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GSK BRAF 9 Month Scan-METS SHRINKING AWAY

Forums General Melanoma Community GSK BRAF 9 Month Scan-METS SHRINKING AWAY

  • Post
    mrsmarilyn
    Participant

    Hello-Everyone.  Just want to say my brother Gary is at his 9 month mark on GSK Braf-all METS almost gone.  Even one on his lung.  He has been invited to speak at a group of researches in Nashville-based on his progress.  How is anyone else out there doing on GSK Braf?!  He was asking me to share the good news and see what the progress is of anyone else out there.  Before he went on GSK Braf- Mets were going out of control.  He will continue on – and my best wishes to all – thank you again for any feedback!  Feel free to email direct.

    Hello-Everyone.  Just want to say my brother Gary is at his 9 month mark on GSK Braf-all METS almost gone.  Even one on his lung.  He has been invited to speak at a group of researches in Nashville-based on his progress.  How is anyone else out there doing on GSK Braf?!  He was asking me to share the good news and see what the progress is of anyone else out there.  Before he went on GSK Braf- Mets were going out of control.  He will continue on – and my best wishes to all – thank you again for any feedback!  Feel free to email direct.

    MrsMarilyn

    Sister of Gary (Stage IV)

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  • Replies
      Jim in Denver
      Participant

      Marilyn,

      Great news!  Thanks for posting.  The feedback on this trial is very encouraging so far.  Best wishes to Gary, you and your family.  Please let us know how he is doing in the months ahead.

      Best,

      Jim

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      Jim in Denver
      Participant

      Marilyn,

      Great news!  Thanks for posting.  The feedback on this trial is very encouraging so far.  Best wishes to Gary, you and your family.  Please let us know how he is doing in the months ahead.

      Best,

      Jim

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      EricNJill
      Participant

      Thank God!  We are actually looking into this trial.  This gives us hope!  Thank you for sharing your brother's success story!

      Jill N Eric in OH

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      EricNJill
      Participant

      Thank God!  We are actually looking into this trial.  This gives us hope!  Thank you for sharing your brother's success story!

      Jill N Eric in OH

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      himynameiskevin
      Participant

      Great News! Makes me feel great to know there are options and positive responces. I'm braf+, I'll definetly be looking into this. Thanks for the update. -Kevin

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      himynameiskevin
      Participant

      Great News! Makes me feel great to know there are options and positive responces. I'm braf+, I'll definetly be looking into this. Thanks for the update. -Kevin

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      LBN
      Participant

      Great news! I have been on GSK braf for 6 weeks so far and Mets are shrinking. My leg has 110+ Mets so it may take some time for them go away. I am very excited to hear any news from someone who is one this trial. How were his side effects? My current side effect is a painful case of shingles. They said any dormant virus may work it's way out on this trial and I hope I am not in for any more surprises like this one…but if I am here to complain about I guess things aren't all bad. 

      LBN

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      LBN
      Participant

      Great news! I have been on GSK braf for 6 weeks so far and Mets are shrinking. My leg has 110+ Mets so it may take some time for them go away. I am very excited to hear any news from someone who is one this trial. How were his side effects? My current side effect is a painful case of shingles. They said any dormant virus may work it's way out on this trial and I hope I am not in for any more surprises like this one…but if I am here to complain about I guess things aren't all bad. 

      LBN

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      mrsmarilyn
      Participant

      Thanks for the kind words.  He has no serious side effects-had a flu-like thing going on about the 3rd week with a rash- and it went away very quickly –just like it came on!  But other than that no other side effects!  He is at Nashville Sara Cannon — and I would highly recommend that facility for any interested in targeted treatment.  They have alot of new trials -and my brother seems to think there are open slots or slots opeining up soon.  Worth the trip to Nashville.  Please let me know if you need any more information!  Thanks to GSK and everyone else- so far – its been a miracle!

      MrsMarilyn

      Sister of Gary (stage IV)

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      mrsmarilyn
      Participant

      Thanks for the kind words.  He has no serious side effects-had a flu-like thing going on about the 3rd week with a rash- and it went away very quickly –just like it came on!  But other than that no other side effects!  He is at Nashville Sara Cannon — and I would highly recommend that facility for any interested in targeted treatment.  They have alot of new trials -and my brother seems to think there are open slots or slots opeining up soon.  Worth the trip to Nashville.  Please let me know if you need any more information!  Thanks to GSK and everyone else- so far – its been a miracle!

      MrsMarilyn

      Sister of Gary (stage IV)

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      LE COENT Rozen
      Participant

      Hi Marilyn,

      my daughter Gaëlle (stage IV) started GSK Braf last Friday. Reading your posts gives me so much hope !

      Can you tell me how long it took for Gary to really feel the mets were shrinking? Did he see a quick improvement?

      All my best wishes to you and Gary. Thank you for sharing the good news.

      Rozen (from France)

       

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      LE COENT Rozen
      Participant

      Hi Marilyn,

      my daughter Gaëlle (stage IV) started GSK Braf last Friday. Reading your posts gives me so much hope !

      Can you tell me how long it took for Gary to really feel the mets were shrinking? Did he see a quick improvement?

      All my best wishes to you and Gary. Thank you for sharing the good news.

      Rozen (from France)

       

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        mrsmarilyn
        Participant

        Hello Rozen & Gaelle!  You are going to do great!  My brother Gary saw reductions within the first month.  You will see drastic reductions each time.  I am so happy for you — and wish the best of luck!  Keep in touch!

        He had mets on his lungs – almost gone in nine months!  I will keep you in my thoughts!! and tell Gary you said Hi from France!!!  When you eat at McDonalds — think of Gary — he owns 15!!! 

        Talk to you later!!!!

        Marilyn

        Michigan

        USA

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        mrsmarilyn
        Participant

        Hello Rozen & Gaelle!  You are going to do great!  My brother Gary saw reductions within the first month.  You will see drastic reductions each time.  I am so happy for you — and wish the best of luck!  Keep in touch!

        He had mets on his lungs – almost gone in nine months!  I will keep you in my thoughts!! and tell Gary you said Hi from France!!!  When you eat at McDonalds — think of Gary — he owns 15!!! 

        Talk to you later!!!!

        Marilyn

        Michigan

        USA

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        LE COENT Rozen
        Participant

        Hi Marilyn and thank you indeed for your reply. I'm very happy and have forwarded your reply to Gaëlle.

        Gaëlle (30 yo) has got mets in her left breast and neck, abdomen, ovaries, vertebrae. She was on Ipi for a while but it didn't work. So she is now one of the 15 French patients on GSK Braf (this is her 4th day) and your answer really gives me a boost.You made my day ! Thanks.
        Will keep in touch and tell you how she is. Next check up on Nov. 19.

        Say hi to Gary! I wish him all the best.

         Happy Halloween to you all in Michigan!    smiley

        Rozen

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        LE COENT Rozen
        Participant

        Hi Marilyn and thank you indeed for your reply. I'm very happy and have forwarded your reply to Gaëlle.

        Gaëlle (30 yo) has got mets in her left breast and neck, abdomen, ovaries, vertebrae. She was on Ipi for a while but it didn't work. So she is now one of the 15 French patients on GSK Braf (this is her 4th day) and your answer really gives me a boost.You made my day ! Thanks.
        Will keep in touch and tell you how she is. Next check up on Nov. 19.

        Say hi to Gary! I wish him all the best.

         Happy Halloween to you all in Michigan!    smiley

        Rozen

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      bill58
      Participant

      Great news.

      I am so glad that Gary is responding so well to the BRAF treatment.  I hope things continue to improve and those nasty tumors disappear and never return.

      Enjoy your great news and I hope you have many similar scans for years to come.

      Bill

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      bill58
      Participant

      Great news.

      I am so glad that Gary is responding so well to the BRAF treatment.  I hope things continue to improve and those nasty tumors disappear and never return.

      Enjoy your great news and I hope you have many similar scans for years to come.

      Bill

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