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Rocklove
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Rocklove

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      • May 2, 2011 at 9:14 pm
      Rocklove
      Participant

        So glad things are going so smooth Sharon. Looking forward to catching up with You and Brent this week.

        We Love You Two…

        Rocky

        • May 2, 2011 at 9:14 pm
        Rocklove
        Participant

          So glad things are going so smooth Sharon. Looking forward to catching up with You and Brent this week.

          We Love You Two…

          Rocky

          • March 24, 2011 at 12:16 pm
          Rocklove
          Participant

            Thanks for the update Kevin. There are many of us interested.

            Let's hope the reduction in size continues.

            Prayers and positive thoughts for you and family.

            Rocky (Stage IV Liver mets)

            • March 24, 2011 at 12:16 pm
            Rocklove
            Participant

              Thanks for the update Kevin. There are many of us interested.

              Let's hope the reduction in size continues.

              Prayers and positive thoughts for you and family.

              Rocky (Stage IV Liver mets)

              • March 17, 2011 at 11:41 am
              Rocklove
              Participant

                We got you covered with crossed fingers. But I wanted add some positive thoughts and prayers on top of that. We are certainly cheering for great scans.

                Good Luck to You…. Let us know.

                Rocky (Stage IV Liver Mets)

                • March 17, 2011 at 11:41 am
                Rocklove
                Participant

                  We got you covered with crossed fingers. But I wanted add some positive thoughts and prayers on top of that. We are certainly cheering for great scans.

                  Good Luck to You…. Let us know.

                  Rocky (Stage IV Liver Mets)

                  • March 7, 2011 at 10:34 am
                  Rocklove
                  Participant

                    Praying for that Miracle.

                    Rocky (Stage IV Liver Mets)

                    • March 7, 2011 at 10:34 am
                    Rocklove
                    Participant

                      Praying for that Miracle.

                      Rocky (Stage IV Liver Mets)

                      • March 6, 2011 at 2:53 am
                      Rocklove
                      Participant

                        Julia I had similar problems with Leukine and Lisinipril. My creatinine level was normally around 1.0, but after treatment it raised to 3.3. It took about 6 months to get the level back under 1.5. The other day it was 1.3 and that was 6.5 months. So it has not got to my normal level yet. I am told it is trending down and that is a good thing. Basically wait and see.

                        The doctors were not alarmed…………I was… It really did scare me. I also called a friend of mine that just had a kidney transplant and quized her. She said the creatinine level works differant on many people. She had no pain or problems and her level was over 5………Some people have a lot of pain and problems and there level is 3.

                        Hopefully Bernhard will see his level decrease soon and the doctors get to the bottom of it.

                        Good Luck… Positive Prayers and Thoughts to both of you.

                        Rocky (Stage IV Liver Mets)

                        • April 6, 2011 at 7:01 pm
                        Rocklove
                        Participant

                          Thanks James,

                          The Decath system wouldn't work as there are tumors all over my body and have been told that is not a good option for me. They did not recommend anything but the following as my creatinine level canceled me out of many other trials. I also had Dr. Falchook to call Dr. Weber @ Moffit and made sure they both agreed on the treatment and they both agreed.

                          Also I misspelled the Revlimed… it should be Revlimid.

                          Rocky (Stage IV Liver Mets)

                          • April 6, 2011 at 7:01 pm
                          Rocklove
                          Participant

                            Thanks James,

                            The Decath system wouldn't work as there are tumors all over my body and have been told that is not a good option for me. They did not recommend anything but the following as my creatinine level canceled me out of many other trials. I also had Dr. Falchook to call Dr. Weber @ Moffit and made sure they both agreed on the treatment and they both agreed.

                            Also I misspelled the Revlimed… it should be Revlimid.

                            Rocky (Stage IV Liver Mets)

                            • April 6, 2011 at 6:53 pm
                            Rocklove
                            Participant

                              Thanks Donna,

                              I know you have been through alot and we have followed each other for several years on the board.

                              Prayers and positive thoughts for you and family.

                              Rocky (Stage IV Liver Mets)

                              • April 6, 2011 at 6:53 pm
                              Rocklove
                              Participant

                                Thanks Donna,

                                I know you have been through alot and we have followed each other for several years on the board.

                                Prayers and positive thoughts for you and family.

                                Rocky (Stage IV Liver Mets)

                                • March 6, 2011 at 1:19 pm
                                Rocklove
                                Participant

                                  Julia you are more than welcome to share my notes with anyone. Hope it helps. I thought my 3.3 was alarming. Make sure you leave no stones unturned with this creatinine level… until both of you feel comfortable.

                                  Rocky

                                  • March 6, 2011 at 1:19 pm
                                  Rocklove
                                  Participant

                                    Julia you are more than welcome to share my notes with anyone. Hope it helps. I thought my 3.3 was alarming. Make sure you leave no stones unturned with this creatinine level… until both of you feel comfortable.

                                    Rocky

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