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Rona

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      Rona
      Participant

        smiley That is great news!!!! I hope you are NED forever!!! 

        Enjoy LIFE and all that comes with it….. 

         

        Rona

        Rona
        Participant

          smiley That is great news!!!! I hope you are NED forever!!! 

          Enjoy LIFE and all that comes with it….. 

           

          Rona

          Rona
          Participant

            smiley That is great news!!!! I hope you are NED forever!!! 

            Enjoy LIFE and all that comes with it….. 

             

            Rona

            Rona
            Participant

              This really shows me that every ONC is different. My ONC stressed the importance of informing her of Colitis. She said it was a deal breaker for me. If I did develope colitis I would be put on steroids and taken off the Yervoy. 

              Rona

              Rona
              Participant

                This really shows me that every ONC is different. My ONC stressed the importance of informing her of Colitis. She said it was a deal breaker for me. If I did develope colitis I would be put on steroids and taken off the Yervoy. 

                Rona

                Rona
                Participant

                  This really shows me that every ONC is different. My ONC stressed the importance of informing her of Colitis. She said it was a deal breaker for me. If I did develope colitis I would be put on steroids and taken off the Yervoy. 

                  Rona

                  Rona
                  Participant

                    sending love

                    Rona

                    Rona
                    Participant

                      sending love

                      Rona

                      Rona
                      Participant

                        sending love

                        Rona

                        Rona
                        Participant

                          John,

                          My experience with the treatment did not go very smooth. I actually did much better the first month when its given everyday. I worked full time and went to school. But, I was very weak and slept every chance I could. I slept on breaks, in between classes. If I was not driving, I would sleep. I think it really helped that I drank  about 80 oz's of water. I'm not kidding, that's all I drank(water), that's all that I could tolerate. Nothing tasted good and nothing else stayed down. I dropped 20 lbs that month. 

                          When I started the self injections, I just went down hill. I finally had to stop after the 4th time I got pneumonia. I was hospitalized and stopped the treatment. The nurses kept letting me that it will get easier, but it didn't. I lasted 4 months.

                          Now, that's my story. That doesn't mean that it will effect you the same way. There are many people that tolerate it much better……

                          Keep us posted on your journey,

                          Rona

                          Rona
                          Participant

                            John,

                            My experience with the treatment did not go very smooth. I actually did much better the first month when its given everyday. I worked full time and went to school. But, I was very weak and slept every chance I could. I slept on breaks, in between classes. If I was not driving, I would sleep. I think it really helped that I drank  about 80 oz's of water. I'm not kidding, that's all I drank(water), that's all that I could tolerate. Nothing tasted good and nothing else stayed down. I dropped 20 lbs that month. 

                            When I started the self injections, I just went down hill. I finally had to stop after the 4th time I got pneumonia. I was hospitalized and stopped the treatment. The nurses kept letting me that it will get easier, but it didn't. I lasted 4 months.

                            Now, that's my story. That doesn't mean that it will effect you the same way. There are many people that tolerate it much better……

                            Keep us posted on your journey,

                            Rona

                            Rona
                            Participant

                              John,

                              My experience with the treatment did not go very smooth. I actually did much better the first month when its given everyday. I worked full time and went to school. But, I was very weak and slept every chance I could. I slept on breaks, in between classes. If I was not driving, I would sleep. I think it really helped that I drank  about 80 oz's of water. I'm not kidding, that's all I drank(water), that's all that I could tolerate. Nothing tasted good and nothing else stayed down. I dropped 20 lbs that month. 

                              When I started the self injections, I just went down hill. I finally had to stop after the 4th time I got pneumonia. I was hospitalized and stopped the treatment. The nurses kept letting me that it will get easier, but it didn't. I lasted 4 months.

                              Now, that's my story. That doesn't mean that it will effect you the same way. There are many people that tolerate it much better……

                              Keep us posted on your journey,

                              Rona

                              Rona
                              Participant

                                I have to agree with that. After I stopped the treatment (in Aug 2010) I had surgery to remove MEL in Aug '10, Dec '10, Feb '11, Mar '11, Apr '11,May '11, Jun '11, and Oct '11. It was like the interferon pissed off my MEL. And, all those surgeries were while I was on DTIC. 

                                Rona

                                Rona
                                Participant

                                  I have to agree with that. After I stopped the treatment (in Aug 2010) I had surgery to remove MEL in Aug '10, Dec '10, Feb '11, Mar '11, Apr '11,May '11, Jun '11, and Oct '11. It was like the interferon pissed off my MEL. And, all those surgeries were while I was on DTIC. 

                                  Rona

                                  Rona
                                  Participant

                                    I have to agree with that. After I stopped the treatment (in Aug 2010) I had surgery to remove MEL in Aug '10, Dec '10, Feb '11, Mar '11, Apr '11,May '11, Jun '11, and Oct '11. It was like the interferon pissed off my MEL. And, all those surgeries were while I was on DTIC. 

                                    Rona

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