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kb9718
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kb9718

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      • April 9, 2019 at 11:49 pm
      kb9718
      Participant

        Hi there,

        I also had this problem come up quite a few times and know how tough it can be! My oncologist lowered my dose down from 150 mg to 100 mg of dabrafenid and 1.5 from 2.0 from tramebnib and its been alot alot better! he says i am still in therpaputic range for the drugs to work so maybe suggest this? I hope this helps and wishing you both all the best! I am on a trial with those drugs studying fevers so they do cause fevers you are right! 

        KB

        • December 20, 2018 at 12:33 pm
        kb9718
        Participant

          As a new member of this group this is something so great to see! Enjoy your holidays and congratulations this will be one of many many Christmases for you 🙂 

          • December 17, 2018 at 11:12 pm
          kb9718
          Participant

            Sending prayers and best wishes !

            all the best 

            Keira 

            • December 17, 2018 at 10:51 pm
            kb9718
            Participant

              Sending lots of good vibes and praying for you!! You got this 🙂 

              • December 17, 2018 at 5:39 pm
              kb9718
              Participant

                Congrats that's awesome! Have a wonderful Christmas that is something great to celebrate 🙂

                Keira  

                • December 14, 2018 at 3:35 am
                kb9718
                Participant

                  Thats incredible thank you for sharing! I am so happy for you and your future merry christmas !

                  • December 6, 2018 at 5:18 pm
                  kb9718
                  Participant

                    Thank you very much for the overwhelming support from everyone its really great to read! I get my results decemeber 13 so I will be sure to write in what happens! A week today so thats something to look forward to!

                    Thanks again everyone

                    Keira

                    • March 19, 2019 at 7:59 pm
                    kb9718
                    Participant

                      Thank you for your response I am noticing it coming and going hope things are going well with you and thanks for all your advice!

                      • March 19, 2019 at 7:58 pm
                      kb9718
                      Participant

                        Hi there, 

                        I do notice the pain the most pain in my heels and I do notice it coming and going as you mentioned. Thanks for your help and hope your doing well

                        KB

                        • February 8, 2019 at 6:30 pm
                        kb9718
                        Participant

                          thank you both for your responses the nurse at the cancer center i am at. said to keep taking it and that this is normal so im not sure what to do she said my doctor would call me if i was not suppose to! Im a bit nervous because its full body but maybe it will go down

                          kb

                          • December 15, 2018 at 11:06 pm
                          kb9718
                          Participant

                            Thank you very much for your response and I hope everything is going well with you. Im sorry to hear that it reoccured how are you doing now? I appericate the hope for good scan result and im hoping too, Thank you for reaching out and I wish you all the best, 

                            Keira 

                            • December 15, 2018 at 11:04 pm
                            kb9718
                            Participant

                              Hi Celeste, 

                              You're amazing the links you have provided epsically with the explanation of all the terms is awesome. For sure makes learning about everything alot easier. I am soo glad to hear your NED that gives me so much hope, I will for sure be posting my results and treatment plan but that is so great to hear I feel ten times better now.

                              Thank you so much and congratulations on your success 

                              Keira 

                              • December 15, 2018 at 10:58 pm
                              kb9718
                              Participant

                                Hi Kelly, 

                                Thank you very much for your response and I am so happy for you and your results. That is great to hear, so its 12 months long and you go in every two weeks? Is he still able to workout while undergoing treatment ? and congrats on the NED thats incredible !

                                Thanks

                                Keira 🙂

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