debwray

Hi Scooby- 

sweast have been a huge problem for me in uk. Drugs no good.. Amnow out of treatment optionns for mel..but hospicice system uses 50% succusses ful accupuncture with 2needles per wrist. Try them=== 

you might not need but thedifference in appoach is un believavable.All about your needs and goals.

Alspre Mimps etc— if prognoss is 3-3yrs- do s may fasat track-  Mine hyas been aggressive  and so 3 months is now unlikely tho still fighting.

goodluck and best wishes…not sighning in very much as my emotional pain bit of my brain can't takeany more than soothing…..butyou all still have my best of wishes fighting this shitty disease-just seems like i'm not a responder and have an agggressive bone based horror rather like Artie and will have to find a way to leave  my love with my family who  Iadore and always will.

Deb

There was a post within the last month about uvlight dryinging fake nails and  increasing UV exposure. Probably minimal increase to risk but might be worth asking ?

Deb

Xx

Gosh— that is good hews— longmay it continue…

Deb

Gosh— that is good hews— longmay it continue…

Deb

Hi,

Palliative work- to reduce pain- is being renamed in many places due to association with pain linked to terminal disease – but this is not necessarily the case and the early input of  palliative teams has been shown to decrease pain levels and reduce useage of drugs.

I''m now in the care of a palliative team the lead consultant being gentle, kind and a careful listener looking at the interaction between different products and wish I had been under his care earlier.

Good Luck

Deb

Geat news.. We all need to hear success stories. DElighted for you nd your family.

Deb

So sorry for this news. Melanoma brings so much sorrow to so many families. I hope you can remember cherished hapinesses and cling to memories of good times to help you through your grief. As a patient I know it is so hard on both patners in a loving marriage and like you too I wish for a cure for us all at the earliest possible date.

Sincrere condolences,

Deb

Oh Meeka,

You already know that cancer sucks and that dealing with the reaction of others can be another burden. Not sure now the big girl pants will help..but comfy undies are good esp at scan times ☺☺☺Research seems to show a wait of up to 3 months for a wle won't make a difference….but I would probably prefer to get on with it and the wedding shots might have to be photo shopped.

I feel for you as did not like ending up on crutches for sons graduation or various family weddings.

But then again I find it difficult when kindly folk tell me I,' m looking well..and ask how it's going and you either fib or shock them by explaining now stage 4 in liver and problems with treatment.

We' ve been in some dark and difficult places as a group and have no problem if you want to sound off. Cancer is unfair and stupid as Celeste's blog says. Vent anytime you like. We hear you and understand more than those not touched by this disease.

Maybe you hold off talking to the family about those blackheads until

You get certainty from the path reports then you only have to deal with the first certainty of diagnosis.. Although you know the next uncertainty is treatment and risk of progression… But we all sometimes have to slow things down to one day at a time… And focus on the good things you can enjoy, a loving family, good food, etc. Hope the biopsy brings good news and try to remember that treatments have improved.. Even down to creams and lesional injections . Almost forgot to dsay the most important thing…get yourself a second opinion at a melanoma specialist treatment centre. Things in melanoma world move so fast that the generalists can't keep pace with treatment advances and if you end up with a stage3 diagnosis don't dismiss going into clinical trials.

Come here any time to vent, research, and share the journey ..

Best wishes

Deb

In the UK you prob will be referred first of all to dermatology. They might do biopsy but after that you will be refered to nearest skin cancer specialist p!astic surgeon for wide excision and possible sentinel lymph node biopsy….you might want to consider a second opinion and travelling further to one of our centers of excellence /research like Leeds, the Marsden, London, the Christie, Manchester, etc etc Here they will deal with only melanoma and have easier access to newer drugs via trials and experience.

This is a difficult time  before diagnosis and a treatment plan is put in place. Push to get the appointments asap. Complain and ask for cancellations if need be.There is no certainty about Melanoma at this stage… Try and save your anxiety for the certainties and get a copy of the path report from any biopsy.

Nothing is certain as things stand..

Deb

Agreed.    Esp as both legs and left arm drain through same lymphatic route whilst right arm drains via other route….cellulitis can mask deep infections ( Painful personal experiences ) – PS crp blood levels up tp 190 could be arthritic inflammation over that- look for infection etc etc…

Take care

Deb

Fiesty sounds good….

Best wishes to you both..

Deb

Hi Jen—

Nice to see not just me double and triple posting in error.

Sorry Dad still on the roller coaster as am I. Need to do some more research but current options looking grim at best..Best wishes hopes and prayers to all at Easter Time.

Love from Deb