› Forums › General Melanoma Community › Still NED at Stage IV
- This topic has 96 replies, 43 voices, and was last updated 13 years, 9 months ago by KevinM.
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- November 17, 2010 at 10:15 pm
Sometimes, one hesitates to post the great news when others are deep in battle. My reason for posting is to give others hope that is so essential in battling melanoma.
Sometimes, one hesitates to post the great news when others are deep in battle. My reason for posting is to give others hope that is so essential in battling melanoma.
I was at Moffitt today to get the results of the CT of the neck, thorax, abdomen, pelvis and the MRI of the brain that I had last week. There is no evidence of melanoma! I had advanced to Stage IV in 2005 with liver metastasis. I had a major recurrence in 2008 with a peri-pancreatic tumor and a sub q. I've not had a recurrence since that time. I think most of my success has been because of my very aggressive surgeon but who knows? So many factors probably play into it.
I wish everyone could be as fortunate as I have been. I thank everyone on this Board for their support and friendship over the years. There are times that I would have felt so alone without the people on this Board.
Stay Strong
King/KathieStage III 2004 Unknown primary
Groin Lymph Node Dissection 2004
Interferon 2004-2005
Liver mets 2005 (4.5 cm tumor)
Liver resection (70% of liver removed) and Gall Bladder removed 2005
GM-CSF Phase II Clinical Trial 2005-2006
Peri-pancreatic tumor, sub q on buttock/hip 2008
Extensive surgery to remove both 2008
Have been NED ever since
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- November 17, 2010 at 10:22 pm
Kathie,
I'm so happy to hear your good news! Please keep posting the positive. You have been such an inspiration for myself during my diagnosis and treatment. I'm thrilled your tests were good and you continue your NED status!
Congrats!
Amy S. in Michigan
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- November 17, 2010 at 10:22 pm
Kathie,
I'm so happy to hear your good news! Please keep posting the positive. You have been such an inspiration for myself during my diagnosis and treatment. I'm thrilled your tests were good and you continue your NED status!
Congrats!
Amy S. in Michigan
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- November 17, 2010 at 11:18 pm
You da King!
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- November 17, 2010 at 11:18 pm
You da King!
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- November 17, 2010 at 11:20 pm
Kathie,
When I began my journey, entered the MPIP world in March 2005 with Stage III melanoma, you are one of the stand-out people I recall. I was in awe over your journey and at the same time frightened for you, awed at your participation on the board with all that you were having happen to you. I became inspired and so, so happy, relieved, impressed and HOPEFUL with your successes. And you continue to be a constant hope here for so many others. You are part of the old gang, the original people I remember participating in "bashes" I still look up to all of you with such awe and respect. You are part of the foundation of my confidence in knowledge and experience with melanoma. I would look at the Melasuckanoma site and familiarize myself with faces and names, wishing I could have participated in the bashes.
I celebrate this day with you, and pray for continued NED days. Happy Thanksgiving. How nice it is to have this behind you for the holidays.
CarolA
Stage III and holding
Amherst, NY
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- November 17, 2010 at 11:20 pm
Kathie,
When I began my journey, entered the MPIP world in March 2005 with Stage III melanoma, you are one of the stand-out people I recall. I was in awe over your journey and at the same time frightened for you, awed at your participation on the board with all that you were having happen to you. I became inspired and so, so happy, relieved, impressed and HOPEFUL with your successes. And you continue to be a constant hope here for so many others. You are part of the old gang, the original people I remember participating in "bashes" I still look up to all of you with such awe and respect. You are part of the foundation of my confidence in knowledge and experience with melanoma. I would look at the Melasuckanoma site and familiarize myself with faces and names, wishing I could have participated in the bashes.
I celebrate this day with you, and pray for continued NED days. Happy Thanksgiving. How nice it is to have this behind you for the holidays.
CarolA
Stage III and holding
Amherst, NY
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- November 17, 2010 at 11:42 pm
We really need the good news right now. Everyday I have been checking and it has been so sad that I turn away from the board. We need to hear the good news, it is what keeps us going.
Rebecca wife to Bob stage IV NED since July 2009.
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- November 17, 2010 at 11:42 pm
We really need the good news right now. Everyday I have been checking and it has been so sad that I turn away from the board. We need to hear the good news, it is what keeps us going.
Rebecca wife to Bob stage IV NED since July 2009.
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- November 18, 2010 at 1:10 am
YAY!! Today has been full of good news! Keep it up!!!!
Wendi
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- November 18, 2010 at 1:10 am
YAY!! Today has been full of good news! Keep it up!!!!
Wendi
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- November 18, 2010 at 2:11 am
Love to hear good news. I'm happy for you. Enjoy your NED status. Beth 3/B
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- November 18, 2010 at 2:11 am
Love to hear good news. I'm happy for you. Enjoy your NED status. Beth 3/B
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- November 18, 2010 at 3:07 am
You're our girl!!!!! Don't need to tell you what an inspiration you are to everyone and hearing this news give such encouragement to all those fighting. Keep living every day ..which I know you do so well! And don't foget those gelatos and mojitos! LOL ..
Love,
Mary
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- November 18, 2010 at 3:07 am
You're our girl!!!!! Don't need to tell you what an inspiration you are to everyone and hearing this news give such encouragement to all those fighting. Keep living every day ..which I know you do so well! And don't foget those gelatos and mojitos! LOL ..
Love,
Mary
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- November 18, 2010 at 4:12 am
Hi Kathie,
Thank you for sharing the news! You are an inspiration to many of us, and have also always been a positive force on this board who offers encouragment and hope. I am so glad for you and wish you many more years of being NED. Have a wonderful holiday season and keep smiling 🙂
Best,
Jim
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- November 18, 2010 at 4:12 am
Hi Kathie,
Thank you for sharing the news! You are an inspiration to many of us, and have also always been a positive force on this board who offers encouragment and hope. I am so glad for you and wish you many more years of being NED. Have a wonderful holiday season and keep smiling 🙂
Best,
Jim
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- November 18, 2010 at 5:20 am
Thanks for posting the good news. The take-away from your post is that you don't know for sure what accounts for your survival. While the mysterious pathways of melanoma is its curse, it can also be its blessing. You are well, and for now that's something to celebrate.
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- November 18, 2010 at 5:20 am
Thanks for posting the good news. The take-away from your post is that you don't know for sure what accounts for your survival. While the mysterious pathways of melanoma is its curse, it can also be its blessing. You are well, and for now that's something to celebrate.
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- November 18, 2010 at 12:26 pm
Of course you post that wonderful news – then you go out and celebrate!!!
I know everyone looks for the positives when first coming to this board and having people like you write in with your history and how well you are doing now is HOPE for all. Thank you for posting and yes what a wonderful THanksgiving for you and your family enjoy!
laurie from maine 🙂
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- November 18, 2010 at 12:26 pm
Of course you post that wonderful news – then you go out and celebrate!!!
I know everyone looks for the positives when first coming to this board and having people like you write in with your history and how well you are doing now is HOPE for all. Thank you for posting and yes what a wonderful THanksgiving for you and your family enjoy!
laurie from maine 🙂
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- November 18, 2010 at 1:37 pm
NEVER,NEVER feel guilty when you have good news to share. There are so many of us on here that have not had good news and it certainly makes me say "take that you piece of crap" to the melanoma. You certainly have earned your NED and be proud of it. I pray you continue to have good scan results and you can prove that stage IV is NOT a death sentance to everybody. Yes there will be some whom it will be but not ALL. Thanks for posting and good luck with your future scans and continue to keep us updated. Live life like it may be gone tomorrow~~~~because it may!
Linda/Kentucky
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- November 18, 2010 at 1:37 pm
NEVER,NEVER feel guilty when you have good news to share. There are so many of us on here that have not had good news and it certainly makes me say "take that you piece of crap" to the melanoma. You certainly have earned your NED and be proud of it. I pray you continue to have good scan results and you can prove that stage IV is NOT a death sentance to everybody. Yes there will be some whom it will be but not ALL. Thanks for posting and good luck with your future scans and continue to keep us updated. Live life like it may be gone tomorrow~~~~because it may!
Linda/Kentucky
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- November 18, 2010 at 2:20 pm
Oh, thank you so much for posting and congratulations to you! Each day I wake up with this dread over my head that I have to fight. It helps so much to read good news.
Gwen in Maine, IIIc
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- November 18, 2010 at 2:20 pm
Oh, thank you so much for posting and congratulations to you! Each day I wake up with this dread over my head that I have to fight. It helps so much to read good news.
Gwen in Maine, IIIc
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- November 18, 2010 at 4:45 pm
Good Lord, Kathie! You don't have to apologize for posting such wonderful news! How dreary the board would be if it were just a continual list of bad reports? We need your great news, and the good news stories of all the other warriors. It's what keeps the rest of us going, and gives us hope! Anyway, I am absolutely thrilled with your report, and I hope it continues for many years to come.
I'm going to Montreal next Wed for my 4th ipi infusion on Thurs, then off to Las Vegas on Sat for 4 days, then to Longboat Key FL for a week at my father-in-law's condo right on the beach, (Don't you just hate me? LOL!!), and then back to Montreal for my 12-week scan on Dec 8, and fly home to Newfoundland that night.
I'll drink to your great news tomorrow night when we go up to our cabin (aka cottage). Cheers to you!!
Hugs
Sharyn, Stage IV
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- November 18, 2010 at 4:45 pm
Good Lord, Kathie! You don't have to apologize for posting such wonderful news! How dreary the board would be if it were just a continual list of bad reports? We need your great news, and the good news stories of all the other warriors. It's what keeps the rest of us going, and gives us hope! Anyway, I am absolutely thrilled with your report, and I hope it continues for many years to come.
I'm going to Montreal next Wed for my 4th ipi infusion on Thurs, then off to Las Vegas on Sat for 4 days, then to Longboat Key FL for a week at my father-in-law's condo right on the beach, (Don't you just hate me? LOL!!), and then back to Montreal for my 12-week scan on Dec 8, and fly home to Newfoundland that night.
I'll drink to your great news tomorrow night when we go up to our cabin (aka cottage). Cheers to you!!
Hugs
Sharyn, Stage IV
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- November 18, 2010 at 6:12 pm
Oh Kathie,
This news is so wonderful, you have been NED longer as Stage 4 then Stage 3. You have been such an inspiration to so many, but you were my first MPIP friend! I sure wish we could get together again but for now we'll have to settle for facebook & here. Give Tim our love and squeeze little Ava for me.
Nancy D
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- November 18, 2010 at 6:12 pm
Oh Kathie,
This news is so wonderful, you have been NED longer as Stage 4 then Stage 3. You have been such an inspiration to so many, but you were my first MPIP friend! I sure wish we could get together again but for now we'll have to settle for facebook & here. Give Tim our love and squeeze little Ava for me.
Nancy D
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- November 19, 2010 at 4:22 am
Kathie, Thank -you for sharing your wonderful news. I, too, have been stage IV NED for almost 3 years. I post on here rarely anymore, but saw your post and can remember your posts over the 5 years I have been on here. I wonder why I have had a durable response to my Temodar treatment of my lung met…I don't know and feel so fortunate. Thanks for giving me hope that treating more than one recurrence at stage IV can be sucessful.
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- November 19, 2010 at 4:22 am
Kathie, Thank -you for sharing your wonderful news. I, too, have been stage IV NED for almost 3 years. I post on here rarely anymore, but saw your post and can remember your posts over the 5 years I have been on here. I wonder why I have had a durable response to my Temodar treatment of my lung met…I don't know and feel so fortunate. Thanks for giving me hope that treating more than one recurrence at stage IV can be sucessful.
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- November 19, 2010 at 5:03 am
Kathy,
As a fellow member of the class of '05, I am thrilled to hear this news!
I hadn't been on the board for a while, so it was great to see this as one of the first posts I read….such wonderful and encouraging news for all!
karen-jean
stage IV-'05
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- November 19, 2010 at 5:03 am
Kathy,
As a fellow member of the class of '05, I am thrilled to hear this news!
I hadn't been on the board for a while, so it was great to see this as one of the first posts I read….such wonderful and encouraging news for all!
karen-jean
stage IV-'05
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- November 19, 2010 at 2:11 pm
Thanks for posting your wonderful news, Kathie. You continue to inspire and give hope to those of us still struggling with Stage IV. All the best to you and your family. Have a wonderful Thanksgiving!
Bruce in New Hampshire
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- November 19, 2010 at 2:11 pm
Thanks for posting your wonderful news, Kathie. You continue to inspire and give hope to those of us still struggling with Stage IV. All the best to you and your family. Have a wonderful Thanksgiving!
Bruce in New Hampshire
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- November 21, 2010 at 4:27 am
Love to here this kind of news. Keep it coming, Gal.
JerryfromFauq
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- November 21, 2010 at 4:27 am
Love to here this kind of news. Keep it coming, Gal.
JerryfromFauq
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- November 22, 2010 at 6:23 am
Hi, Kathie. Haven't been on the board in weeks so I was ecstatic to read your post tonight. I am so glad that your scan results remain NED!
Your presence on this board has helped me in so many ways. Thanks for continuing to share your journey with all of us. You are very special!!!!
Eileen L
Stage IV
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- November 22, 2010 at 6:23 am
Hi, Kathie. Haven't been on the board in weeks so I was ecstatic to read your post tonight. I am so glad that your scan results remain NED!
Your presence on this board has helped me in so many ways. Thanks for continuing to share your journey with all of us. You are very special!!!!
Eileen L
Stage IV
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- November 23, 2010 at 3:58 pm
That's great news!! I just became a member of this site yesterday as I was just diagnosed Friday November 19th the day before my 46th birthday. This is all new to me and I'm scared. Your story makes me feel more positive. I don't know what stage I'm in yet as I meet with my surgeon for the 1st time December 9th. I am praying alot!
Kristy
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- November 23, 2010 at 3:58 pm
That's great news!! I just became a member of this site yesterday as I was just diagnosed Friday November 19th the day before my 46th birthday. This is all new to me and I'm scared. Your story makes me feel more positive. I don't know what stage I'm in yet as I meet with my surgeon for the 1st time December 9th. I am praying alot!
Kristy
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- March 8, 2011 at 11:20 pm
Lock smith irruption bioautography Baltimore locksmith Park diplococcic -
- March 8, 2011 at 11:20 pm
Lock smith irruption bioautography Baltimore locksmith Park diplococcic -
- March 9, 2011 at 12:09 am
This is wonderful news! Could it be possible that GM-CSF has had some
lasting beneficial effect? The following article (from 2004) says "that
despite the lack of effect on disease recurrence, the character of the
recurrence is changed, in that they are solitary, and allow for surgical
excision …"For more info:
http://findarticles.com/p/articles/mi_hb6366/is_4_16/ai_n29117364/Frank
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- March 9, 2011 at 12:09 am
This is wonderful news! Could it be possible that GM-CSF has had some
lasting beneficial effect? The following article (from 2004) says "that
despite the lack of effect on disease recurrence, the character of the
recurrence is changed, in that they are solitary, and allow for surgical
excision …"For more info:
http://findarticles.com/p/articles/mi_hb6366/is_4_16/ai_n29117364/Frank
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- March 9, 2011 at 1:14 am
This is an old post (from 11/10) but there was an Anonymous comment left today that brought it to Page 1. It looks like some sort of spam and I noticed this on some one else's old post within the last few days. The post read:
Lock smith irruption bioautography Baltimore locksmith Park diplococcic
Stay Strong
King
Stage IV 7/05 Liver mets
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- March 9, 2011 at 1:14 am
This is an old post (from 11/10) but there was an Anonymous comment left today that brought it to Page 1. It looks like some sort of spam and I noticed this on some one else's old post within the last few days. The post read:
Lock smith irruption bioautography Baltimore locksmith Park diplococcic
Stay Strong
King
Stage IV 7/05 Liver mets
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- March 9, 2011 at 4:39 pm
Wonderful news, Kathie! Thanks so much for posting. I'm so happy for you.
Gwen in Maine
Stage IIIc, currently on Leukine for a year
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- March 9, 2011 at 4:39 pm
Wonderful news, Kathie! Thanks so much for posting. I'm so happy for you.
Gwen in Maine
Stage IIIc, currently on Leukine for a year
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- March 9, 2011 at 4:40 pm
Wonderful news, Kathie! Thanks so much for posting. I'm so happy for you.
Gwen in Maine
Stage IIIc, currently on Leukine for a year
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- March 9, 2011 at 4:40 pm
Wonderful news, Kathie! Thanks so much for posting. I'm so happy for you.
Gwen in Maine
Stage IIIc, currently on Leukine for a year
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