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GSK BRAF 9 Month Scan-METS SHRINKING AWAY

Forums General Melanoma Community GSK BRAF 9 Month Scan-METS SHRINKING AWAY

  • Post
    mrsmarilyn
    Participant

      Hello-Everyone.  Just want to say my brother Gary is at his 9 month mark on GSK Braf-all METS almost gone.  Even one on his lung.  He has been invited to speak at a group of researches in Nashville-based on his progress.  How is anyone else out there doing on GSK Braf?!  He was asking me to share the good news and see what the progress is of anyone else out there.  Before he went on GSK Braf- Mets were going out of control.  He will continue on – and my best wishes to all – thank you again for any feedback!  Feel free to email direct.

      Hello-Everyone.  Just want to say my brother Gary is at his 9 month mark on GSK Braf-all METS almost gone.  Even one on his lung.  He has been invited to speak at a group of researches in Nashville-based on his progress.  How is anyone else out there doing on GSK Braf?!  He was asking me to share the good news and see what the progress is of anyone else out there.  Before he went on GSK Braf- Mets were going out of control.  He will continue on – and my best wishes to all – thank you again for any feedback!  Feel free to email direct.

      MrsMarilyn

      Sister of Gary (Stage IV)

    Viewing 13 reply threads
    • Replies
        Jim in Denver
        Participant

          Marilyn,

          Great news!  Thanks for posting.  The feedback on this trial is very encouraging so far.  Best wishes to Gary, you and your family.  Please let us know how he is doing in the months ahead.

          Best,

          Jim

          Jim in Denver
          Participant

            Marilyn,

            Great news!  Thanks for posting.  The feedback on this trial is very encouraging so far.  Best wishes to Gary, you and your family.  Please let us know how he is doing in the months ahead.

            Best,

            Jim

            EricNJill
            Participant

              Thank God!  We are actually looking into this trial.  This gives us hope!  Thank you for sharing your brother's success story!

              Jill N Eric in OH

              EricNJill
              Participant

                Thank God!  We are actually looking into this trial.  This gives us hope!  Thank you for sharing your brother's success story!

                Jill N Eric in OH

                himynameiskevin
                Participant

                  Great News! Makes me feel great to know there are options and positive responces. I'm braf+, I'll definetly be looking into this. Thanks for the update. -Kevin

                  himynameiskevin
                  Participant

                    Great News! Makes me feel great to know there are options and positive responces. I'm braf+, I'll definetly be looking into this. Thanks for the update. -Kevin

                    LBN
                    Participant

                      Great news! I have been on GSK braf for 6 weeks so far and Mets are shrinking. My leg has 110+ Mets so it may take some time for them go away. I am very excited to hear any news from someone who is one this trial. How were his side effects? My current side effect is a painful case of shingles. They said any dormant virus may work it's way out on this trial and I hope I am not in for any more surprises like this one…but if I am here to complain about I guess things aren't all bad. 

                      LBN

                      LBN
                      Participant

                        Great news! I have been on GSK braf for 6 weeks so far and Mets are shrinking. My leg has 110+ Mets so it may take some time for them go away. I am very excited to hear any news from someone who is one this trial. How were his side effects? My current side effect is a painful case of shingles. They said any dormant virus may work it's way out on this trial and I hope I am not in for any more surprises like this one…but if I am here to complain about I guess things aren't all bad. 

                        LBN

                        mrsmarilyn
                        Participant

                          Thanks for the kind words.  He has no serious side effects-had a flu-like thing going on about the 3rd week with a rash- and it went away very quickly –just like it came on!  But other than that no other side effects!  He is at Nashville Sara Cannon — and I would highly recommend that facility for any interested in targeted treatment.  They have alot of new trials -and my brother seems to think there are open slots or slots opeining up soon.  Worth the trip to Nashville.  Please let me know if you need any more information!  Thanks to GSK and everyone else- so far – its been a miracle!

                          MrsMarilyn

                          Sister of Gary (stage IV)

                          mrsmarilyn
                          Participant

                            Thanks for the kind words.  He has no serious side effects-had a flu-like thing going on about the 3rd week with a rash- and it went away very quickly –just like it came on!  But other than that no other side effects!  He is at Nashville Sara Cannon — and I would highly recommend that facility for any interested in targeted treatment.  They have alot of new trials -and my brother seems to think there are open slots or slots opeining up soon.  Worth the trip to Nashville.  Please let me know if you need any more information!  Thanks to GSK and everyone else- so far – its been a miracle!

                            MrsMarilyn

                            Sister of Gary (stage IV)

                            LE COENT Rozen
                            Participant

                              Hi Marilyn,

                              my daughter Gaëlle (stage IV) started GSK Braf last Friday. Reading your posts gives me so much hope !

                              Can you tell me how long it took for Gary to really feel the mets were shrinking? Did he see a quick improvement?

                              All my best wishes to you and Gary. Thank you for sharing the good news.

                              Rozen (from France)

                               

                              LE COENT Rozen
                              Participant

                                Hi Marilyn,

                                my daughter Gaëlle (stage IV) started GSK Braf last Friday. Reading your posts gives me so much hope !

                                Can you tell me how long it took for Gary to really feel the mets were shrinking? Did he see a quick improvement?

                                All my best wishes to you and Gary. Thank you for sharing the good news.

                                Rozen (from France)

                                 

                                  mrsmarilyn
                                  Participant

                                    Hello Rozen & Gaelle!  You are going to do great!  My brother Gary saw reductions within the first month.  You will see drastic reductions each time.  I am so happy for you — and wish the best of luck!  Keep in touch!

                                    He had mets on his lungs – almost gone in nine months!  I will keep you in my thoughts!! and tell Gary you said Hi from France!!!  When you eat at McDonalds — think of Gary — he owns 15!!! 

                                    Talk to you later!!!!

                                    Marilyn

                                    Michigan

                                    USA

                                    mrsmarilyn
                                    Participant

                                      Hello Rozen & Gaelle!  You are going to do great!  My brother Gary saw reductions within the first month.  You will see drastic reductions each time.  I am so happy for you — and wish the best of luck!  Keep in touch!

                                      He had mets on his lungs – almost gone in nine months!  I will keep you in my thoughts!! and tell Gary you said Hi from France!!!  When you eat at McDonalds — think of Gary — he owns 15!!! 

                                      Talk to you later!!!!

                                      Marilyn

                                      Michigan

                                      USA

                                      LE COENT Rozen
                                      Participant

                                        Hi Marilyn and thank you indeed for your reply. I'm very happy and have forwarded your reply to Gaëlle.

                                        Gaëlle (30 yo) has got mets in her left breast and neck, abdomen, ovaries, vertebrae. She was on Ipi for a while but it didn't work. So she is now one of the 15 French patients on GSK Braf (this is her 4th day) and your answer really gives me a boost.You made my day ! Thanks.
                                        Will keep in touch and tell you how she is. Next check up on Nov. 19.

                                        Say hi to Gary! I wish him all the best.

                                         Happy Halloween to you all in Michigan!    smiley

                                        Rozen

                                        LE COENT Rozen
                                        Participant

                                          Hi Marilyn and thank you indeed for your reply. I'm very happy and have forwarded your reply to Gaëlle.

                                          Gaëlle (30 yo) has got mets in her left breast and neck, abdomen, ovaries, vertebrae. She was on Ipi for a while but it didn't work. So she is now one of the 15 French patients on GSK Braf (this is her 4th day) and your answer really gives me a boost.You made my day ! Thanks.
                                          Will keep in touch and tell you how she is. Next check up on Nov. 19.

                                          Say hi to Gary! I wish him all the best.

                                           Happy Halloween to you all in Michigan!    smiley

                                          Rozen

                                        bill58
                                        Participant

                                          Great news.

                                          I am so glad that Gary is responding so well to the BRAF treatment.  I hope things continue to improve and those nasty tumors disappear and never return.

                                          Enjoy your great news and I hope you have many similar scans for years to come.

                                          Bill

                                          bill58
                                          Participant

                                            Great news.

                                            I am so glad that Gary is responding so well to the BRAF treatment.  I hope things continue to improve and those nasty tumors disappear and never return.

                                            Enjoy your great news and I hope you have many similar scans for years to come.

                                            Bill

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