Hey Cindy Lou, I seem to have cornered the market on rashes. Initially diagnosed with lichen planus before I started Nivo, the Nivo caused a drug explosion which made the lichen planus even worse. My dermatologist put me on 10 mg prednisone and when I told my oncologist, he had a fit and we had to stop. As an FYI, folks commented on this board that low doses of steroids do not alter the affect of immunotherapy – my onco thought otherwise. I finished my one year of Nivo on April 3rd and the rashed continued. We tried UVB lightbox treatments for my vitiligo and lichen planus and it did not really do much. My onco ruled on any immuno suppressants. In july my rash got even worse and my dermatologist did another round of punch biopsies. The lichen planus was confirmed again but this time there was some indication that this could be lichen planus with lupus overlap. All of this makes my vitiligo even worse. Well the lupus came back negative. Meanwhile, my dermatologist put me on 30 mg of prednisone along with 400 mg of plaquenil (for lupus and can work for lichen planus). My onco agreed with the plan. After 1 day my itching stopped and now after two weeks, the rash(s) are completely gone. This after fighting it for 18 months. I’ll be tapering off the prednisone and most likely stay on the plaquenil. Hopefully I can keep this in check. Meanwhile I continue the UVB lightbox treatments for vitiligo. Don’t know if you had any biopsies on the rash but at least it can help in identifying what you rash is.
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