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Update on Gene from yesterdays scans: Ipi Trial with GM_CSF 24 weeks
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Update on Gene from yesterdays scans: Ipi Trial with GM_CSF 24 weeks

› Forums › General Melanoma Community › Update on Gene from yesterdays scans: Ipi Trial with GM_CSF 24 weeks

  • Post
    • August 20, 2011 at 11:54 am
    Gene_S
    Participant

      Update on Gene:  The inoperable tumor on the head pushing on the spine is gone and has new cell growth on the spine, the big one in the liver is 75% shrunk,  the one in the lung is gone and all the others in the liver have greatly shrunk or totally are gone. 

      Hopefully by week36 he can be NED.

      Now that is some great news. 

      Thank you all for your prayers we both really appreciate them.

      Judy wife of Gene_S stage IV since Oct. 2010.

      Update on Gene:  The inoperable tumor on the head pushing on the spine is gone and has new cell growth on the spine, the big one in the liver is 75% shrunk,  the one in the lung is gone and all the others in the liver have greatly shrunk or totally are gone. 

      Hopefully by week36 he can be NED.

      Now that is some great news. 

      Thank you all for your prayers we both really appreciate them.

      Judy wife of Gene_S stage IV since Oct. 2010.

    Viewing 17 reply threads
    • Replies
        • August 20, 2011 at 12:01 pm
        Lisa13
        Participant

          Judy,

          That is beyond great news!  Hope continues and I"m so happy for you both! Having started ipi myself, I can only wish that I have the success Gene is getting.

          I wish you both continued success and NED on Week 36.

          Lisa – Stage 4

            • August 20, 2011 at 12:48 pm
            Vermont_Donna
            Participant

              FANTASTIC news!!!! Hope it all continues to go well!

              Vermont_Donna, stage 3a, NED

              • August 20, 2011 at 12:48 pm
              Vermont_Donna
              Participant

                FANTASTIC news!!!! Hope it all continues to go well!

                Vermont_Donna, stage 3a, NED

              • August 20, 2011 at 12:01 pm
              Lisa13
              Participant

                Judy,

                That is beyond great news!  Hope continues and I"m so happy for you both! Having started ipi myself, I can only wish that I have the success Gene is getting.

                I wish you both continued success and NED on Week 36.

                Lisa – Stage 4

                • August 20, 2011 at 12:53 pm
                FormerCaregiver
                Participant

                  Judy, that is truly wonderful news! You and Gene are in my thoughts and prayers.

                  Frank from Australia

                  • August 20, 2011 at 12:53 pm
                  FormerCaregiver
                  Participant

                    Judy, that is truly wonderful news! You and Gene are in my thoughts and prayers.

                    Frank from Australia

                    • August 20, 2011 at 1:19 pm
                    Fen
                    Participant

                      What wonderful news.  Prayers for NED.

                      Fen

                      • August 20, 2011 at 1:19 pm
                      Fen
                      Participant

                        What wonderful news.  Prayers for NED.

                        Fen

                        • August 20, 2011 at 1:20 pm
                        akls
                        Participant

                          Wow!  I love all this good news!!  This is great.  Thanks for sharing.

                           

                          Amy S. in Michigan

                          • August 20, 2011 at 1:20 pm
                          akls
                          Participant

                            Wow!  I love all this good news!!  This is great.  Thanks for sharing.

                             

                            Amy S. in Michigan

                            • August 20, 2011 at 4:31 pm
                            triciad
                            Participant

                              This is a fantasic day on the board.  I am so happy to be reading about such good news from everyone.  Congratulations and best of luck to Gene's NED status.  I'll be looking forward to reading even better news at week 36.  Keep the momentum going!

                              Tricia

                              • August 20, 2011 at 4:31 pm
                              triciad
                              Participant

                                This is a fantasic day on the board.  I am so happy to be reading about such good news from everyone.  Congratulations and best of luck to Gene's NED status.  I'll be looking forward to reading even better news at week 36.  Keep the momentum going!

                                Tricia

                                • August 20, 2011 at 5:24 pm
                                bs010kbb
                                Participant

                                  Judy, this is such wonderful news of Gene's response. May you and Gene continue with such wonderful blessings. Looking forward to week 36 and hearing that Gene is NED. Continued thoughts and prayers –

                                  • August 20, 2011 at 5:24 pm
                                  bs010kbb
                                  Participant

                                    Judy, this is such wonderful news of Gene's response. May you and Gene continue with such wonderful blessings. Looking forward to week 36 and hearing that Gene is NED. Continued thoughts and prayers –

                                    • August 21, 2011 at 12:43 am
                                    James from Sydney
                                    Participant

                                      What great news we all needed to hear some good Ippi stories. We should change his name to The Genie!

                                      best wishes

                                      James

                                      • August 21, 2011 at 12:43 am
                                      James from Sydney
                                      Participant

                                        What great news we all needed to hear some good Ippi stories. We should change his name to The Genie!

                                        best wishes

                                        James

                                        • August 21, 2011 at 6:33 pm
                                        shellebrownies
                                        Participant

                                          This is great news! Congrats!

                                          Michelle, wife of Don

                                          • August 21, 2011 at 6:33 pm
                                          shellebrownies
                                          Participant

                                            This is great news! Congrats!

                                            Michelle, wife of Don

                                            • August 21, 2011 at 6:41 pm
                                            killmel
                                            Participant

                                              hi

                                              i am new here and very interested in trials with ipi.

                                              i would appreciate knowing what kind of side effects gene had with ipi.

                                              what dosage was he taking?

                                              when & how did he take gm-csf? does he still take gm-csf? is he still taking ipi?

                                              wishing you ned status and thanks for answering my questions.

                                              newbie

                                                • August 21, 2011 at 9:52 pm
                                                Gene_S
                                                Participant

                                                  Hi newbie,

                                                  In March 2011, I started with the Ipi Clinical Trial with the GM-CSF.  I believe it is the 10 mg per kg but not exactly sure of the ratio but do know it is the 10.

                                                  The GM-CSF is a 1 ml shot taken for 14 days then 1 week off before starting again.  For 12 weeks had the Ipi every 3 weeks and now in the maintenance get it ever 12 weeks from the last one while still taking the GM-CSF as before.

                                                  Judy wife of Gene_S

                                                  • August 21, 2011 at 9:52 pm
                                                  Gene_S
                                                  Participant

                                                    Hi newbie,

                                                    In March 2011, I started with the Ipi Clinical Trial with the GM-CSF.  I believe it is the 10 mg per kg but not exactly sure of the ratio but do know it is the 10.

                                                    The GM-CSF is a 1 ml shot taken for 14 days then 1 week off before starting again.  For 12 weeks had the Ipi every 3 weeks and now in the maintenance get it ever 12 weeks from the last one while still taking the GM-CSF as before.

                                                    Judy wife of Gene_S

                                                    • August 21, 2011 at 10:21 pm
                                                    Gene_S
                                                    Participant

                                                      Oops sorry I missed the side effects part: Ipi itch, rash, some flushing.  Stiff knee joints, insomnia and not sure if Ipi or GM-CSF.  Raised hot areas around the injection sites which subsided around week 8 or 9.

                                                      • August 21, 2011 at 10:21 pm
                                                      Gene_S
                                                      Participant

                                                        Oops sorry I missed the side effects part: Ipi itch, rash, some flushing.  Stiff knee joints, insomnia and not sure if Ipi or GM-CSF.  Raised hot areas around the injection sites which subsided around week 8 or 9.

                                                      • August 21, 2011 at 6:41 pm
                                                      killmel
                                                      Participant

                                                        hi

                                                        i am new here and very interested in trials with ipi.

                                                        i would appreciate knowing what kind of side effects gene had with ipi.

                                                        what dosage was he taking?

                                                        when & how did he take gm-csf? does he still take gm-csf? is he still taking ipi?

                                                        wishing you ned status and thanks for answering my questions.

                                                        newbie

                                                    Viewing 17 reply threads
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