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kwb

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      kwb
      Participant
        Chelem2 – I agree with quietpoet, ask your doctor’s office when to expect the biopsy results. Having other moles or suspicious spots biopsied – after a primary melanoma – shows proper vigilance on your doctor’s part. At the same time, try not to worry yourself, too much. I know it’s easier said than done. I wish I could give you better advice on how not to worry. Finally, regarding your appointments, take some time beforehand to write down – or put in your phone – specific questions/concerns you have. (Even if they’re general treatment questions.) I’ve been making notes beforehand for several years, now, and it definitely helps. Best of luck. Please let us know how the biopsy turns out.
        kwb
        Participant
          MLD1973, understandable that you’re anxious and scared. Sorry. Glad you reached out to your doc and that he is being proactive. Thoughts with you.
          kwb
          Participant

            Hi Friend of Mari –

            I presently have Stage IV mets in both lungs, and I have been on Gleevec (400 mg/day) for almost 3 years.  I have cKit mutation with exon 11.  Imatinib initially slowed and even reduced several of my tumors.  Note – my cancer was caught somewhat early and the tumors have been slow growing.  Last year, however, I had two of the larger tumors ablated (radiofrequency ablation surgery) and they have not returned.

            You can visit the Novartis website regarding Gleevec and search the Internet for more recent data on Gleevec and melanoma.  I'll see if I can dig up some of the old data I found from 2 – 3 years ago.

            Take care.

             

             

            kwb
            Participant

              Hi Friend of Mari –

              I presently have Stage IV mets in both lungs, and I have been on Gleevec (400 mg/day) for almost 3 years.  I have cKit mutation with exon 11.  Imatinib initially slowed and even reduced several of my tumors.  Note – my cancer was caught somewhat early and the tumors have been slow growing.  Last year, however, I had two of the larger tumors ablated (radiofrequency ablation surgery) and they have not returned.

              You can visit the Novartis website regarding Gleevec and search the Internet for more recent data on Gleevec and melanoma.  I'll see if I can dig up some of the old data I found from 2 – 3 years ago.

              Take care.

               

               

              kwb
              Participant

                Hi Friend of Mari –

                I presently have Stage IV mets in both lungs, and I have been on Gleevec (400 mg/day) for almost 3 years.  I have cKit mutation with exon 11.  Imatinib initially slowed and even reduced several of my tumors.  Note – my cancer was caught somewhat early and the tumors have been slow growing.  Last year, however, I had two of the larger tumors ablated (radiofrequency ablation surgery) and they have not returned.

                You can visit the Novartis website regarding Gleevec and search the Internet for more recent data on Gleevec and melanoma.  I'll see if I can dig up some of the old data I found from 2 – 3 years ago.

                Take care.

                 

                 

                kwb
                Participant

                  Jerry,

                  Thanks for the quick response.  I was out-of-pocket for most of last night.  I'll take a look at earlier posts, and, yes, I'd like to discuss through the BB or chatroom.  Maybe we can do that tonight (8/19).

                  I'm supposed to get my first dosage tomorrow.

                  Thanks, again.

                  kwb
                  Participant

                    Thanks, Becky.  (I wasn't expecting such a quick response.)  I'll give Jerry a "shout."

                     

                    kwb
                    Participant

                      We'll be thinking of you.  Best of luck to Mari as well.

                       

                       

                      kwb
                      Participant

                        We'll be thinking of you.  Best of luck to Mari as well.

                         

                         

                        kwb
                        Participant

                          We'll be thinking of you.  Best of luck to Mari as well.

                           

                           

                          kwb
                          Participant

                            Sounds like good news.  Glad you can relax for a while.

                            kwb
                            Participant

                              Sounds like good news.  Glad you can relax for a while.

                              kwb
                              Participant

                                Sounds like good news.  Glad you can relax for a while.

                                kwb
                                Participant

                                  Jerry,

                                  Thanks for the quick response.  I was out-of-pocket for most of last night.  I'll take a look at earlier posts, and, yes, I'd like to discuss through the BB or chatroom.  Maybe we can do that tonight (8/19).

                                  I'm supposed to get my first dosage tomorrow.

                                  Thanks, again.

                                  kwb
                                  Participant

                                    Jerry,

                                    Thanks for the quick response.  I was out-of-pocket for most of last night.  I'll take a look at earlier posts, and, yes, I'd like to discuss through the BB or chatroom.  Maybe we can do that tonight (8/19).

                                    I'm supposed to get my first dosage tomorrow.

                                    Thanks, again.

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