Forum Replies Created
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- April 28, 2014 at 11:44 am
Awwwwwwwww Jan, You are wonderful!!! Hugs, Mary
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- April 28, 2014 at 11:44 am
Awwwwwwwww Jan, You are wonderful!!! Hugs, Mary
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- April 28, 2014 at 11:44 am
Awwwwwwwww Jan, You are wonderful!!! Hugs, Mary
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- April 19, 2014 at 1:54 pm
Hugs,comfort and peace Jan. Mary
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- April 19, 2014 at 1:54 pm
Hugs,comfort and peace Jan. Mary
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- April 19, 2014 at 1:54 pm
Hugs,comfort and peace Jan. Mary
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- April 18, 2014 at 3:37 pm
Hi Shaggy, Wonderful to see you are still kicking. I used to read your posts all the time. I used to be Woman in RI. Are you behaving yourself on the other side of the pond? I was first diagnosed in 1988 and went to stage 4 in 2005. We are the "oldies but goodies", and very grateful! Best wishes, Mary
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- April 18, 2014 at 3:37 pm
Hi Shaggy, Wonderful to see you are still kicking. I used to read your posts all the time. I used to be Woman in RI. Are you behaving yourself on the other side of the pond? I was first diagnosed in 1988 and went to stage 4 in 2005. We are the "oldies but goodies", and very grateful! Best wishes, Mary
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- April 18, 2014 at 3:37 pm
Hi Shaggy, Wonderful to see you are still kicking. I used to read your posts all the time. I used to be Woman in RI. Are you behaving yourself on the other side of the pond? I was first diagnosed in 1988 and went to stage 4 in 2005. We are the "oldies but goodies", and very grateful! Best wishes, Mary
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- April 3, 2014 at 1:13 pm
Hi Bruce, I have been on Zelboraf since Nov. of 2011. Among the side effects i have had are fatigue. It has come and gone for months. Sometimes between the aches and diarrhea and fatigue it has been very trying. I do not work. Please give yourself a giant,"YES"! for accomplishing that. I was just off Zelboraf for 2 weeks. It took 8 days for the diarrhea to stop. I suddenly felt wonderful. Then I wondered about the melanoma. Is it going to show its ugly head again? I have been back on the Zelboraf for 2 1/2 weeks and I feel all the fatigue I felt when I started it in 2011. I try to remember how fortunate I am because it has worked so well, but the "new reality" is what it is. It is difficult. So with gratitude and humility I say, "ok". I guess there is more to do before I don't do. I have scans next week and I am again hopeful. Sometimes i feel like I live in 2 month increments, from scans to scans……BUT it is very good! I hope to do more Spring gardening this year. You are doing very well . Best wishes Mary
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- April 3, 2014 at 1:13 pm
Hi Bruce, I have been on Zelboraf since Nov. of 2011. Among the side effects i have had are fatigue. It has come and gone for months. Sometimes between the aches and diarrhea and fatigue it has been very trying. I do not work. Please give yourself a giant,"YES"! for accomplishing that. I was just off Zelboraf for 2 weeks. It took 8 days for the diarrhea to stop. I suddenly felt wonderful. Then I wondered about the melanoma. Is it going to show its ugly head again? I have been back on the Zelboraf for 2 1/2 weeks and I feel all the fatigue I felt when I started it in 2011. I try to remember how fortunate I am because it has worked so well, but the "new reality" is what it is. It is difficult. So with gratitude and humility I say, "ok". I guess there is more to do before I don't do. I have scans next week and I am again hopeful. Sometimes i feel like I live in 2 month increments, from scans to scans……BUT it is very good! I hope to do more Spring gardening this year. You are doing very well . Best wishes Mary
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- April 3, 2014 at 1:13 pm
Hi Bruce, I have been on Zelboraf since Nov. of 2011. Among the side effects i have had are fatigue. It has come and gone for months. Sometimes between the aches and diarrhea and fatigue it has been very trying. I do not work. Please give yourself a giant,"YES"! for accomplishing that. I was just off Zelboraf for 2 weeks. It took 8 days for the diarrhea to stop. I suddenly felt wonderful. Then I wondered about the melanoma. Is it going to show its ugly head again? I have been back on the Zelboraf for 2 1/2 weeks and I feel all the fatigue I felt when I started it in 2011. I try to remember how fortunate I am because it has worked so well, but the "new reality" is what it is. It is difficult. So with gratitude and humility I say, "ok". I guess there is more to do before I don't do. I have scans next week and I am again hopeful. Sometimes i feel like I live in 2 month increments, from scans to scans……BUT it is very good! I hope to do more Spring gardening this year. You are doing very well . Best wishes Mary
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- April 15, 2014 at 1:18 pm
Hi Ased, I had a very similar situation on the bottom of my feet when I started using Zelboraf. It was called "nodosum" and made walking very painful. Fortunately, it resolved itself. As a matter of fact, I was off Zelboraf for 2 weeks and the "nodosum" returned when I started the Zelboraf again. It is resolving as we speak. I hope your situation is the same. Best wishes, Mary
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- April 15, 2014 at 1:18 pm
Hi Ased, I had a very similar situation on the bottom of my feet when I started using Zelboraf. It was called "nodosum" and made walking very painful. Fortunately, it resolved itself. As a matter of fact, I was off Zelboraf for 2 weeks and the "nodosum" returned when I started the Zelboraf again. It is resolving as we speak. I hope your situation is the same. Best wishes, Mary
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- April 15, 2014 at 1:18 pm
Hi Ased, I had a very similar situation on the bottom of my feet when I started using Zelboraf. It was called "nodosum" and made walking very painful. Fortunately, it resolved itself. As a matter of fact, I was off Zelboraf for 2 weeks and the "nodosum" returned when I started the Zelboraf again. It is resolving as we speak. I hope your situation is the same. Best wishes, Mary
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