NSNewf

I was diagnosed 3a in January 2107, 1.7mm primary. My options at the time were HDI or surveillance. I elected the latter. I did go back to oncology in autumn 2018 and asked again about treatment options and I was told that since I do not currently present disease there is no evidence that treatment would be beneficial. I was also told that I was just diagnosed that I would be offered immunotherapy options. 

Please take your snake oil and move along. You won’t sell here!!

Don’t Wait. See your doctor and get it removed and tested. 

My sister-in-law was diagnosed with stage 4 colon cancer last August. She died in January of this year. She was 50 and had four kids. She decided no treatment. Your grandmother is “lucky”.

Hey Celeste sending positive thoughts and prayers your way. I am wishing you a speedy recovery. 

Hey Celeste 

i am thrilled to hear your update. You are are our rock. Thank you. Wishing you a speedy recovery 

Doug

Hi mmmm

I am interested in what you find out as well as your experience. I am also Canadian and have an appointment booked for late this month back with oncologist. 

I am 3a and diagnosed 18 months ago. My only option was HDI ( which I declined). I am going back to talk whether the options have changed

Good Luck and take care

Hey Newfighter sorry to hear you have joined the club. A couple of things you will find this site great as well as the other members. Some great knowledge and experience and all very willing to assist. 

You will find very different standards of care depending on where a member lives. Like you I am Canadian east coast and I am also 3a. Mine is resected and I was declared NED March 2017. 

Since I am not taking treatment ( HDI my only option) I am being followed by Derm and ENT alternating every 3 months. I also see plastics annually do further work on my primary. 

Currently I am getting an annual CT ordered by my ENT

You can do a search for Melanoma standards of care for Ontario. Most provinces post the standard of care. 

Take Care

Hi Emma, the short answer is it differs by country. I am 3A diagnosis in December 2016. I declined my only option for adjunct treatment, HDI, and I am under surveillance from my derm and ENT alternating every 3 months. Currently I am getting only annual CT scans. I am Canadian. 

Glad to hear you are still doing well. 

Thanks mmmm

Since oncology does not follow me I am monitored by derm and ENT. However I have become my primary care advocate. 

I do my research and push to get what I can. I am in NS. 

Stay healthy

Hey Celeste 

Sorry to hear what you are going through. Take care, hoping for a favourable path. 

All my best

I had a positive SNB in the left side of my neck. Subsequent surgery declared me NED.  While shaving a few months later I noticed swelling below right ear. Follow up with my ENT was determined to be a node that was always enlarged. Stay calm but follow up with doc

I went 3 weeks. Results came back inconclusive and then another 3 to get a positive result. Call and advocate for yourself. 

Actually I found a better source for you. Go to CADTH.CA. It listed the drugs as well as whether they are funded by the province. Nivo as of  April 2017 is funded in all but pei where it was under review. 

Best of luck