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KRob

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      KRob
      Participant

        Your family is in my prayers. I am sorry that it came to this. 

        May peace be with you.

        Karen

        KRob
        Participant

          Your family is in my prayers. I am sorry that it came to this. 

          May peace be with you.

          Karen

          KRob
          Participant

            Your family is in my prayers. I am sorry that it came to this. 

            May peace be with you.

            Karen

            KRob
            Participant

              Sure. 

              My treatments consisted of wide excision with lymphotomy; gamma knife treatments (3); Temodar oral chemo (16 rounds); lobectomy of lower right lung; and a craniotomy of right parietal lobe. 

              KRob
              Participant

                I just saw that your scans are in April. Best to you; glad you're on leave during this time. yes

                KRob
                Participant

                  I just saw that your scans are in April. Best to you; glad you're on leave during this time. yes

                  KRob
                  Participant

                    I just saw that your scans are in April. Best to you; glad you're on leave during this time. yes

                    KRob
                    Participant

                      Additionally after reading "Anonymous's" post, I second his point that as a stage IV you'll get quickly through the application process. By the time my sick leave ran out, disability was all ready to start the very next month.

                      As for the effects of stress, I absolutely believe that for me it affected my disease. All 3 diagnosises came during some of the most stressful times in my life. I also realized after returning to work for those two years as a stage IV that I spent most of my days wishing I was any place but a classroom. I loved my job, but as Anonymous cited, my profession and any gains I made from it are not going to be important at the end of my life. It all comes down to God, family….life as it should be!

                      I prioritized my values and found that my work did not make the list 🙂

                      Karen

                      KRob
                      Participant

                        Additionally after reading "Anonymous's" post, I second his point that as a stage IV you'll get quickly through the application process. By the time my sick leave ran out, disability was all ready to start the very next month.

                        As for the effects of stress, I absolutely believe that for me it affected my disease. All 3 diagnosises came during some of the most stressful times in my life. I also realized after returning to work for those two years as a stage IV that I spent most of my days wishing I was any place but a classroom. I loved my job, but as Anonymous cited, my profession and any gains I made from it are not going to be important at the end of my life. It all comes down to God, family….life as it should be!

                        I prioritized my values and found that my work did not make the list 🙂

                        Karen

                        KRob
                        Participant

                          Additionally after reading "Anonymous's" post, I second his point that as a stage IV you'll get quickly through the application process. By the time my sick leave ran out, disability was all ready to start the very next month.

                          As for the effects of stress, I absolutely believe that for me it affected my disease. All 3 diagnosises came during some of the most stressful times in my life. I also realized after returning to work for those two years as a stage IV that I spent most of my days wishing I was any place but a classroom. I loved my job, but as Anonymous cited, my profession and any gains I made from it are not going to be important at the end of my life. It all comes down to God, family….life as it should be!

                          I prioritized my values and found that my work did not make the list 🙂

                          Karen

                          KRob
                          Participant

                            I'm glad you have options and a husband who has insurance.

                            I don't know what state you work in but here in Ohio our disability retirement offers insurance which is expensive but worth it if you want to keep it as a backup (plus I know once I stop it, nobody is going to sell me individual life insurance).

                            Also, don't know how many years you've been working. I had 14 yrs and was pleasantly surprised that my pay loss wasn't as bad as I thought it would be (most state education sites have calculators so you can see what you will be making).

                            You probably have had your PET scan by now. I hope that it was good news.

                            Please contact me if you have any other questions or concerns. I know that I went thru a mourning period when I retired under disability, but I was also relieved of so much worry. Eventually I came to accept it and enjoy not having the indecision and stress anymore.

                            Best to you,

                            Karen

                            KRob
                            Participant

                              I'm glad you have options and a husband who has insurance.

                              I don't know what state you work in but here in Ohio our disability retirement offers insurance which is expensive but worth it if you want to keep it as a backup (plus I know once I stop it, nobody is going to sell me individual life insurance).

                              Also, don't know how many years you've been working. I had 14 yrs and was pleasantly surprised that my pay loss wasn't as bad as I thought it would be (most state education sites have calculators so you can see what you will be making).

                              You probably have had your PET scan by now. I hope that it was good news.

                              Please contact me if you have any other questions or concerns. I know that I went thru a mourning period when I retired under disability, but I was also relieved of so much worry. Eventually I came to accept it and enjoy not having the indecision and stress anymore.

                              Best to you,

                              Karen

                              KRob
                              Participant

                                I'm glad you have options and a husband who has insurance.

                                I don't know what state you work in but here in Ohio our disability retirement offers insurance which is expensive but worth it if you want to keep it as a backup (plus I know once I stop it, nobody is going to sell me individual life insurance).

                                Also, don't know how many years you've been working. I had 14 yrs and was pleasantly surprised that my pay loss wasn't as bad as I thought it would be (most state education sites have calculators so you can see what you will be making).

                                You probably have had your PET scan by now. I hope that it was good news.

                                Please contact me if you have any other questions or concerns. I know that I went thru a mourning period when I retired under disability, but I was also relieved of so much worry. Eventually I came to accept it and enjoy not having the indecision and stress anymore.

                                Best to you,

                                Karen

                                KRob
                                Participant

                                  I did use Temodar and it was effective on the 5 mets throughout my body. My 3 brain lesions were treated with gamma knife + craniotomy so I can't say if the drug affected them or not.

                                  It sounds like it's worth a try for you husband to take it; you'll never know if you don't.

                                  Here's hoping and praying for you that it works.

                                  Karen

                                   

                                  KRob
                                  Participant

                                    I did use Temodar and it was effective on the 5 mets throughout my body. My 3 brain lesions were treated with gamma knife + craniotomy so I can't say if the drug affected them or not.

                                    It sounds like it's worth a try for you husband to take it; you'll never know if you don't.

                                    Here's hoping and praying for you that it works.

                                    Karen

                                     

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