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Hi, I’m still here, sorry for late update…
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Hi, I’m still here, sorry for late update…

› Forums › General Melanoma Community › Hi, I’m still here, sorry for late update…

  • Post
    • March 24, 2011 at 4:55 am
    himynameiskevin
    Participant

      As soon as I finished my visit with the doctors I felt a scratchy throat coming on and by the time my flight landed home here in San Diego I had a full on cold/flu/fever thing going on. It hit me quick and had me pretty down and out for a few days. Must have been the flights, hotels, stress, jet lag, and/or sick hotel shuttle driver. But I'm on the mend now and well enough to update those interested…

      As soon as I finished my visit with the doctors I felt a scratchy throat coming on and by the time my flight landed home here in San Diego I had a full on cold/flu/fever thing going on. It hit me quick and had me pretty down and out for a few days. Must have been the flights, hotels, stress, jet lag, and/or sick hotel shuttle driver. But I'm on the mend now and well enough to update those interested…

      So this months scans show that things are still down a bit, not sure of an exact number, maybe around 7%? Again I'm not sure the exact number but I think I'm down to about 12 tumors in the lungs.. or maybe it was 9. I'm not sure. You know there were so many numbers and percentages and comparisons. I get kinda flustered and tongue tied when the doctors come in and I'm trying to remember so many things while doing math and thinking what to ask while listening to what they say… so… that's where I'm at. I do know for sure, that there's still nothing new, my brain is still clear and things are shrinking a tad. So this is good news. Just hope/pray/wish/manifest something similar next month and preferably months to come. We'll see…

      Ok, well, I'm going to try and finish off this bug with some tea and a good nights sleep. I'll talk to you all soon. -Kevin

    Viewing 15 reply threads
    • Replies
        • March 24, 2011 at 7:26 am
        chrisS
        Participant
          Hey kevin, it’s chris. My wife and I were in Thorton with you during both of your first IL 2s. We find it helpful to record on my iPhone ever time doctors talk to us. I then file it on our computer. It can be very helpful and I can access any conversation in seconds on my iPod when needed. Just to update you on Melissa, she did 6 months of il2 with a partial response but stopped when they found 6 brain mets. She finished her last cyber knife deal today at Moores. She got to ring the bell and the waiting room clapped for her. Next step, get her off the steroids and siezure meds.
          Hang in there, I know we will!
          • March 24, 2011 at 7:26 am
          chrisS
          Participant
            Hey kevin, it’s chris. My wife and I were in Thorton with you during both of your first IL 2s. We find it helpful to record on my iPhone ever time doctors talk to us. I then file it on our computer. It can be very helpful and I can access any conversation in seconds on my iPod when needed. Just to update you on Melissa, she did 6 months of il2 with a partial response but stopped when they found 6 brain mets. She finished her last cyber knife deal today at Moores. She got to ring the bell and the waiting room clapped for her. Next step, get her off the steroids and siezure meds.
            Hang in there, I know we will!
            • March 24, 2011 at 11:16 am
            Fen
            Participant

              I agree with Chris. Even with 2 people in the room everything comes at you so fast it's hard to comprehend it all.  Rest and chicken soup for the bug you've got.   

              Hoping for continued shrinkage.  fen

              • March 24, 2011 at 11:16 am
              Fen
              Participant

                I agree with Chris. Even with 2 people in the room everything comes at you so fast it's hard to comprehend it all.  Rest and chicken soup for the bug you've got.   

                Hoping for continued shrinkage.  fen

                • March 24, 2011 at 12:16 pm
                Rocklove
                Participant

                  Thanks for the update Kevin. There are many of us interested.

                  Let's hope the reduction in size continues.

                  Prayers and positive thoughts for you and family.

                  Rocky (Stage IV Liver mets)

                  • March 24, 2011 at 12:16 pm
                  Rocklove
                  Participant

                    Thanks for the update Kevin. There are many of us interested.

                    Let's hope the reduction in size continues.

                    Prayers and positive thoughts for you and family.

                    Rocky (Stage IV Liver mets)

                    • March 25, 2011 at 1:45 am
                    lhaley
                    Participant

                      Kevin,

                      I'm glad your home and everything seems to have shrunk!  

                      I hope you feel better soon. This traveling seems to be hard on you.

                      Linda

                      • March 25, 2011 at 1:45 am
                      lhaley
                      Participant

                        Kevin,

                        I'm glad your home and everything seems to have shrunk!  

                        I hope you feel better soon. This traveling seems to be hard on you.

                        Linda

                        • March 25, 2011 at 2:09 am
                        BethA in VA
                        Participant

                          You have to be thrilled with this good news!  It is very hard to keep the information all straight.  But you got the important fact…it was good news.  Keeping you in my prayers.  Feel better from your bug!  Beth 3/B

                          • March 25, 2011 at 2:09 am
                          BethA in VA
                          Participant

                            You have to be thrilled with this good news!  It is very hard to keep the information all straight.  But you got the important fact…it was good news.  Keeping you in my prayers.  Feel better from your bug!  Beth 3/B

                            • March 25, 2011 at 3:10 am
                            JakeinNY
                            Participant

                              Feel better Kevin. Keep on moving forward.

                              Best wishes for a long life.

                              • March 25, 2011 at 3:10 am
                              JakeinNY
                              Participant

                                Feel better Kevin. Keep on moving forward.

                                Best wishes for a long life.

                                • March 25, 2011 at 1:52 pm
                                alicia
                                Participant

                                  HI Kevin, 

                                  You probably don't know me cause I don't post too often on here but I do keep up with your story and I'm rooting for you.  I'm so glad to hear about your results:)  Try to get some rest and then celebrate with those you love.  You are in my prayers for more amazing news to come.

                                   

                                  Love, Hugs, and Positive thoughts,

                                  Alicia

                                  • March 25, 2011 at 1:52 pm
                                  alicia
                                  Participant

                                    HI Kevin, 

                                    You probably don't know me cause I don't post too often on here but I do keep up with your story and I'm rooting for you.  I'm so glad to hear about your results:)  Try to get some rest and then celebrate with those you love.  You are in my prayers for more amazing news to come.

                                     

                                    Love, Hugs, and Positive thoughts,

                                    Alicia

                                    • March 25, 2011 at 3:59 pm
                                    Rebecca and Bob
                                    Participant

                                      Kevin,

                                       

                                      Sounds great that your still responding. Nothing new is always great. Hope to keep hearing that it's going in the right direction.

                                      Rebecca

                                      • March 25, 2011 at 3:59 pm
                                      Rebecca and Bob
                                      Participant

                                        Kevin,

                                         

                                        Sounds great that your still responding. Nothing new is always great. Hope to keep hearing that it's going in the right direction.

                                        Rebecca

                                    Viewing 15 reply threads
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