MRF-Logo2019-Horizontal-RGB
ONE full year NED!
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

ONE full year NED!

› Forums › General Melanoma Community › ONE full year NED!

  • Post
    • August 6, 2017 at 3:52 pm
    WithinMySkin
    Participant

      Hello everyone!

      There are a lot of new names and faces on this board since I was diagnosed in March of 2015 stage IIIB. Quick summary of my journey – I tried some serious lifestyle changes, but unfortunately progressed to Stage IIIC and had a CLND of my left groin in Dec. 2015 followed by Interferon. I continued to progress, and went on the Ipi/Nivo combo last spring (while leaving in one of the in-transits). My latests clear scan means that I'm one full year being NED – HOORAY!!! I can't believe its been a year!

      I had lots of different side effects and I feel like I tried it all on this wild ride. It's a roller coaster for sure. Cancer is a curse, but at the same time, it's changed my life in so many ways that I wouldn't change my journey one bit. It truly made me realize that EVERY DAY is a blessing and I'm more grateful than ever.

      To all those who are still fighting – keep up the good fight! Having melanoma tests your faith in everything – God, family, life, who you are, the whole shebang. Keep the faith. Keep fighting. Give it hell. And before you know it, YOU will be the one here writting about being one year NED! 

      Wishing everyone here health and happiness!

      Lauren

    Viewing 15 reply threads
    • Replies
        • August 6, 2017 at 4:27 pm
        jennunicorn
        Participant

          Good to hear from you Lauren, and CONGRATS!! 

            • August 7, 2017 at 1:17 am
            WithinMySkin
            Participant

              Thanks, Jenn! Hope you're still kicking butt with the maintenance doses! 

            • August 6, 2017 at 4:49 pm
            Mamapegela
            Participant

              Such great news!  It is always encouraging to hear people making it through tough times to NED.  All the best to you.

              Peggy

                • August 7, 2017 at 1:20 am
                WithinMySkin
                Participant

                  Thanks, Peggy! All the best to you as well! 

                • August 6, 2017 at 5:25 pm
                Casitas1
                Participant

                  Outstanding! Welcome to the club!

                  Best, Paul

                    • August 7, 2017 at 1:20 am
                    WithinMySkin
                    Participant

                      Glad to be in the club, Paul! Thanks! 

                    • August 6, 2017 at 5:55 pm
                    sister of patient
                    Participant

                      Excellent news – and what a lovely spirit you have Lauren!! Best wishes always!

                      Barb

                        • August 7, 2017 at 1:23 am
                        WithinMySkin
                        Participant

                          Thank you, Barb! Best wishes to you in your journey! 

                        • August 6, 2017 at 11:27 pm
                        Sharon93065
                        Participant

                          Thank you for sharing.  Gives the rest of us all hope.  In 10 days i get my 4th and final Opdivo/Yervoy.  I can't believe I've made it this far.  I've read where so many had such severe side effects they couldn't make it to the 4th.  Of course i have to get my blood work next week.  Other than fatique i feel really good.  My friends looks and me and cannot believe I have what i call my 'conditon.' I don't want to call it the other C word.  How dare it invade my body!  God has been good.  So many praying for me.

                          Thank you for sharing and listening.

                           

                            • August 7, 2017 at 1:25 am
                            WithinMySkin
                            Participant

                              I'll be praying for a smooth 4th infusion for you as well, Sharon! Hang in there! 

                            • August 6, 2017 at 11:38 pm
                            CindyJ
                            Participant

                              Congrats Lauren, such great inspirational news!!!

                                • August 7, 2017 at 1:31 am
                                WithinMySkin
                                Participant

                                  Thank you! I remember frantically scanning the board and seeing very few positive posts while going through treatment. But those few posts warmed my heart to know that it could be me one day. I hope to always post about NED milestones to let others know it's possible! 

                                • August 7, 2017 at 3:30 am
                                guynamedbilly
                                Participant

                                  Congratulations! I can't imagine the relief you must feel.  I start my first injections in a week and a half.  Can't wait for my first anniversary.

                                  • August 7, 2017 at 5:16 am
                                  sgreenberg
                                  Participant

                                    Congrats!

                                    • August 7, 2017 at 5:37 am
                                    Polymath
                                    Participant

                                      Great news Lauren, may the NED be with always!

                                      Gary

                                      • August 7, 2017 at 4:11 pm
                                      Jahendry12
                                      Participant

                                        Congrats Lauren!!!  Wishing you many many more years with NED!!!

                                         

                                        • August 7, 2017 at 5:38 pm
                                        Julie in SoCal
                                        Participant

                                          Excellent!  This is good news and worthy of a happy dance or two!

                                          Thanks for sharing!

                                          Julie

                                          • August 7, 2017 at 11:43 pm
                                          jenny22
                                          Participant

                                            Congratulations Lauren…..no better words you could have heard!  May it last forever!!!

                                            Wishing you all the best…..

                                            Jenny

                                             

                                            • August 8, 2017 at 12:52 am
                                            Ridingaroundwith27Jennifers
                                            Participant

                                              Congratulations!  It's so good to hear your news!

                                              • August 8, 2017 at 3:45 pm
                                              WithinMySkin
                                              Participant
                                                Thanks so much, everyone! This board is such an amazing support group – you are ALL in my thought and prayers!

                                                Lauren

                                                • August 8, 2017 at 8:32 pm
                                                Hukill
                                                Participant

                                                  Congratulations!!!!!

                                                  • October 31, 2017 at 8:53 pm
                                                  melanomafighter
                                                  Participant

                                                    Congrats!

                                                Viewing 15 reply threads
                                                • You must be logged in to reply to this topic.
                                                About the MRF Patient Forum

                                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                Popular Topics