Rescumom1

I know how you feel and just wanted to reach out to you and pass on what I’ve been told. I had a mole on my chest positive for melanoma and had it removed did nothing else and just did wait and see and get checked often.stayed cancer free for 5 years exactly, then I found a lump in my breast and it came back positive for melanoma. Had it removed and was told by one of the best hospitals for melanoma that there isn’t any data showing treatment would be helpful and to continue watching scans MRI blood work every three months then 6 months but after first 6 month check the cancer has spread to my lungs! So I’m now qualified for a pd1 antibody trial going on many places around the country. That was told to me yesterday! I’m signing up for the trial which is called CT-2012-01! I know how unsettling it can be when they say just watch closely. But I have to trust my doctor and believe in what she’s telling me! I’m grateful that this trial is available to me otherwise I’d have nothing! I would recommend H Lee Moffitt center in Tampa Fl if possible for you! Many have told me they are number one in country for melanoma treatment! Keep positive and educate yourself as much as possible! Trust your guy! I believe this is going to work for me and there’s just no other option for me! The mind is a powerful thing and I’m not giving up! I’m scared to death! But have lots of love and support and prayer! I wish you the best! Feel free to contact me anytime!! Take care!!

I know how you feel and just wanted to reach out to you and pass on what I’ve been told. I had a mole on my chest positive for melanoma and had it removed did nothing else and just did wait and see and get checked often.stayed cancer free for 5 years exactly, then I found a lump in my breast and it came back positive for melanoma. Had it removed and was told by one of the best hospitals for melanoma that there isn’t any data showing treatment would be helpful and to continue watching scans MRI blood work every three months then 6 months but after first 6 month check the cancer has spread to my lungs! So I’m now qualified for a pd1 antibody trial going on many places around the country. That was told to me yesterday! I’m signing up for the trial which is called CT-2012-01! I know how unsettling it can be when they say just watch closely. But I have to trust my doctor and believe in what she’s telling me! I’m grateful that this trial is available to me otherwise I’d have nothing! I would recommend H Lee Moffitt center in Tampa Fl if possible for you! Many have told me they are number one in country for melanoma treatment! Keep positive and educate yourself as much as possible! Trust your guy! I believe this is going to work for me and there’s just no other option for me! The mind is a powerful thing and I’m not giving up! I’m scared to death! But have lots of love and support and prayer! I wish you the best! Feel free to contact me anytime!! Take care!!

I know how you feel and just wanted to reach out to you and pass on what I’ve been told. I had a mole on my chest positive for melanoma and had it removed did nothing else and just did wait and see and get checked often.stayed cancer free for 5 years exactly, then I found a lump in my breast and it came back positive for melanoma. Had it removed and was told by one of the best hospitals for melanoma that there isn’t any data showing treatment would be helpful and to continue watching scans MRI blood work every three months then 6 months but after first 6 month check the cancer has spread to my lungs! So I’m now qualified for a pd1 antibody trial going on many places around the country. That was told to me yesterday! I’m signing up for the trial which is called CT-2012-01! I know how unsettling it can be when they say just watch closely. But I have to trust my doctor and believe in what she’s telling me! I’m grateful that this trial is available to me otherwise I’d have nothing! I would recommend H Lee Moffitt center in Tampa Fl if possible for you! Many have told me they are number one in country for melanoma treatment! Keep positive and educate yourself as much as possible! Trust your guy! I believe this is going to work for me and there’s just no other option for me! The mind is a powerful thing and I’m not giving up! I’m scared to death! But have lots of love and support and prayer! I wish you the best! Feel free to contact me anytime!! Take care!!

I’m so happy that you mentioned the false progression! Cuz not many people know that about keytruda! When I started it it had just came out so they didn’t know much about it! This was prob 5 years ago! But I had just read about that it can get worse. Before it gets better and that’s exactly what happened to me! At first my oncologist considered taking me off it but I told him what I had read and asked him to let me stay on it longer and see! Sure enough it got better and better! I came off it after three years cuz of how well it worked! However 9 months later it returned so I’m back on it and had a large tumor removed from my abdomen but now we are thinking of going back off it! So this is to anyone who is starting keytruda! This treatnent is a game changer! The only side effects I have is itching and skin testers! Wondering if anyone else is dealing with it! I just hope it goes away after treatment! Thanks for your post again and hearing your positive news!!

Hi Cindy Lou I saw your post about finding Dr K! She use to me my Oncologist when she was at Moffitt in Tampa! And I just had to connect with you and tell you you are in the best hands with her! I was sad when she moved to Atlanta but understood she needed to be around more with family for support! To this day I still miss her because she really goes out of her way to really get to know her patients to include families! She’s thorough and knows what she’s talking about! I could email her today and even though it’s been a few years I know she’d remember me despite all the patients she’s treated! So I just wanted to say hi and if you’d tell her when you see her next that Tracy Lempe said hi and I still think of her often! Take care of yourself and trust all she tells you she’s the real deal for sure!! Thanks Tracy

Janet must you me that harsh?  This is a patient who should be asking questions they don’t understand not to mention you don’t know what type of person they are and how they react..I think it’s a good thing to ask everything and anything..and we should be supportive and not harsh and not cryptic..just my observations