MRF-Logo2019-Horizontal-RGB
Referred to Palliative Specialist With Low Disease Burden?
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Referred to Palliative Specialist With Low Disease Burden?

› Forums › General Melanoma Community › Referred to Palliative Specialist With Low Disease Burden?

  • Post
    • April 5, 2017 at 8:08 pm
    Spl25
    Participant

      I've been referred to a palliative specialist despite having a fairly low disease burden. I have pain in one area where I had surgery, but otherwise have had very few problems with treatment. Is this a common occurrence? How many people have had this happen to them?

    Viewing 3 reply threads
    • Replies
        • April 5, 2017 at 9:35 pm
        jennunicorn
        Participant

          Being in pain, whether tumor burden is high or low, should be managed well and palliative specialists are best when it comes to managing pain. They are also good for support outside of your regular doctor and family.

          • April 6, 2017 at 12:11 pm
          tschmith
          Participant

            I was referred to a palliative specialist with about a medium disease burden.  My palliative specialist was very helpful!  I love the treat the whole body attitude!  Hope the specialist you were referred to helps the area of pain.  

            Best Wishes….Terrie

            • April 6, 2017 at 12:26 pm
            marta010
            Participant

              We've met with palliative care several times over the past 5 years to address a variety of pain issues and have found the team very helpful.  I was initially hesitant to schedule the appointment but was very pleased with the amount of time spent going over a variety of possible treatments – everything from massage therapy, physical therapy and evaluating a number of pain medications, including medical marijuana as options.  I would highly recommend that you schedule an appointment.

              Ann

              • April 14, 2017 at 9:17 pm
              debwray
              Participant

                Hi,

                Palliative work- to reduce pain- is being renamed in many places due to association with pain linked to terminal disease – but this is not necessarily the case and the early input of  palliative teams has been shown to decrease pain levels and reduce useage of drugs.

                I''m now in the care of a palliative team the lead consultant being gentle, kind and a careful listener looking at the interaction between different products and wish I had been under his care earlier.

                Good Luck

                Deb

            Viewing 3 reply threads
            • You must be logged in to reply to this topic.
            About the MRF Patient Forum

            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

            Popular Topics