Background: radiation and IL-2 in January. Finished end of May. End of June found 25 brain mets, and cancer all over the body. One dose of IPI, began Temodar same day. 12 week post IPI scans came back today:
Background: radiation and IL-2 in January. Finished end of May. End of June found 25 brain mets, and cancer all over the body. One dose of IPI, began Temodar same day. 12 week post IPI scans came back today:
The nurse practitioner came into the room with the biggest smile on her face. "Good news?" I ask, as my smile starts matching hers. "Yes, just read it." She handed me the print out from the radiologist.
MRI Brain wwo Cont
"Just skip to the end."
IMPRESSION:
Interval near complete resolution of enhancement associated with multiple metastatic lesions. Very faint residual enhancement associated with a right frontal parafalcine mass. No new enhancing lesions, acute ischemia, or hemorrhagic metastases.
Me (kind of tearing up): "So this is uncommon, yes?"
Her: "This like…never happens."
She hands me the other report.
PET CT Whole Body
Again I skip the bottom.
Impression:
1. Marked interval improvement suggesting treatement response having demonstrated between 50 and 100 hypermetabolic lesions on prior imaging, now demonstrating 4 hypermetabolic lesions. Lesions include a right adrenal nodule, nodule superior to the right kidney, anterior mediastinal nodule, and right axillary node.
2. Increased activity withing the right maxilla consistent with periodotal disease.
3. Multiple small metastatic lesions demonstrated on the prior MR of the brain are too small to characterize by PET.
You read that right. 4 tumors left. None of them in the brain.
ARE YOU KIDDING ME??? I am still in shock. I know I still have cancer, but lots less, and nothing new. Such a good day for my little family! Had to share!
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