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TexMelanomex
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TexMelanomex

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      • December 24, 2020 at 4:55 am
      TexMelanomex
      Participant
        I did Pembro for 2 years (every three weeks) and the last year of that I was NED. I was part of a clinical trial (with PV-10) and I believe 2 years was the protocol for that study. I never had a port but I’m an easy stick with vascular arms. Congrats on the favorable response! Like someone else said, I would also do every three weeks for life, gladly, if that was what it took to put the hurt on Melanoma! Warrior On!

        Tex

        • December 30, 2019 at 12:27 am
        TexMelanomex
        Participant
          I’m not sure on the rationale for the imgaing time frame your husband was given but I can tell you that my scans have been CT (body), MRI (head), and ultrasound of the head, neck, and upper torso every 3 months for the past two years while engaged in treatment and even after. I have never had a PET scan but I know many people here have. I’m hopeful that after his next round of scans that the frequency decreases to every 6 months.
            • December 30, 2019 at 12:28 am
            TexMelanomex
            Participant
              I meant after THIS round of scans coming up for me, not “his” next round of scans. Sorry if that sounded confusing,
            • July 24, 2019 at 3:16 am
            TexMelanomex
            Participant
              Cyndie,

              Yes, I would absolutely get with a melanoma specialist sooner rather than later. Since you are in Texas I can’t recommend MD Anderson highly enough. My melanoma started on my scalp as well and they (MD Anderson -Dr. Ross and Dr. Amaria) were amazing in treating it and me! Many people here will tell you that you are in better hands with a melanoma specialist than a general oncologist and MD Anderson is one of the major league centers of melanoma treatment in terms of specialists, access to treatments, and even clinical trials if needed. I hope this helps, your brother is fortunate to have an advocate like you. I waited far too long to see my dermatologist but once they diagnosed me they also recommended a local oncologist, I’m glad I went to MD Anderson instead. Warrior On!

              Tex

              • June 5, 2019 at 7:20 pm
              TexMelanomex
              Participant
                Right on Big Mike! About dang time brother, now on to delivering a Costco sized ass-whoopin to this bastard of a disease!
                • April 25, 2019 at 1:03 am
                TexMelanomex
                Participant

                  Right on Mike! Happy to hear it Warrior!

                  Dum nos vivere, et nostrum vivere…ab inconveienti.

                  • April 7, 2019 at 9:12 pm
                  TexMelanomex
                  Participant

                    Mike made contact with me. He has been having some anemia and a few other issues since completing his combo treatment but is otherwise still fighting the good fight! Hopefully he will be returning to the forum soon!

                    • April 4, 2019 at 4:28 pm
                    TexMelanomex
                    Participant

                      Hang in there, even people who tolerate only a dose or two of the combo have shown results! Sounds like you warriored through the Ippy Combo Flu and are on the mend. Good for you! Keeping you in my thoughts and prayers as you approach scan day but remember sometimes it takes a little while for that combo to work its magic!

                      • April 4, 2019 at 4:16 pm
                      TexMelanomex
                      Participant

                        Very interesting Ed, thanks for posting this. As I come to the end of my 2 year Pembro cycle this September…gives me some things to think about.

                        • December 28, 2019 at 12:44 am
                        TexMelanomex
                        Participant
                          You hang in there Affected! I’m always elated to hear NED stories and 6 months is a great start to many more years! Yes, this forum can be a huge source of support and inspiration, it was for me and yes, it also brings with it many emotions but we are humans and we feel things and that’s ok! Thank you for your prayers and I will also pray for you and your husband!
                          Warrior On!
                          • April 4, 2019 at 4:23 pm
                          TexMelanomex
                          Participant

                            Thanks Amanda, I hope you are taking the fight to the enemy and kicking some Melanoma A$$!

                            • April 4, 2019 at 4:22 pm
                            TexMelanomex
                            Participant

                              Thanks Jackie, I should be back down at MDA on the 22nd and 23rd for another round. Maybe we can all link up on the next trip?

                              • April 4, 2019 at 4:21 pm
                              TexMelanomex
                              Participant

                                Thanks Lisa, you are a Warrior!

                                • April 4, 2019 at 2:16 pm
                                TexMelanomex
                                Participant

                                  Thank you Cindy!

                                  • April 4, 2019 at 2:15 pm
                                  TexMelanomex
                                  Participant

                                    Thank you Scooby! I hope you are well!

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