@kannevans
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- January 12, 2024 at 10:12 pm
I had a recurrence in August. My primary was from August 2018. I noticed a lump in my foot and then another one in my ankle in a matter of months. My oncologist had me start on the combo ipi/nivo before having surgery. I did two treatments and tolerated side effects pretty well up until a week before surgery which was December 14. My liver enzymes were elevated so I had to be put on prednisone so my liver enzymes would come down for surgery. They came down enough for surgery and I had both tumors removed. I was supposed to go back on nivolumab after healing but my liver enzymes spiked again after removing me from prednisone after surgery. Now I am struggling to get my liver enzymes down. They say that the combo works great before surgery but it hard on your body. Hopefully everything goes well with the plan they have set out for you. -
- November 27, 2023 at 11:10 pm
Started my first infusion on Oct 31st After having a satellite recurrence five years to the month of my first diagnosis. I was so nervous that I would be really sick but I am grateful that my body is holding up. The things that have been bothering me is itchy skin and sore stomach. I did get a bit constipated the first two weeks but I started taking a daily stool softener so that helped. I tend to get lightheaded/dizzy several times throughout the day but nothing I can’t handle. I got my first headache Pretty bad two days ago but I was thinking maybe it was from caffeine withdrawal ? overall the two treatments I have gotten have not been too bad. My husband still calls me the energizer battery because he feels I have not lost any energy yet I do feel tired every day. I go for surgery to remove two tumors from my foot and ankle on the 14th. Depending on pathology, I may have to do the two other Treatments. If things go well, I will just move to Opdivo. I hope things have gotten better for you with treatment! -
- August 25, 2023 at 12:28 am
I had a mole on the bottom of my foot since I was a baby. It started to change in shape and end, started to itch pretty bad in 2017…and in August 2018 about a year later I was diagnosed. I had four lymph nodes removed and two of the four had cancer cells. I had surgery to remove the cancer in my foot, they basically took all of my tissue out of my foot and took several months to recover. I did immunotherapy for a year and have been okay this far. Recently, I found a lump in my leg, so I am going for an MRI next week and hoping it is not recurrence. You’re more than welcome to contact me if you have any questions for me. Good luck! -
- December 12, 2019 at 3:42 pm
I received my last treatment in November. I had minimal side effects during treatment. End of November I started getting vertigo and broke out with this rash on my hands and face that won’t go away. My stomach is always hurting and I get frequent headaches. My muscles in my legs hurt for no reason and I’m always nauseous. But like everyone says, it’s better than the alternative. Hopefully as time goes on it will get better. Best of luck!
Kris -
- January 28, 2019 at 7:31 am
Hi! I have been on Nivo for 3 months and started having back pain around 2 weeks ago. Not sure if it’s related to meds but it’s just my lower back. Sometimes I can’t stand long at all. Having to take Motrin more then I like to. I will bring it to my doc Monday and see what she thinks. Hopefully his back gets better!
kris
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- November 24, 2018 at 4:32 pm
Hey Mike, like everyone else I use gabapentin For the nerve pain in my foot. I still get those sharp stabbing pain’s and gabapentin usually does the trick and my oncologist Said it is perfectly fine to take with treatment. Nerve pain is the worst, I hope you can get some kind of relief!
Kris
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- December 5, 2018 at 3:45 am
I am trying not to overthink this but it’s hard. I sure hope it’s not there because it has spread. I have an appt and infusion on Monday so hopefully I can get some answers. My melanoma specialist sent the scan to his radiologist and they were going to discuss it at tumor board tonight so hopefully I have some answers tomorrow. The unknown is a terrible thing. Thank you for your reply it made me feel better!
Kris
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- November 21, 2018 at 3:12 am
Hi Mike,
You are absolutely right I did post before (brain fart 🙂 I enjoy being here, I know that everyone here understands and thats means the world. So this last week was a bit of up and down like a rollercoaster. Some days were okay and then some days were bad. Today was a great day, felt somewhat normal whatever that is. I felt like I didnt want to call eventhough they told me to call at any sign of a symptom. I didnt want to feel like a bother or worry wart. Thats something I have to work on myself because I will tolerate a lot before I address it- which led me to where I am at now (stubborn me) Just hoping for smooth sailing. Thank you, I appreciate your feedback and will keep you in my thoughts as you approach your next surgery date!
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- November 21, 2018 at 3:03 am
Hi Kelly!
That's great to hear your son has done so well with the treatment. I'm sure age has a lot to do with it because not much slows kids down these days 🙂 I think anxiety has a lot to do with my issue. I cant take any meds without getting sick so I was so worried my body was going to have a rough time. I had surgery on my foot to remove my tumor and they almost had to remove my 2 toes, it was pretty bad! So they gave me pain meds of all types and I couldnt take any of it because they made me so sick. I suffered through the pain with nothing but nerve meds that I was supprisingly able to tolerate. Now 2 months later I am finally able to partially walk again. I am hoping to make it through with minimal issues. Thank you for your feedback and good luck on your sons monthly visits!!!
Kris 🙂
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