kb9718
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

kb9718

Forum Replies Created

Viewing 6 reply threads
  • Replies
      • April 9, 2019 at 11:49 pm
      kb9718
      Participant

      Hi there,

      I also had this problem come up quite a few times and know how tough it can be! My oncologist lowered my dose down from 150 mg to 100 mg of dabrafenid and 1.5 from 2.0 from tramebnib and its been alot alot better! he says i am still in therpaputic range for the drugs to work so maybe suggest this? I hope this helps and wishing you both all the best! I am on a trial with those drugs studying fevers so they do cause fevers you are right! 

      KB

      • December 20, 2018 at 12:33 pm
      kb9718
      Participant

      As a new member of this group this is something so great to see! Enjoy your holidays and congratulations this will be one of many many Christmases for you 🙂 

      • December 17, 2018 at 11:12 pm
      kb9718
      Participant

      Sending prayers and best wishes !

      all the best 

      Keira 

      • December 17, 2018 at 10:51 pm
      kb9718
      Participant

      Sending lots of good vibes and praying for you!! You got this 🙂 

      • December 17, 2018 at 5:39 pm
      kb9718
      Participant

      Congrats that's awesome! Have a wonderful Christmas that is something great to celebrate 🙂

      Keira  

      • December 14, 2018 at 3:35 am
      kb9718
      Participant

      Thats incredible thank you for sharing! I am so happy for you and your future merry christmas !

      • December 6, 2018 at 5:18 pm
      kb9718
      Participant

      Thank you very much for the overwhelming support from everyone its really great to read! I get my results decemeber 13 so I will be sure to write in what happens! A week today so thats something to look forward to!

      Thanks again everyone

      Keira

      • March 19, 2019 at 7:59 pm
      kb9718
      Participant

      Thank you for your response I am noticing it coming and going hope things are going well with you and thanks for all your advice!

      • March 19, 2019 at 7:58 pm
      kb9718
      Participant

      Hi there, 

      I do notice the pain the most pain in my heels and I do notice it coming and going as you mentioned. Thanks for your help and hope your doing well

      KB

      • February 8, 2019 at 6:30 pm
      kb9718
      Participant

      thank you both for your responses the nurse at the cancer center i am at. said to keep taking it and that this is normal so im not sure what to do she said my doctor would call me if i was not suppose to! Im a bit nervous because its full body but maybe it will go down

      kb

      • December 15, 2018 at 11:06 pm
      kb9718
      Participant

      Thank you very much for your response and I hope everything is going well with you. Im sorry to hear that it reoccured how are you doing now? I appericate the hope for good scan result and im hoping too, Thank you for reaching out and I wish you all the best, 

      Keira 

      • December 15, 2018 at 11:04 pm
      kb9718
      Participant

      Hi Celeste, 

      You're amazing the links you have provided epsically with the explanation of all the terms is awesome. For sure makes learning about everything alot easier. I am soo glad to hear your NED that gives me so much hope, I will for sure be posting my results and treatment plan but that is so great to hear I feel ten times better now.

      Thank you so much and congratulations on your success 

      Keira 

      • December 15, 2018 at 10:58 pm
      kb9718
      Participant

      Hi Kelly, 

      Thank you very much for your response and I am so happy for you and your results. That is great to hear, so its 12 months long and you go in every two weeks? Is he still able to workout while undergoing treatment ? and congrats on the NED thats incredible !

      Thanks

      Keira 🙂

Viewing 6 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics