
      Participant

      Hi Josh – hope this weeks scan is good, and that you can get the next infusion (hope readings good) good luck on thursday hope will not be too wearing (for me it usually is!). Am glad you are ok but also great that you had some down time and time for family this holiday, good luck, prayers too, mark

      • January 10, 2017 at 1:11 am
      Mark_DC
      Participant

      Hi Josh – hope this weeks scan is good, and that you can get the next infusion (hope readings good) good luck on thursday hope will not be too wearing (for me it usually is!). Am glad you are ok but also great that you had some down time and time for family this holiday, good luck, prayers too, mark

      • January 10, 2017 at 1:11 am
      Mark_DC
      Participant

      Hi Josh – hope this weeks scan is good, and that you can get the next infusion (hope readings good) good luck on thursday hope will not be too wearing (for me it usually is!). Am glad you are ok but also great that you had some down time and time for family this holiday, good luck, prayers too, mark

      • January 10, 2017 at 3:20 am
      Patrisa
      Participant

      Dear Josh,

      we are all in your corner, prayinh, hoping and believing in a great response…

      Take care, believe and don't let the fear get the best of you! 

      Love,

      Patrisa

      • January 10, 2017 at 3:20 am
      Patrisa
      Participant

      Dear Josh,

      we are all in your corner, prayinh, hoping and believing in a great response…

      Take care, believe and don't let the fear get the best of you! 

      Love,

      Patrisa

      • January 10, 2017 at 3:20 am
      Patrisa
      Participant

      Dear Josh,

      we are all in your corner, prayinh, hoping and believing in a great response…

      Take care, believe and don't let the fear get the best of you! 

      Love,

      Patrisa

      • January 10, 2017 at 2:11 pm
      debwray
      Participant

      Hi Josh,

      Am routing for both you and Paul. You are both an inspiration with such a good attitude to this horrible disease. Crossing fingers and toes that both you and Paul get brilliant results from TIL and whatever else is on the table. Not sure what else to say except that there is a lot of love for both you guys  and we are hoping and praying things will improve real soon.

      love Deb

      • January 10, 2017 at 2:11 pm
      debwray
      Participant

      Hi Josh,

      Am routing for both you and Paul. You are both an inspiration with such a good attitude to this horrible disease. Crossing fingers and toes that both you and Paul get brilliant results from TIL and whatever else is on the table. Not sure what else to say except that there is a lot of love for both you guys  and we are hoping and praying things will improve real soon.

      love Deb

      • January 10, 2017 at 2:11 pm
      debwray
      Participant

      Hi Josh,

      Am routing for both you and Paul. You are both an inspiration with such a good attitude to this horrible disease. Crossing fingers and toes that both you and Paul get brilliant results from TIL and whatever else is on the table. Not sure what else to say except that there is a lot of love for both you guys  and we are hoping and praying things will improve real soon.

      love Deb

      • January 10, 2017 at 8:42 pm
      Scooby123
      Participant

      Hi Josh,

      so pleased to hear from you my friend. Keep chin up Hun and I  pray that treatment is working for you. I had a lot of pain in my right side on treatment and after long stopped it but kept tumours stable. I always got scared when in pain but must have been treatment still getting at the tumours in liver. 

      Scooby xx

      • January 10, 2017 at 8:42 pm
      Scooby123
      Participant

      Hi Josh,

      so pleased to hear from you my friend. Keep chin up Hun and I  pray that treatment is working for you. I had a lot of pain in my right side on treatment and after long stopped it but kept tumours stable. I always got scared when in pain but must have been treatment still getting at the tumours in liver. 

      Scooby xx

      • January 10, 2017 at 8:42 pm
      Scooby123
      Participant

      Hi Josh,

      so pleased to hear from you my friend. Keep chin up Hun and I  pray that treatment is working for you. I had a lot of pain in my right side on treatment and after long stopped it but kept tumours stable. I always got scared when in pain but must have been treatment still getting at the tumours in liver. 

      Scooby xx

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