The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

The results are in.

Forums General Melanoma Community The results are in.

  • Post
    himynameiskevin
    Participant

    Well, they told me that this months scans show about another total decrease of about 10% since last months scans. So now to about 20% decrease overall. There's nothing new and my brain is still clear. So this is good news. :)

    Well, they told me that this months scans show about another total decrease of about 10% since last months scans. So now to about 20% decrease overall. There's nothing new and my brain is still clear. So this is good news. :)

    I'm not sure what this means or what to expect as far the future goes. I don't know if typically I can/should expect to see the same/similar results next month of if this stuff stops working after a couple of months.. I don't know. Probably varies person to person. But, I've made it another month and I guess we'll just see what next month says. So… that's it. That's my update. Sorry they're not quite as interesting these days. Not much going on but waiting for monthly scans. Which I should be happy about, and I am. But hopefully these updates put some hope and good feelings in some readers thoughts and minds. I met a guy today, who went to the NIH with advanced melanoma 17 years ago. They're cured him. He'd been going back for yearly checkups and they finally told him this visit he doesn't need to come back anymore. When the guy told me his story with tears of joy, and how thankful he was to overcome his situation.  It sure me feel good, and hopeful, like anything is possible. And hopefully my updates can do the same for any of you readers. Just as yours have done for me.  Anyway I'm home now after a long day of traveling and am going to catch up on some sleep. It's been a long couple of days. I'll be browsing the boards as usual,  and will have another update in a month. :) Take care everyone.

    -Kevin

    Loading spinner
Viewing 39 reply threads
  • Replies
      dawn dion
      Participant

      Congrats!!! I am always – happy to hear good news.  Like you said makes things a little more hopeful.   The best to you.

      Loading spinner
      dawn dion
      Participant

      Congrats!!! I am always – happy to hear good news.  Like you said makes things a little more hopeful.   The best to you.

      Loading spinner
      KellieSue
      Participant

      Congrats! That is great to hear. I'm so happy for you! May you have continued good scans!!!

      Kellie(from Iowa) Stage IV since June 2008

      Loading spinner
      KellieSue
      Participant

      Congrats! That is great to hear. I'm so happy for you! May you have continued good scans!!!

      Kellie(from Iowa) Stage IV since June 2008

      Loading spinner
      molly
      Participant

      Kevin, so happy for your good news!! Yes, good news is wonderful and inspiring here…keep it coming!!!

      molly

      Loading spinner
      molly
      Participant

      Kevin, so happy for your good news!! Yes, good news is wonderful and inspiring here…keep it coming!!!

      molly

      Loading spinner
      Carmon in NM
      Participant

      Thanks so much for sharing such good news! We all need inspiration when we can get it. Hopefully things will continue like this for you! Carmon in NM

      Loading spinner
      Carmon in NM
      Participant

      Thanks so much for sharing such good news! We all need inspiration when we can get it. Hopefully things will continue like this for you! Carmon in NM

      Loading spinner
      skysar
      Participant
      Kevin

      Wonderful news and continued success with the next set of scans. My next appt at MDA is March 22 for scans and meeting with doc to discuss TIL. What a great story about the other warrior at NIH. Gives me hope!

      Take care

      Sue
      Hotlanta

      Loading spinner
      skysar
      Participant
      Kevin

      Wonderful news and continued success with the next set of scans. My next appt at MDA is March 22 for scans and meeting with doc to discuss TIL. What a great story about the other warrior at NIH. Gives me hope!

      Take care

      Sue
      Hotlanta

      Loading spinner
      Bonnie Lea
      Participant

      Kevin, this is very good news indeed.   One step at a time.  I know its hard doing it this slow, but hey it gives us all a boost when the doctors tell us,  this news.

      when you write it here, I bet the whoops of joy sound each time someone reads it.  I know in my house, the kitties jump up with my hoops and yells at good news I read.

      Congrats.

      Bonnie Lea

      Loading spinner
      Bonnie Lea
      Participant

      Kevin, this is very good news indeed.   One step at a time.  I know its hard doing it this slow, but hey it gives us all a boost when the doctors tell us,  this news.

      when you write it here, I bet the whoops of joy sound each time someone reads it.  I know in my house, the kitties jump up with my hoops and yells at good news I read.

      Congrats.

      Bonnie Lea

      Loading spinner
      mimi0201
      Participant

      Kevin;  May we follow in your footsteps.  We are headed to NIH for Tues Feb 22 appt.  Keep your fingers crossed.

      Loading spinner
      mimi0201
      Participant

      Kevin;  May we follow in your footsteps.  We are headed to NIH for Tues Feb 22 appt.  Keep your fingers crossed.

      Loading spinner
      mimi0201
      Participant

      Kevin;  May we follow in your footsteps.  We are headed to NIH for Tues Feb 22 appt.  Keep your fingers crossed.

      Loading spinner
      mimi0201
      Participant

      Kevin;  May we follow in your footsteps.  We are headed to NIH for Tues Feb 22 appt.  Keep your fingers crossed.

      Loading spinner
      CLPrice31
      Participant

      Kevin,

      I love reading updates like yours! Congratulations on the good news! Hoping to hear more good news in the future!

      Loading spinner
      CLPrice31
      Participant

      Kevin,

      I love reading updates like yours! Congratulations on the good news! Hoping to hear more good news in the future!

      Loading spinner
      Rebecca and Bob
      Participant

      Kevin,

       

      When my husband did IL-2 one of the tumors in his lung stayed for year and only changed the first few months after treatment, so we waited and then he had surgery to remove it. The tissue was completely necrotic. Do they ever discuss PETScans to see if there is activity or do they have a certain amount of time they give it until they see if it's just shrinking and still active?

      Great news!!!

       

      Rebecca

       

       

      Loading spinner
      Rebecca and Bob
      Participant

      Kevin,

       

      When my husband did IL-2 one of the tumors in his lung stayed for year and only changed the first few months after treatment, so we waited and then he had surgery to remove it. The tissue was completely necrotic. Do they ever discuss PETScans to see if there is activity or do they have a certain amount of time they give it until they see if it's just shrinking and still active?

      Great news!!!

       

      Rebecca

       

       

      Loading spinner
      glewis923
      Participant

      Hey Kevin-

      Decrease or even stable is very good news !    I'm very happy for you.  Let's hope it goes down another 10%.  Sooner or later, the 10's will add up to ZERO !

      Sleep Well, Grady.

       

      Loading spinner
      glewis923
      Participant

      Hey Kevin-

      Decrease or even stable is very good news !    I'm very happy for you.  Let's hope it goes down another 10%.  Sooner or later, the 10's will add up to ZERO !

      Sleep Well, Grady.

       

      Loading spinner
      BethA in VA
      Participant

      I love hearing your good news.  Keep up the good work…and as far as what to expect in the future…A GOOD LIFE!  FREE OF MM.  You have done so good…and it will continue.  Lots of prayers sent your way.  Beth 3/B 

      Loading spinner
      BethA in VA
      Participant

      I love hearing your good news.  Keep up the good work…and as far as what to expect in the future…A GOOD LIFE!  FREE OF MM.  You have done so good…and it will continue.  Lots of prayers sent your way.  Beth 3/B 

      Loading spinner
      jag
      Participant

      Good to hear Kevin.  Very happy for you, may the rest of your tumors shrink like ice cubes in the desert.

      Loading spinner
      jag
      Participant

      Good to hear Kevin.  Very happy for you, may the rest of your tumors shrink like ice cubes in the desert.

      Loading spinner
      paul
      Participant

      That's a very encouraging report; thanks for posting it. Wishing you continued strength and good spirits.

      Paul

      Loading spinner
      paul
      Participant

      That's a very encouraging report; thanks for posting it. Wishing you continued strength and good spirits.

      Paul

      Loading spinner
      paul
      Participant

      That's a very encouraging report; thanks for posting it. Wishing you continued strength and good spirits.

      Paul

      Loading spinner
        Vermont_Donna
        Participant

        Good news Kevin, steady steps forward!

        Vermont_Donna, stage 3a

        stable after 4 rounds of Ipi

        Loading spinner
        Vermont_Donna
        Participant

        Good news Kevin, steady steps forward!

        Vermont_Donna, stage 3a

        stable after 4 rounds of Ipi

        Loading spinner
      paul
      Participant

      That's a very encouraging report; thanks for posting it. Wishing you continued strength and good spirits.

      Paul

      Loading spinner
      Sharyn
      Participant

      Hi Kevin! Great report! Keep up those positive thoughts and energy. We're shooting for 30% reduction next month.

      Hugs

      Sharyn, Stage IV

      Loading spinner
      Sharyn
      Participant

      Hi Kevin! Great report! Keep up those positive thoughts and energy. We're shooting for 30% reduction next month.

      Hugs

      Sharyn, Stage IV

      Loading spinner
      ValinMtl
      Participant

      Thanks for the update Kevin.  You always know we are on your team and cheering for you to win against the beast.  It's nice to hear things like the 17 year survivor…I"m sure it made you feel stronger to know there is a light a the end of the tunnel.  Val

      Loading spinner
      ValinMtl
      Participant

      Thanks for the update Kevin.  You always know we are on your team and cheering for you to win against the beast.  It's nice to hear things like the 17 year survivor…I"m sure it made you feel stronger to know there is a light a the end of the tunnel.  Val

      Loading spinner
      Suzan AB
      Participant

      Kevin,

      Thank you for sharing your strength and hope with us! 

      My best,

      Suzan AB

      Stage IV, lung mets…in a holding pattern…

      Loading spinner
      Suzan AB
      Participant

      Kevin,

      Thank you for sharing your strength and hope with us! 

      My best,

      Suzan AB

      Stage IV, lung mets…in a holding pattern…

      Loading spinner
      himynameiskevin
      Participant

      "…kitties jumping with hoops…"  ha.
      "…sooner or later 10s add up to zero…"
      "…tumors shrink like ice cubes in the desert…"
      among all the others.

      Thank you for all the encouraging and thoughtful words. It really means a lot.
      Brings a smile to this face.

      Loading spinner
      himynameiskevin
      Participant

      "…kitties jumping with hoops…"  ha.
      "…sooner or later 10s add up to zero…"
      "…tumors shrink like ice cubes in the desert…"
      among all the others.

      Thank you for all the encouraging and thoughtful words. It really means a lot.
      Brings a smile to this face.

      Loading spinner
      MRFUser2011
      Participant

      Kevin, so glad to check in and get to read your good news.  I so rarely read the board but seems whenever I am feeling really low or apprehensive, I sign on and someone has posted something that makes me feel good for them and gives me hope for all of us.  May you keep seeing these decreases and thanks so much for taking the time to share (traveling can be so exhausting).

      Blessings,

      Shari

      Loading spinner
      MRFUser2011
      Participant

      Kevin, so glad to check in and get to read your good news.  I so rarely read the board but seems whenever I am feeling really low or apprehensive, I sign on and someone has posted something that makes me feel good for them and gives me hope for all of us.  May you keep seeing these decreases and thanks so much for taking the time to share (traveling can be so exhausting).

      Blessings,

      Shari

      Loading spinner
Viewing 39 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.