@brittany1999
Forum Replies Created
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- May 9, 2019 at 3:55 am
15 seconds between clicks. I appreciate the effort but just not a professional site anymore. Going to MyStory.
Brit -
- August 27, 2018 at 2:44 am
Hi, This happens frequently to me. Small infections on my head make my lymph nodes swell in my neck. My oncologist has me take an antibiotic for 7-10days and then we scan at 8-10 weeks instead of 12 weeks.
The lymph nodes should go down within 2 weeks. Definitely stay in close contact with your oncologist.
Brit
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- August 19, 2018 at 3:51 am
It went away within 6 weeks of my final infusion of Keytruda. Prior to that it felt like I was 90 years old (aches all over, especially in the knees and surprisingly the elbows). I miss those days when I felt young again (after Keytruda) now I’m starting Opdivo and it is building back up.
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- August 19, 2018 at 3:46 am
When I had a skin graph for my neck I bought several (fake) wolf tooth necklaces in order to add to the story of my scars. However, I discovered my neck doesn’t like necklaces after the surgery (even 12 months after) so I never get a chance to show off the tooth I took from the creature which scared me. 🙂
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- August 16, 2018 at 3:14 am
My lymph nodes were described as pigmented. They tested positive for melanoma. I’ve always interpreted the “pigmented” to mean they were visually different from the surrounding tissue/lymph nodes.
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- August 13, 2018 at 9:17 pm
Hi, I’m also hoping this ends up only being on your surface and this is fully behind you forever after healing from surgery. I wanted to ask if you did go through a cycle of antibiotics just to see if there may be bacteria involved (as you mentioned there may be multiple things going on). An antibiotic like Cephalexin.
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- July 24, 2018 at 6:47 pm
Hopefully this is just a case of little drainage during the night and then better drainage when vertical during the day. Doctor may prescribe an antibiotic first in order to see if the lymph node is fine and just fighting something benign.
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- August 9, 2017 at 3:58 am
It all worked out. Approved as temporarily disabled both at work (HR plan) and state. Completed it all now and off to seek my new dreams within healthcare tech.
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- March 5, 2017 at 6:59 pm
In the creation of my therapy plan I was told about a clinical trial where the immune therapy was done first followed by surgery. I opted for surgery first in order to get it out of my body asap.
However, I do believe that within 10 years the standard of practice for state III will be immune therapy first followed by surgery (or possibly not followed by surgery if it is unnecessary).
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- February 27, 2017 at 6:12 pm
Your paperwork will say "Diagnosis: Metastatic Melanoma" that is why they placed you in the cancer area. Think of it as being a VIP at the hospital. Even if you are there for a stubbed toe the paperwork will show that you have an active diagnosis for melanoma so they will make sure 'cancer aware' clinicians are working your case.
Same has happened to me. The nurse showed me my paperwork and said 'I know this isn't why you are here this time, but it is your active diagnosis on file.
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- February 18, 2017 at 5:57 pm
Thank you for this input. I do agree that my surgeon is doing all that he can to help me. He is a well regarded neck surgeon and he did a great job on my surgery.
There just may have been more to the surgery than a typical CLND (or maybe I'm just not patient enough at going through a recovery process which does seem to be getting better every day). In my case 44 lymph nodes were removed (5 were positive), a submandibular gland, and a piece of skeletal muscle 7.4cm X 2.5cm (this is from the pathology report where it says this section was a different color in the middle than on the ends – and I know from my initial SLND excision that the positive lymph nodes were enmeshed in this muscle and had pushed through it to make a bulge on the side of my neck. So I'm glad he took it out and yet spared me from having it cut all the way across).
I've figured out that I will definitely get my full speech back. I just need to exercise my tongue to the left (and work on getting it up/over my teeth into my left cheek). It is also mildly swollen and that could be related to things like my pain meds, or related to two small injuries on my tongue (from rubbing or else a mild bite) which will definitely heal in the next 24 hours.
So my focus will be on slowly re-stretching the muscle which was 2/3 removed. The remaining 1/3 has contracted significantly almost like it is going into the 'fetal position' to get out of the way of harm. (Im going to be persistent about stretching/Physical Therapy and in 6 months I am going to have a better physique than I've had in a long time – I will consider these exercises to be my 'battle against cancer.' Just like all of us, I need something to focus on, and keep me active, in order to keep my spirits up.
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- February 18, 2017 at 5:57 pm
Thank you for this input. I do agree that my surgeon is doing all that he can to help me. He is a well regarded neck surgeon and he did a great job on my surgery.
There just may have been more to the surgery than a typical CLND (or maybe I'm just not patient enough at going through a recovery process which does seem to be getting better every day). In my case 44 lymph nodes were removed (5 were positive), a submandibular gland, and a piece of skeletal muscle 7.4cm X 2.5cm (this is from the pathology report where it says this section was a different color in the middle than on the ends – and I know from my initial SLND excision that the positive lymph nodes were enmeshed in this muscle and had pushed through it to make a bulge on the side of my neck. So I'm glad he took it out and yet spared me from having it cut all the way across).
I've figured out that I will definitely get my full speech back. I just need to exercise my tongue to the left (and work on getting it up/over my teeth into my left cheek). It is also mildly swollen and that could be related to things like my pain meds, or related to two small injuries on my tongue (from rubbing or else a mild bite) which will definitely heal in the next 24 hours.
So my focus will be on slowly re-stretching the muscle which was 2/3 removed. The remaining 1/3 has contracted significantly almost like it is going into the 'fetal position' to get out of the way of harm. (Im going to be persistent about stretching/Physical Therapy and in 6 months I am going to have a better physique than I've had in a long time – I will consider these exercises to be my 'battle against cancer.' Just like all of us, I need something to focus on, and keep me active, in order to keep my spirits up.
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- January 28, 2017 at 4:49 am
When you say "going to UCSF for further testing" do you mean reviews of your skin or scans (PET/CT)?
I ask because there has been difficulty in finding the source of my melanoma in neck lymph nodes. So I'm always interested in any alternate or advanced ways of having my skin checked. (8 moles removed so far and all tested negative, Opthamologist checked my eyes)
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- January 28, 2017 at 4:49 am
When you say "going to UCSF for further testing" do you mean reviews of your skin or scans (PET/CT)?
I ask because there has been difficulty in finding the source of my melanoma in neck lymph nodes. So I'm always interested in any alternate or advanced ways of having my skin checked. (8 moles removed so far and all tested negative, Opthamologist checked my eyes)
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- January 28, 2017 at 4:49 am
When you say "going to UCSF for further testing" do you mean reviews of your skin or scans (PET/CT)?
I ask because there has been difficulty in finding the source of my melanoma in neck lymph nodes. So I'm always interested in any alternate or advanced ways of having my skin checked. (8 moles removed so far and all tested negative, Opthamologist checked my eyes)
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