Dropping in to say ‘hello’

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Dropping in to say ‘hello’

This topic has 5 replies, 5 voices, and was last updated 7 years, 1 month ago by Maria C.

Post

- March 8, 2017 at 5:05 am
- Quote
KRob
Participant
Long time stage IV survivor and (one time) regular poster, I like to drop in to see what the latest is and share with all the new folks that there is hope in surviving melanoma.

I just passed the 12th anniversary of being diagnosed stage IV and am currently NED.

I am always thinking of my fellow MELS and hoping nothing but the best for all of you in your journeys.

Also, anyone in the central Ohio area who is looking for a melanoma support group, we have one that meets at 6:30- 7:30/8:00 p.m. the 3rd Wednesday of each month at the Stephanie Spielman Center at OSU/James Cancer Hospital in Columbus, Ohio.

Information on our annual melanoma symposium, the latest in research and treatment options, as well as, guest speakers and recreational outings throughout the year, make it one of the best support groups in Ohio! Our facilitators are members of the melanoma team at OSU. They and other members of the group, including our docs, ride and/or participate every year in Pelatonia- they really live, breathe, and dedicate their lives to fighting melanoma.

Come join us!

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Replies

- - March 8, 2017 at 2:51 pm
  - Quote
  Jahendry12
  Participant
  Thanks for posting! CONGRATS on the 12 years!!! I do believe it lifts peoples spirits to hear from people like you that are living their lives while 'maintaining' a stage IV status. My hope is that many more people can live with melanoma and it becomes just a chronic condition that needs to be maintained and watched.
  
  Thank you again!!!!!!
- - March 8, 2017 at 5:29 pm
  - Quote
  Hukill
  Participant
  May I ask what treatment/s you received?
  - March 11, 2017 at 1:31 am
    
    Quote
    KRob
    Participant
    
    Sure.
    
    My treatments consisted of wide excision with lymphotomy; gamma knife treatments (3); Temodar oral chemo (16 rounds); lobectomy of lower right lung; and a craniotomy of right parietal lobe.
  - March 11, 2017 at 3:30 am
    
    Quote
    Maria C
    Participant
    
    Thanks so much for dropping in and sharing!! Just what I needed to hear too – the voices of fellow brain met survivors! May I ask when your last gamma knife and craniotomy treatments were?
- - March 9, 2017 at 4:29 pm
  - Quote
  snow white
  Participant
  Thank you for posting, it is so awesome to hear positive outcomes!
  
  Jen

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