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2 1/2 years of Zelboraf and worn out!
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2 1/2 years of Zelboraf and worn out!

› Forums › General Melanoma Community › 2 1/2 years of Zelboraf and worn out!

  • Post
    • April 2, 2014 at 1:12 pm
    Bruce Davis
    Participant

      Feel so fortunate just being able to get around and have a daily routine. 

      My heart goes out to everyone fighting as I know I've had it very easy compaired to most! Been able to make it to work every day only due to the people I worked with being in worse shape than me. They didn't realize how much motovation I received from them as I was supposed to be motivating them to exercise.

      About 60 days ago started feeling very fatigued,  With a difficult time writing and thinking. Went on vacation for a week, thought it would help. Never got any better. Ive had to stop working and take it easy for a while.

      Just wanted to know if anyone else has had the same reaction?

    Viewing 5 reply threads
    • Replies
        • April 3, 2014 at 1:13 pm
        mary in Rhode Island
        Participant

          Hi Bruce, I have been on Zelboraf since Nov. of 2011.  Among the side effects i have had are fatigue.  It has come and gone for months. Sometimes between the aches and diarrhea and fatigue it has been very trying. I do not work. Please give yourself a giant,"YES"! for accomplishing that. I was just off Zelboraf for 2 weeks.  It took 8 days for the diarrhea to stop. I suddenly felt wonderful.  Then I wondered about  the melanoma.  Is it going to show its ugly head again?  I have been back on the Zelboraf for 2 1/2 weeks and I feel all the fatigue I felt when I started  it  in 2011. I try to remember how fortunate I am because it has worked so well, but the "new reality" is what it is.  It is difficult.  So with gratitude and humility I say, "ok". I guess there is more to do before I don't do.  I have scans next week and I am again hopeful.  Sometimes i feel like I live in 2 month increments, from scans to scans……BUT it is very good!  I hope to do more Spring gardening this year. You are doing very well .  Best wishes Mary

           

           

           

           

           

           

           

           

           

           

           

           

           

           

          • April 3, 2014 at 1:13 pm
          mary in Rhode Island
          Participant

            Hi Bruce, I have been on Zelboraf since Nov. of 2011.  Among the side effects i have had are fatigue.  It has come and gone for months. Sometimes between the aches and diarrhea and fatigue it has been very trying. I do not work. Please give yourself a giant,"YES"! for accomplishing that. I was just off Zelboraf for 2 weeks.  It took 8 days for the diarrhea to stop. I suddenly felt wonderful.  Then I wondered about  the melanoma.  Is it going to show its ugly head again?  I have been back on the Zelboraf for 2 1/2 weeks and I feel all the fatigue I felt when I started  it  in 2011. I try to remember how fortunate I am because it has worked so well, but the "new reality" is what it is.  It is difficult.  So with gratitude and humility I say, "ok". I guess there is more to do before I don't do.  I have scans next week and I am again hopeful.  Sometimes i feel like I live in 2 month increments, from scans to scans……BUT it is very good!  I hope to do more Spring gardening this year. You are doing very well .  Best wishes Mary

             

             

             

             

             

             

             

             

             

             

             

             

             

             

            • April 3, 2014 at 1:13 pm
            mary in Rhode Island
            Participant

              Hi Bruce, I have been on Zelboraf since Nov. of 2011.  Among the side effects i have had are fatigue.  It has come and gone for months. Sometimes between the aches and diarrhea and fatigue it has been very trying. I do not work. Please give yourself a giant,"YES"! for accomplishing that. I was just off Zelboraf for 2 weeks.  It took 8 days for the diarrhea to stop. I suddenly felt wonderful.  Then I wondered about  the melanoma.  Is it going to show its ugly head again?  I have been back on the Zelboraf for 2 1/2 weeks and I feel all the fatigue I felt when I started  it  in 2011. I try to remember how fortunate I am because it has worked so well, but the "new reality" is what it is.  It is difficult.  So with gratitude and humility I say, "ok". I guess there is more to do before I don't do.  I have scans next week and I am again hopeful.  Sometimes i feel like I live in 2 month increments, from scans to scans……BUT it is very good!  I hope to do more Spring gardening this year. You are doing very well .  Best wishes Mary

               

               

               

               

               

               

               

               

               

               

               

               

               

               

              • April 6, 2014 at 5:05 am
              Bruce Davis
              Participant

                I think we're both doing very well Mary. Considering what the alternative is! Again feeling fortunate to have survived this long it becomes difficult to plan for the future. Just resting a  it then getting back to living life more fully again.

                Hope all continues to go well with hiatus from Zelboraf!

                Bruce

                • April 6, 2014 at 5:05 am
                Bruce Davis
                Participant

                  I think we're both doing very well Mary. Considering what the alternative is! Again feeling fortunate to have survived this long it becomes difficult to plan for the future. Just resting a  it then getting back to living life more fully again.

                  Hope all continues to go well with hiatus from Zelboraf!

                  Bruce

                  • April 6, 2014 at 5:05 am
                  Bruce Davis
                  Participant

                    I think we're both doing very well Mary. Considering what the alternative is! Again feeling fortunate to have survived this long it becomes difficult to plan for the future. Just resting a  it then getting back to living life more fully again.

                    Hope all continues to go well with hiatus from Zelboraf!

                    Bruce

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